diabetic

“Where’d You Go?!” AKA, “The Case of the Missing Body”

/ Cassidy S. Cooley / Leave a comment

I’m going to start this blog out by making a statement I never thought I’d make & am terrified to state publicly: I have lost over 100 pounds.

“Where’d you GO?!?” is the question I am most commonly asked, and I generally respond, “I’m right here.” I’m still me. I’m still a giant jerk…still a giant nerd…still a flawed bonehead that loves Jesus & fails every day. I’m just….lighter.

I’m still a “big girl,” & I’m cool with that (even though I look like Shrek in family photos–why is everyone so SHORT?!?). I’ll never be petite–I’ve got hips that could birth a Hereford–& I’m 5’7.” I have feet like Sasquatch (my sister calls me “Casquatch” & I embrace it), so don’t get it twisted–I’m solidly built. I’m as my college “friend” called me, “healthy.”

Body confidence has NEVER been my forte. I dealt with so much body shaming growing up; when you grow up in the Church & you develop early, you’re punished for it. It’s crap. I was 14 and a DD, & my tiny, little Christian school couldn’t handle it. I got dress coded on a regular basis (like I asked for it?!?); my mom always reminded me to “suck it in,” as I had a belly even before I had my babies. I look back at pictures of myself, & I looked AMAZING at 17, but felt like a total freak show. I was taller, curvier, & louder than everyone I knew, and none of those things fit in well with a culture that wants you to be “meek.”

I felt hideous. I was “too much” for society, for church, & even for my family. I was different–I acted differently, and “different” was “bad,” so I tried to be what people wanted. I tried to dress in a way that covered everything up, but that’s hard to do when you’re top-heavy (& I only got more top-heavy as I went through college, leading to some horrific nicknames that I am still embarrassed by). If I could have taken a knife and cut off various parts of my body to relieve how ugly I felt, I would have. Every family picture showed how I didn’t fit in (several of those pictures are still on the walls in my parents’ house). Every group picture in the church youth group with the tiny, petite blue-eyed girls with straight hair, every picture of my vocal group in college where I’m trying to hide beneath suit jackets & scarves, every picture of me from my wedding where there’s industrial-strength tailoring holding me into my dress–every picture has a flaw I can’t help but to see.

These flaws are compounded by Rejection Sensitive Dysphoria, which is a common thing for people with ADHD to struggle with.

I didn’t know I had ADHD until a few years ago. I just thought I was a weirdo, an outcast, the one “odd” personality type in a family that all tested one way while I tested another (side note: Personality tests were not designed for the neurodivergent. Throw them in the trash). I don’t fit in now, and I didn’t fit in then. Being told I was “different” added to the RSD. I looked different. I acted different. I was Built Different.

And therefore, I was BAD.

This voice that tells me I’m a “terrible, awful, horrible, wacky weirdo” has whispered in my ear for decades. It’s robbed me of being at peace with this “strange” mind, this “odd” body…it’s taken away the joy of being “fearfully and wonderfully made” that I should have celebrated, that I should BE celebrating. It’s sent me through cycles of self-harm & suicidal ideations that even though I recognize, I still encounter (sometimes through reasons I can’t control, i.e., medication changes–thank you, family & friends, for loving me through these processes!!!!!). Being weird or different, regardless of the fact that society is trying to preach inclusivity, isn’t welcomed, so I should just check out, right?

WRONG.

We just don’t realize how body image issues carry over into mental health…how it’s a spiritual issue that’s complicated by neurological and hormonal issues. Weight is NEVER the true problem. It’s ALWAYS a symptom, yet our healthcare system is only just starting to realize how true that is. Ask a fat person–we’ll tell you….but because we’re fat, we’re intrinsically stupid, right, doctors? And therefore, our opinion is void….and we pile on the mental health issues.

I’m 47 years old. It wasn’t until my ADHD was diagnosed and properly treated that I started looking over life experiences with a fresh filter & learned just how toxic and damaging my body image issues were. Losing weight has further complicated this retrospect, as I can see how many times health care providers dismissed major problems in the light of my weight. I have carried decades of guilt over my weight, like it defined my worth as a Child of God. I have gaslit myself & ignored root issues that played out in binge-eating & self-harm. I have looked at family pictures and privately sobbed (sometimes not privately) at how disgusting I looked & how I brought shame on our family with my size. I have shed oceans of tears over the combined issues that I now know were rooted in anxiety, depression, neurodiversity, rejection sensitive dysphoria, PTSD, and abandonment issues.

Shame is a heavy, heavy burden to carry. When it’s combined with RSD, it’s soul-crushing. When the burden of untreated ADHD finally began to be lifted, the lies of RSD began to untangle, & I began to get clarity on this skin that I am in, on this body (amongst other things). The ability to focus allowed me to silence the inner static that had me snacking constantly. Getting my ADHD treated led to a healthcare provider that got my diabetes under control through a semiglutide (which is also something I never thought I’d say publicly, but whatever, we’re all friends). I overhauled my healthcare team in 2021 & began the process of what would ultimately lead to losing 110 pounds.

But now what happens? I get shamed for using a semiglutide? That’s the only part of the journey people focus on?!?!? The shot gets all of the credit?!?!?!?!? Um, no–you can shove that. Today, I am refusing to take shame or blame for using an injection to first-&-foremost, get my T2D under control. Did it help me lose weight? Absolutely. Was it the only thing? NO. It’s taken multiple medication changes, getting my ADHD treated, therapy, better food choices, family support, and most importantly, remaining focused on listening to the Holy Spirit to carry the shame & to help me identify triggers. When you brain starts to work properly–when the synapses fire & connect– you can hear the truth of God so much more clearly. My ADHD meds have turned down the static in my brain, & have turned up how I tune in to Him!

There’s more of me to give, even as there’s technically less of me. Life is more….LIFE. That’s not saying things are easy; in fact, if you check my last blog, you’ll find our life has become intensely complicated in the last few months, & it’s been ROUGH. I see God working even in the storms…He is still in control.

And by His grace, so am I, at least, when it comes to my mental health support and my weight loss journey.

Physically, “don’t you feel better since you’ve lost the weight?!” is a misnomer. Losing weight can sometimes a.) Remove being fat as the cause of the problem and b.) Exacerbate the problem. As we speak, I’m in the process of ruling out yet-more autoimmune issues related to my legs & feet (did you know there’s a medical level above a neurologist?? Yep–I now see a “neuroscientist,” & it’s a trip). Testing for another issue means I’m off of my primary ADHD medicine for a couple of weeks, & IT’S NOT FUN. I’ve had a frightening decline in my energy levels (aren’t those supposed to be BETTER once you’ve lost weight?!?) that specialists are trying to identify, but that fatigue has been a cyclical issue that’s followed me for a decade. Now we at least know I’m exhausted not because I’m fat, but because I’m…me. That’s fun.

I’d like to throw up a face-palm for every doctor that missed signs of major issues because I was heavier. YOU. ARE. JERKS. 🙂 Jesus still loves you; I think you can go climb a cactus, for real.

Weight loss is hard, even in the face of perceived successes. I have anxiety every single time I clean out my closet (so bad!!!!!) or go into a store. I STRUGGLE with body image issues. The picture I’m posting below is what set off this blog post…I feel like I should LIKE this picture. I’m like, genuinely laughing in this picture, yet all I can see is the fact that because it was taken by someone who is shorter than I am, my neck looks fat. And fat, in my crazy-wired brain, is BAD. Therefore, even though I’ve lost weight, I’m still fat and ugly and this picture is terrible, right?

I sent this picture to someone who has been on a similar weight-loss journey & said, “I want to like this picture but I don’t.” She told me it was gorgeous (and considering she’s stone-cold STUNNING, I should take her word for it, but I don’t). She understands how I still feel like a heifer even after losing the weight; she struggles with the body image issues as well, even though she’s always had the figure I wish I had. The conversations I’ve had with her on our body image issues validates how I’m feeling, and how I know it’s messed up but can’t fix it.

I have to forcefully remind myself that losing weight does not define me. I’m terrified to gain it back, but if I do, gaining weight does not define me. This body is the shell for Who I Am, and although Who I Am is a definite weirdo, Jesus says I’m frickin’ SPECTACULAR. Whatever it takes for me to embrace that I am Who He Says I Am, that’s the journey I am committing to take, here on out.

My son is inspiring me to make this commitment. He’s on the shorter side of the kids in his class, & was recently tapped to play Napoleon in the school play (he didn’t really want a speaking role; he says that’s why he was cast in the role & I’m taking his word for it, even though a lil’ heathen said it was because he was short. I see her…duly noted, child, with a healthy dose of parental side-eye.)

My son’s body image issues started in the first-or-second grade, when the more athletic boys in the class were comparing muscles. What first grader has defined muscles?!?! Um, not mine–sorry, child, it’s not in the genetic cards. Since then, I try to stay aware of realistic comments like, “yeah, Mom, basketball’s not really my thing, hello?!?” verses shaming comments like, “I’m just fat, Mom.”

No, son, you’re not fat. I hate that you know that word and I hate that I’m the reason why. I’m sorry that your genetics predispose you to being on the thicker side but I also know that you’re on the cusp of a growth spurt & that you’ll lean out. I’m sorrier that he’s picked up on my own issues & struggles, and that being ADHD himself, he has some of the same eating habits that I developed to try & quiet my brain. “Bored eating” is a thing, & all of us fight it. I don’t know that the body image issues will resonate as deeply with him as it did with me at that age…but I also don’t think that body image issues are relegated to gender. Body dysmorphia is more impactful amongst the neurodivergent, so I suspect my son & I will be having this conversation a few times in the coming years. I am praying that he will come to me with these discussions to avoid the decades of pain this has caused me…

It’s very, very strange to see someone I haven’t seen in a long time & have them comment on my weight first-thing. Frankly, it’s rude–don’t do that. Don’t ask the people close to me how I’ve lost weight either–I’m an open book & if you were my friend, you’d know to ask me directly. If you don’t know, we’re not friends. We’re social media acquaintances in good standing. I don’t really want to discuss my weight, and part of the reason for this blog post is to hopefully put an end to the questions. I don’t like talking about weight–what woman does?!?–and if you like to talk about weight, good for you. Do it with someone else. It’s not a topic worth discussing.

Now, if you want to talk about Type 2 Diabetes, ADHD, RSD, or about how Jesus has changed my life, I will have these discussions All. Day. Long. The numbers on the scale, though? NO.

I am still the same person I was at +250 pounds. I am not, however, the same person I was 4 years ago…I look back at that person & I see a wholllllle lot of hurt that’s in the process of being identified and healed by a God Who has NEVER looked at me like anything but a beloved child.

I am listening to Him point out the pain in His gentle way, & love me to His wholeness.

This body will die some day. It will be fertilizer in the ground, or ash, or whatever…it isn’t eternal, so why have I put so much worth into to what people think of it? Why have I allowed it to have so much power over me when I look at it in the mirror? I can dress it up, slim it down, work it out–I can do everything within my power to build a body that doesn’t scream, “YUCK” when I look at it, but none of that will ever do anything more than build a shell for a divine creation of the Most High.

I’m worth dying for–He said so, & He lived-&-died for me. He rose again, & He is still working miracles through people today. All of our pain–all of my pain–& all of our struggles are things He is longing to hold in His hands, not to wipe away, but to walk us through. Weight loss is often seen by the world as a kind of salvation; I can tell you first-hand it is NOT. It’s a tool, however, & it can be used to harm or to help. I’m choosing to use it as a tool to point out what areas are still raw & that need to be given over to Jesus…where my insecurities show that I can further lay things down for Him, & where I realize the idols I’ve put in front of Him…I’m choosing to lose the weight but gain dependence on Jesus to a greater extent, to gain transparency with Him & to stop masking to such a degree that I convince myself that I’m fine. I’m not. I need Him, & I need His work in my mind, body, and soul.
He’s doing new things, and for that, more than anything–ADHD treatment, weight loss, etc.–I am so thankful.

Now you know. Let’s put this topic to bed, ‘k? 🙂 Unless you want me to flip it into a full sermon, because…I will. 🙂

Insomnia…

/ Cassidy S. Cooley / 1 Comment

I know a lot—too many—people who really struggle with sleep. I’m one of them. For me, it’s a combination of general anxiety, stress, and chemical imbalances related to either diabetes or my thyroid issues (I don’t have a thyroid, if you’re not up-to-date. I take thyroid replacement hormones. That’s an uphill battle that’s an entirely different blog…I may write it someday, but as I’m still too frustrated with the process, I’ll spare you the details). I realize that some people are like, “YEAH, BRUH, I’LL SLEEP WHEN I’M DEAD, YO!!!!” That’s not me. I have issues with sleeping, and I’ve recently come into a few things that seem to be helping, so I’ll share:

  1. Everyone that I know is quick to say that prayer is the best way to get to sleep. This doesn’t always work with me, as I find myself on mental rabbit trails that are anything but peaceful. However, it’s worth a try, as God loves us and is always ready to hear us out. Also, I do find that I fall asleep faster when I’m intentionally trying to draw nearer to God in prayer, LOL—of course.
  2. Get off of the electronics. I struggle with wanting to reach for my phone when I’m trying to fall asleep, but YOU HAVE TO UNPLUG YOUR BRAIN. Some experts say that getting off of electronic devices at least 30 minutes before bed. I wish my alarm clock wasn’t ON my phone, but it is—maybe keeping it in a different room would help (but oh, the anxiety while getting used to it!!!).
  3. Storytime!!!  I’ve recently discovered that even as an adult, I love storytime before bed. I read to my kiddo on the weekends, or we listen to an audiobook (Tim Curry’s narration of the Lemony Snicket books is AMAZING!!!!!! I just borrowed it from my library and had no idea Tim Curry would be the narrator. He’s perfect!); you can check these out from your library, or you can download them from the Libby, the Library App. I have always used Libby for my reading, but when I realized I could also use it for audiobooks, I was so excited!!!  I very rarely purchase books or audiobooks anymore; however, I recently discovered a podcast called, “Nothing Much Happens,” by Kathryn Nicolai. When I realized she’d compiled a bunch of these stories into a book/audiobook (with no commercials—commercials will jerk me out of a solid sleep like nobody’s business), I redeemed all of my Google Play points and I got the audiobook. Her stories are simple, descriptive, and sooooooooooo dreamy, and her voice is like butter. I’ll set the timer to 30 minutes, and I’m out like a light!!! 
  4. Music: Finding the perfect music for sleeping is DIFFICULT. For me, it can’t be piano, birds, or anything that’s high-pitched; I prefer delta-wave sounds or Deep Sleep Music.  I don’t want any chanting or weird psychic new-agey stuff; I’ve been tempted by guided meditations, but spiritually, it just feels “EW,” so I stay away from that kind of thing. I also really like basic rain sounds.
  5. Not bothering your Significant Other: Waking up your spouse with your sleeping “stuff” defeats the purpose of a “peaceful sleep.” I found these nifty headphones that are an eyemask (this is an essential piece of my sleeping habits—now my son wears one, which is hilarious), and they Bluetooth to my phone (I found mine much cheaper on Mercari). This means that my audiobook and/or sleep music is set to a volume that I like, and the lights in the bedroom can stay on so that David doesn’t trip over anything when he comes to bed (he goes to bed at least an hour after I do, since he gets up 2 hours after I do). Sleep masks may help your body’s natural production of melatonin–more on that, below.
  6. Have a schedule. This is SUPER hard to do if your spouse isn’t supportive. Mine has figured out that I’m more of a nightmare without sleep than he can handle, so he’s been on-board with helping me get this figured out for a while. I have to have 8 hours of sleep each night. This may sound like a luxury to some people (I don’t understand you 5-hours-of-sleep/night people!), but it’s an absolute necessity for me, particularly since losing my thyroid. Sleep > Almost Everything Else. I literally can’t function without enough sleep, so I keep a pretty set schedule throughout the work week. I think this was easier when my son & I went to bed at the same time, but now that he’s going to bed later than I am, it’s more of a challenge for David (who is AWESOME). So, build a schedule, and make sure your spouse is on board with it and is understanding.
  7. Aromatherapy: I like lavender, geranium, etc. in my diffuser. Diffusers don’t have to be super-expensive, and essential oils don’t need to break your bank (I’ve linked my favorite EO company–it’s NOT an MLM, rest assured). You can also use roll-on oils on pulse points (I like the ones from Ruministics), or sleep blends for either direct use (make sure you don’t need a carrier oil) or for diffusing.
  8. Planning ahead: This goes with #6, and is very important in helping to unload your brain at bedtime. If you take just a few minutes to plan ahead, you can help your morning to go so much better, and avoid unnecessary stress at night. Common sense, right? It’s surprising how many people go to bed having done nothing to plan for the next day, and then wonder why their mornings are so dreaded (adding to the stress of going to sleep)! I have a few hacks that make this go easier for all of us, particularly as David gets Jericho ready for school in the morning, and I need to keep things as simple as possible to make their mornings work, too:
    1. I plan my work clothes out for the week on Sundays. I know this is really Type-A, but I don’t want to wake my husband up when I get up at 4am with a bunch of drawers and closet doors opening and closing. I need to get up and get out, so planning is a must.
    1. Stay organized. Sometimes, I change my mind from what I’ve planned for the week. My closet is very organized so that I know where things are, and I minimize the amount of time I spend searching.
    1. Lunch plans: I try to grab my pre-packaged stuff and take it to the office on Mondays (yogurt, oatmeal packets, etc). For Jericho, I use a Shoe Organizer in the laundry room, and I fill it in advance with a juice box, a snack, a dessert, chips, etc., so that each day all he needs is the fresh stuff—a sandwich, fruit/veggies, etc.) It cuts the amount of time to prep lunches in half.
    1. Clothes packets!  For Jericho, I bundle a shirt and pants (or hoodie, t-shirt, and pants) together into his drawer. He grabs a packet, gets dressed, and life is EASY. I think everyone in the house sleeps better when they know they’re ready for the next day.
  9. Journaling: Some people swear by this. I can see how unloading your brain each night would be helpful….This does not work for me, because I can’t seem to get consistent at it. It’s a work in progress. Land of My Sojourn on Etsy makes BEAUTIFUL journals that just might help even me get consistent in journaling!
  10. Get Medical Help: If you have prolonged insomnia, get help. It could be anxiety; it could be hormonal. It could be psychiatric or a physical imbalance, or even a neurological disorder. It could be spiritual; it could be ALL of the above (which is what I run into). You can do all of the things that you can do on your own, but it’s not always enough. The stigma of taking medication for chemical/mental/hormonal issues has got to go—people die every day because they don’t take unseen illnesses more seriously. You’re worth it. You have a few options to think about:
    • Melatonin: This is considered a “natural” solution to support sleep, and is available over the counter. I hear people talk about giving it to their kids all the time; please don’t do that without talking to their pediatrician, as it’s been linked to causing seizures in children (even those without a history of seizures). I’ve tried sublingual (under the tongue) melatonin and a melatonin capsule; someone recently told me you could do both, but that seems a bit extreme. Melatonin is a hormone that your brain produces in response to darkness (a sleep mask may help you more than you think!) and is meant to be taken as a short-term solution. I’ve probably been on it far too long. Synthetically produced supplements are cheaper than the naturally-produced ones; I’ve heard from many people in alternative healthcare that synthetic melatonin can cause crazy dreams and nightmares, so be careful! Synthetic supplements tend to be “all filler, no killer,” so if you have access to whole plant-based supplements, use them (check with your chiropractor, if you’re looking into it. Side-note: Chiropractic adjustments are a GODSEND for insomnia. Your spine houses your spinal cord, which is part of your nervous system. When your spine gets out of line, it has a huge impact on how your body switches from sympathetic to parasympathetic dominance. Do some research–it’s massively important to your overall mental function & ability to actually, physically RELAX. ).
    • Medications: There’s a ton of them, and I’ve tried a few. Ambien and other medications like it are, in my experience, too dangerous to be on the market. I’ll have to tell you the story about Ambien shopping sometimes—we had a good laugh, but it was very scary in retrospect. I’ve learned that medical doctors will sometimes prescribe medications for insomnia without regard to the psychiatric side effects. I recently spoke to a psychiatrist about a medication that my MD had prescribed, and she said it was far too strong. Her recommendation was a much lighter, non-habit forming medication that is doing a tremendous job! If you don’t need to “bring out the big guns,” don’t do it. Ask your doctor to start you out with the smallest dosage of a non-habit forming medication.
    • Sleep apnea: Sleep apnea is a HUGE issue that has a lot of preconceived notions. Nope—fat people aren’t the only ones who struggle with sleep apnea. I learned that it’s almost always a spouse that finally convinces a patient to get tested for sleep apnea or other sleeping issues. People with sleep apnea STOP breathing. I had a patient once who had a stroke in the middle of the night from untreated sleep apnea, and almost died; it was at that point that I basically forced my husband to get help. Shortly after David got a CPAP machine, I found out that the tumor in my throat had basically caused my windpipe to become deformed and my airway was limited. I had to get a CPAP, too, and boy-oh-boy, aren’t we attractive?!?! But you know what’s sexy? A GOOD NIGHT’S SLEEP, so I’ll take it. CPAP machines have come a long way, as have the masks that go with them. I wear a full-face mask; David wears one that only covers his nose. There are a TON of options to make you feel comfortable!!!! And being alive is always cool. 🙂 Sleep apnea is first determined by a sleep study, which is a pretty simple process that involves a few different methods of diagnostic testing. There’s a take-home sleep study that your doctor (PCP) or specialist (pulmonologist) can order; there’s also an in-office overnight sleep study they can order. It’s painless, and well worth it!

If you’re not sleeping at night, please consider some of the options I’ve listed. Sleep is so important! You and your family are worth you at your best, and we can’t be at our best if we can’t get some rest (hey, I’m a poet!). I’ve listed a few ideas that can help (NONE of these can be considered as medical advice, as I’m not a doctor and I’m not pretending to be one), and you may have read about even more (like, get a better mattress!!!). Take the time to figure out what’s blocking you from a good night’s sleep, and get a breakthrough!

Or, if you’re really tired, just re-read this blog. It’s long enough that it should knock you out in no time. 🙂

Sweet dreams, y’all….