Cardiology Update!!!!

So, for any of y’all that don’t know, back in 2006, I delivered my daughter Hannah via emergency C-section due to severe preeclampsia.

Long story short, my physician was a third-generation OB/GYN who had basically written off my complaints of being short of breath during my second and third trimester. My daughter was delivered at 34 weeks, and the preeclampsia was “supposed” to resolve…except it got worse. I wound up in full congestive heart failure due to peripartum cardiomyopathy and pulmonary hypertension. My left ventricle blew up like a balloon–it was 3x the size of the rest of my heart, and my lungs were full of fluid. In the first night after my diagnosis, if I remember correctly, they removed 30 pounds of fluid from my body that I had retained. Dealing with that, post C-section? Not cool.

As most of you know, my daughter passed away at 29 days of age, due to Late-Onset Group B Strep and bacterial meningitis. Her cause of death was not due to my heart failure-it was a completely unrelated issue. We were told for years that due to the extent of the damage my heart had gone through, that we should never have another child….but we did not believe them. Cardiologist after cardiologist refused to see me as a patient, until Dr. Michael Paul, perinatologist at Mo-Bap, referred me to Dr. Robert Kopitsky, who did the right tests and discovered that miraculously, my heart had recovered to running at 50-55%, which was completely normal! I had no scarring, no permanent damage, and I was cleared to get pregnant with my son. It was the best news I’d ever heard!

Through my pregnancy with Jericho, my heart was closely monitored, and I was admitted to Mo-Bap at 32 weeks along. At that point, my cardiac function was already less than 30%. It continued to decline, and the decision was made to deliver early once again. I had excellent care, and my miracle baby was born! My heart was still an issue, and remained closely monitored & medicated for the next few years.

In 2016, I had an echocardiogram performed, and my cardiologist (I’d had to find a new doctor due to insurance changes) put my estimated cardiac function at 40-45%. That’s not bad, but it’s not normal; however, my cardiologist said it was acceptable and to be happy with it, “because you’re stuck there. I don’t think you’ll see those numbers improve.'”

And you know what? I was happy with that. I mean, c’mon, I almost died–twice! I’m happy with what I can get!!!! I took my regular meds and considered myself blessed!

Last month, my new PCP said it was time to check on my heart again. I’ve had some issues with stress, headaches, and back pain, so she wanted to rule anything out. My cardiologist agreed, so last week, I went in for a new echo. I got the phone call from his nurse today, as I was getting ready to leave my office.

MY HEART FUNCTION IS AT 60%!!!!!!!!!!!!!!!!!!!!!!!!!!

I’m completely floored–the nurse said, “We just don’t see that. We don’t see those numbers with people with your history. Someone is looking out for you, for sure.” HA!!!!! Ya’ THINK?!?!?!?

My mind is blown. Like, I wasn’t even praying about it–I just accepted 40-45% and went on my way. Subconsciously, I think I was writing off even trying to exercise or anything, because why bother if I’m “stuck?” I come from a long family history of crappy hearts, so I just took it for granted that this is my life.

BUT IT’S NOT.

God takes over and answers prayers when we don’t even ask. He works miracles that we don’t expect or anticipate. David & I are in this season of struggle, where things have been extremely stressful. Yet in this, over and over again, I keep seeing little things, and big things, and random things, that remind me that God is watching. He is PRESENT. He meets needs we didn’t even know that we had. He loves us, He works in our lives unexpectedly, AND HE STILL WORKS MIRACLES!!!

Spiritually, mentally, and now physically (multiple times!), my heart has been broken and repaired in miraculous ways. I know it may sound dramatic to say, but I will shout this testimony from the ROOFTOPS, y’all, because I know my God is in the business of healing hearts.

“My heart overflows with a good theme; I address my verses to the King! My tongue is the pen of a ready writer. You are fairer than the sons of men; Grace is poured upon Your lips; Therefore, God has blessed You forever.”–Ps. 45:1-2, NASB

“Somebody Burned Down My She-Shed!”

Oh, the “She-Shed” commercial–you know the one!! Since we don’t have “regular” TV (the downside of living in a valley), the only time I ever hear the commercial is on the radio. When I Googled it to link it here, I decided that the “She-Shed” in the commercial is kinda glorious, you know?

I mean, just the concept–A She-Shed!!!  A quiet place, all my very own, to decorate how I want, and to do with what I want—GLORIOUS.  I think the concept of a private place that is unblemished by little fingerprints or man-boots…a place with perfect lighting and ambient music, with gentle motifs and plush carpet…oooh, okay, that sounds glorious.  My She-Shed would be devoted to crafts; the thermostat would never be above or below 65; I’d have inlaid bookcases, & no one would make me watch YouTube videos about Legos or camera lenses…aaaaaahhhhhhh….Oh, and it would smell of lavender & chocolate chip cookies. Always.

And I’d never leave. 🙂

Cue the music…”in my own little corner, in my own little world.….”

We have this unrequited need to have our Very Own Space in this world, and yes, even though our HOUSE is supposed to be that place, as we grow up we find that it’s not. No, our house gets taken over by stuff, or by the people, or by The Legos, or by the whatevers. It’s hard to maintain the upkeep of keeping your home a place of peace in a world that cranks out materialist must-haves at an alarming rate. Every time I Marie-Kondo my house, I make these wonderful spaces that fill back up again in spite of my promises to myself that it’s not going to happen. I’ve pared down and pared down and pared down, and recent events mean that nope–I’m not filling ANYTHING back up again, and it’s okay.

Learning to make do, and to be okay with making do, is an adventure. It’s frustrating, but it’s something we should all be good at by the age that I’m at (I’m not). The more we pare down or get used to telling ourselves, “no,” the more resourceful we find we are. The more we miss going and doing “the things,” the more I’m appreciating the quiet weekends at home. It takes more creativity to stay busy on the weekends when you don’t have the resources to do what you want (truth be told, we’re not really doing anything on the weekends right now. The weather is crap, and blankets are awesome. It’s an issue). In this process, I’m realizing there were a lot of ruts we were stuck in; there were a lot of patterns we were set in that needed to break. It’s not a fun process, truth be told, but the longer we’re in this boat, the more I realize we’re floating. It’s rough waters, but we’re together.

Last week, we faced some scary decisions…At one point, I was laying on the couch, and David had his head on my lap. My son took the opportunity to make a “DAD SANDWICH!” and pounced on top of him; meanwhile, the dog laid at the foot of the couch so that I couldn’t have got off of the couch if I tried.

I looked down at all of my happiness…my husband, my son, my dog…I know it probably sounds cheesy, but with these decisions looming over my head, in that moment, I felt like I could physically shove the anxiety off of my shoulders. Regardless of what happens…regardless of the outcome…this little group of 4 is everything to me. Everyone in that little circle–even the dog–is an answer to prayer and a reminder of how faithful the Lord is.

I’m choosing joy.

I’m choosing contentment.

I’m choosing to Consider the Lilies, and I’m choosing to stay in the room with this tribe.

I’m not going to lie–I’d love to retreat to my mental She-Shed and just check out. But it’s not what we do. It’s not what Jesus does. He dives in and surrounds the four of us–even the dog–and He wraps us in His arms.  He holds us. He has more of a reason to mentally check out than anyone, yet He stays involved. He’s never distant.

When I was in high school, we studied a book about world views, and one of them discussed the concept of Deism. My understanding of Deism is that God basically set everything in motion in some way–the Big Bang, Intelligent Design, whatever–and then He just steps back and watches us do whatever. He doesn’t intervene; He gives us passing interest, but He lets us live our lives while He does His Own thing. This view of God always struck me as the saddest, because why should we love a Father Who’s checked out?  Why should we care about the “will” of a God Who sits back in His Celestial Man Cave while we run around in the rat traps of earth?

It’s the same kind of philosophy that inspires us to want to hide in She-Sheds or Man-Caves or under a blanket in our bedrooms until the drama subsides. It solves nothing, it helps no one, and it’s entirely narcissistic. Granted, everyone needs some time alone sometimes. I’m not saying that’s a bad idea, and if you have the means to make a She-Shed, Sheryl, BUILD THE THING, OKAY?!? 🙂

Just don’t be surprised if it gets struck by lightning.

I’m kidding!  But seriously, we’re so inundated with noise and drama–my last blog discusses the beauty of getting small, and the appreciation for the quiet. There’s a time for noise and a time for drama, but there’s also a time for being involved and for community. Families aren’t made of individuals who hide and ignore each other. They’re made in the side-by-side, day-to-day relationships we form when we work together. They’re solidified by relationships with our ever-involved God, and with each other. They take constant work, but there’s a constant reward that it so worth it–I have to remind myself of that, because as I age I get more inclined to hide under that blanket.

If I hid in my She-Shed, or under that blanket, I’d miss the peace I found in the family picture of the four of us crowded around/on the couch. I’d miss that gentle reminder from the Lord of all that He’s done and will do, and is doing. I’d miss the reminders in church on Sunday of the people He’s placed in my life, and of the people in who’s lives He’s placed me.

He surrounds us with reminders of His love in the midst of every storm. Sometimes, we don’t see them until we’re through to the other side, and that’s okay. Sometimes, though, they’re undeniably present…as long as we’re present, and don’t check out into our mental She-Sheds or Man Caves.

Stay present. I love the cheesy saying that “it’s called The Present for a reason.” It really is a gift, albeit an occasionally frightening one. Storms don’t go away just because we find a place to hide–we have to face them. But when we face them and when we get present with those storms, we know that He is present WITH us–we’re not alone.

The world tells us to hide and to isolate; it glamorizes the concept a place of our own, but Jesus tells us to Go Out Into All of the World. He tells us to be open and to engage…He tells us He will be with us. He tells us we’re never alone, and that we always have a place of our own, in His Kingdom, in His time. Now is not the time for the She Shed or the Man Cave….Now is the time to change the world, and we do that by building relationships and by celebrating the relationships that we have.

Now, if only I could convince myself to get off of this dang couch….. 🙂