medical

“Where’d You Go?!” AKA, “The Case of the Missing Body”

/ Cassidy S. Cooley / Leave a comment

I’m going to start this blog out by making a statement I never thought I’d make & am terrified to state publicly: I have lost over 100 pounds.

“Where’d you GO?!?” is the question I am most commonly asked, and I generally respond, “I’m right here.” I’m still me. I’m still a giant jerk…still a giant nerd…still a flawed bonehead that loves Jesus & fails every day. I’m just….lighter.

I’m still a “big girl,” & I’m cool with that (even though I look like Shrek in family photos–why is everyone so SHORT?!?). I’ll never be petite–I’ve got hips that could birth a Hereford–& I’m 5’7.” I have feet like Sasquatch (my sister calls me “Casquatch” & I embrace it), so don’t get it twisted–I’m solidly built. I’m as my college “friend” called me, “healthy.”

Body confidence has NEVER been my forte. I dealt with so much body shaming growing up; when you grow up in the Church & you develop early, you’re punished for it. It’s crap. I was 14 and a DD, & my tiny, little Christian school couldn’t handle it. I got dress coded on a regular basis (like I asked for it?!?); my mom always reminded me to “suck it in,” as I had a belly even before I had my babies. I look back at pictures of myself, & I looked AMAZING at 17, but felt like a total freak show. I was taller, curvier, & louder than everyone I knew, and none of those things fit in well with a culture that wants you to be “meek.”

I felt hideous. I was “too much” for society, for church, & even for my family. I was different–I acted differently, and “different” was “bad,” so I tried to be what people wanted. I tried to dress in a way that covered everything up, but that’s hard to do when you’re top-heavy (& I only got more top-heavy as I went through college, leading to some horrific nicknames that I am still embarrassed by). If I could have taken a knife and cut off various parts of my body to relieve how ugly I felt, I would have. Every family picture showed how I didn’t fit in (several of those pictures are still on the walls in my parents’ house). Every group picture in the church youth group with the tiny, petite blue-eyed girls with straight hair, every picture of my vocal group in college where I’m trying to hide beneath suit jackets & scarves, every picture of me from my wedding where there’s industrial-strength tailoring holding me into my dress–every picture has a flaw I can’t help but to see.

These flaws are compounded by Rejection Sensitive Dysphoria, which is a common thing for people with ADHD to struggle with.

I didn’t know I had ADHD until a few years ago. I just thought I was a weirdo, an outcast, the one “odd” personality type in a family that all tested one way while I tested another (side note: Personality tests were not designed for the neurodivergent. Throw them in the trash). I don’t fit in now, and I didn’t fit in then. Being told I was “different” added to the RSD. I looked different. I acted different. I was Built Different.

And therefore, I was BAD.

This voice that tells me I’m a “terrible, awful, horrible, wacky weirdo” has whispered in my ear for decades. It’s robbed me of being at peace with this “strange” mind, this “odd” body…it’s taken away the joy of being “fearfully and wonderfully made” that I should have celebrated, that I should BE celebrating. It’s sent me through cycles of self-harm & suicidal ideations that even though I recognize, I still encounter (sometimes through reasons I can’t control, i.e., medication changes–thank you, family & friends, for loving me through these processes!!!!!). Being weird or different, regardless of the fact that society is trying to preach inclusivity, isn’t welcomed, so I should just check out, right?

WRONG.

We just don’t realize how body image issues carry over into mental health…how it’s a spiritual issue that’s complicated by neurological and hormonal issues. Weight is NEVER the true problem. It’s ALWAYS a symptom, yet our healthcare system is only just starting to realize how true that is. Ask a fat person–we’ll tell you….but because we’re fat, we’re intrinsically stupid, right, doctors? And therefore, our opinion is void….and we pile on the mental health issues.

I’m 47 years old. It wasn’t until my ADHD was diagnosed and properly treated that I started looking over life experiences with a fresh filter & learned just how toxic and damaging my body image issues were. Losing weight has further complicated this retrospect, as I can see how many times health care providers dismissed major problems in the light of my weight. I have carried decades of guilt over my weight, like it defined my worth as a Child of God. I have gaslit myself & ignored root issues that played out in binge-eating & self-harm. I have looked at family pictures and privately sobbed (sometimes not privately) at how disgusting I looked & how I brought shame on our family with my size. I have shed oceans of tears over the combined issues that I now know were rooted in anxiety, depression, neurodiversity, rejection sensitive dysphoria, PTSD, and abandonment issues.

Shame is a heavy, heavy burden to carry. When it’s combined with RSD, it’s soul-crushing. When the burden of untreated ADHD finally began to be lifted, the lies of RSD began to untangle, & I began to get clarity on this skin that I am in, on this body (amongst other things). The ability to focus allowed me to silence the inner static that had me snacking constantly. Getting my ADHD treated led to a healthcare provider that got my diabetes under control through a semiglutide (which is also something I never thought I’d say publicly, but whatever, we’re all friends). I overhauled my healthcare team in 2021 & began the process of what would ultimately lead to losing 110 pounds.

But now what happens? I get shamed for using a semiglutide? That’s the only part of the journey people focus on?!?!? The shot gets all of the credit?!?!?!?!? Um, no–you can shove that. Today, I am refusing to take shame or blame for using an injection to first-&-foremost, get my T2D under control. Did it help me lose weight? Absolutely. Was it the only thing? NO. It’s taken multiple medication changes, getting my ADHD treated, therapy, better food choices, family support, and most importantly, remaining focused on listening to the Holy Spirit to carry the shame & to help me identify triggers. When you brain starts to work properly–when the synapses fire & connect– you can hear the truth of God so much more clearly. My ADHD meds have turned down the static in my brain, & have turned up how I tune in to Him!

There’s more of me to give, even as there’s technically less of me. Life is more….LIFE. That’s not saying things are easy; in fact, if you check my last blog, you’ll find our life has become intensely complicated in the last few months, & it’s been ROUGH. I see God working even in the storms…He is still in control.

And by His grace, so am I, at least, when it comes to my mental health support and my weight loss journey.

Physically, “don’t you feel better since you’ve lost the weight?!” is a misnomer. Losing weight can sometimes a.) Remove being fat as the cause of the problem and b.) Exacerbate the problem. As we speak, I’m in the process of ruling out yet-more autoimmune issues related to my legs & feet (did you know there’s a medical level above a neurologist?? Yep–I now see a “neuroscientist,” & it’s a trip). Testing for another issue means I’m off of my primary ADHD medicine for a couple of weeks, & IT’S NOT FUN. I’ve had a frightening decline in my energy levels (aren’t those supposed to be BETTER once you’ve lost weight?!?) that specialists are trying to identify, but that fatigue has been a cyclical issue that’s followed me for a decade. Now we at least know I’m exhausted not because I’m fat, but because I’m…me. That’s fun.

I’d like to throw up a face-palm for every doctor that missed signs of major issues because I was heavier. YOU. ARE. JERKS. 🙂 Jesus still loves you; I think you can go climb a cactus, for real.

Weight loss is hard, even in the face of perceived successes. I have anxiety every single time I clean out my closet (so bad!!!!!) or go into a store. I STRUGGLE with body image issues. The picture I’m posting below is what set off this blog post…I feel like I should LIKE this picture. I’m like, genuinely laughing in this picture, yet all I can see is the fact that because it was taken by someone who is shorter than I am, my neck looks fat. And fat, in my crazy-wired brain, is BAD. Therefore, even though I’ve lost weight, I’m still fat and ugly and this picture is terrible, right?

I sent this picture to someone who has been on a similar weight-loss journey & said, “I want to like this picture but I don’t.” She told me it was gorgeous (and considering she’s stone-cold STUNNING, I should take her word for it, but I don’t). She understands how I still feel like a heifer even after losing the weight; she struggles with the body image issues as well, even though she’s always had the figure I wish I had. The conversations I’ve had with her on our body image issues validates how I’m feeling, and how I know it’s messed up but can’t fix it.

I have to forcefully remind myself that losing weight does not define me. I’m terrified to gain it back, but if I do, gaining weight does not define me. This body is the shell for Who I Am, and although Who I Am is a definite weirdo, Jesus says I’m frickin’ SPECTACULAR. Whatever it takes for me to embrace that I am Who He Says I Am, that’s the journey I am committing to take, here on out.

My son is inspiring me to make this commitment. He’s on the shorter side of the kids in his class, & was recently tapped to play Napoleon in the school play (he didn’t really want a speaking role; he says that’s why he was cast in the role & I’m taking his word for it, even though a lil’ heathen said it was because he was short. I see her…duly noted, child, with a healthy dose of parental side-eye.)

My son’s body image issues started in the first-or-second grade, when the more athletic boys in the class were comparing muscles. What first grader has defined muscles?!?! Um, not mine–sorry, child, it’s not in the genetic cards. Since then, I try to stay aware of realistic comments like, “yeah, Mom, basketball’s not really my thing, hello?!?” verses shaming comments like, “I’m just fat, Mom.”

No, son, you’re not fat. I hate that you know that word and I hate that I’m the reason why. I’m sorry that your genetics predispose you to being on the thicker side but I also know that you’re on the cusp of a growth spurt & that you’ll lean out. I’m sorrier that he’s picked up on my own issues & struggles, and that being ADHD himself, he has some of the same eating habits that I developed to try & quiet my brain. “Bored eating” is a thing, & all of us fight it. I don’t know that the body image issues will resonate as deeply with him as it did with me at that age…but I also don’t think that body image issues are relegated to gender. Body dysmorphia is more impactful amongst the neurodivergent, so I suspect my son & I will be having this conversation a few times in the coming years. I am praying that he will come to me with these discussions to avoid the decades of pain this has caused me…

It’s very, very strange to see someone I haven’t seen in a long time & have them comment on my weight first-thing. Frankly, it’s rude–don’t do that. Don’t ask the people close to me how I’ve lost weight either–I’m an open book & if you were my friend, you’d know to ask me directly. If you don’t know, we’re not friends. We’re social media acquaintances in good standing. I don’t really want to discuss my weight, and part of the reason for this blog post is to hopefully put an end to the questions. I don’t like talking about weight–what woman does?!?–and if you like to talk about weight, good for you. Do it with someone else. It’s not a topic worth discussing.

Now, if you want to talk about Type 2 Diabetes, ADHD, RSD, or about how Jesus has changed my life, I will have these discussions All. Day. Long. The numbers on the scale, though? NO.

I am still the same person I was at +250 pounds. I am not, however, the same person I was 4 years ago…I look back at that person & I see a wholllllle lot of hurt that’s in the process of being identified and healed by a God Who has NEVER looked at me like anything but a beloved child.

I am listening to Him point out the pain in His gentle way, & love me to His wholeness.

This body will die some day. It will be fertilizer in the ground, or ash, or whatever…it isn’t eternal, so why have I put so much worth into to what people think of it? Why have I allowed it to have so much power over me when I look at it in the mirror? I can dress it up, slim it down, work it out–I can do everything within my power to build a body that doesn’t scream, “YUCK” when I look at it, but none of that will ever do anything more than build a shell for a divine creation of the Most High.

I’m worth dying for–He said so, & He lived-&-died for me. He rose again, & He is still working miracles through people today. All of our pain–all of my pain–& all of our struggles are things He is longing to hold in His hands, not to wipe away, but to walk us through. Weight loss is often seen by the world as a kind of salvation; I can tell you first-hand it is NOT. It’s a tool, however, & it can be used to harm or to help. I’m choosing to use it as a tool to point out what areas are still raw & that need to be given over to Jesus…where my insecurities show that I can further lay things down for Him, & where I realize the idols I’ve put in front of Him…I’m choosing to lose the weight but gain dependence on Jesus to a greater extent, to gain transparency with Him & to stop masking to such a degree that I convince myself that I’m fine. I’m not. I need Him, & I need His work in my mind, body, and soul.
He’s doing new things, and for that, more than anything–ADHD treatment, weight loss, etc.–I am so thankful.

Now you know. Let’s put this topic to bed, ‘k? 🙂 Unless you want me to flip it into a full sermon, because…I will. 🙂

“Who Lives, Who Dies, Who Tells Your Story?”

/ Cassidy S. Cooley / 1 Comment

In my last blog, I mentioned that if you look hard enough, Hamilton lyrics can be applied in the majority of life’s situations. I’m doubling-down on it, especially right now (does that get hyphenated? Hmm…). Ever since I first heard the soundtrack, the song, “Who Lives, Who Dies, Who Tells Your Story?” has resonated with me:

“And when you’re gone, who remembers your name?
Who keeps your flame?
Who tells your story?”

“And when my time is up, have I done enough?
Will they tell your story?”

“Oh, I can’t wait to see you again
It’s only a matter of time
Will they tell your story?
Who lives, who dies, who tells your story?”

I often think of the difference between the written and the spoken word. I had English teachers in high school & college who invested so much into me and into my writing…I hope I’ve made them somewhat proud (and that they’re forgiving of the occasional run-on sentence and/or “excessive verbiage” that one of them often accused me of…and rightfully so…have you read my blogs?!?!?). I’m often told that I write as if I’m speaking to someone, that I’m a “conversant writer,” and I’ve always found that to be an interesting compliment. Like, is that a back-handed compliment? Is it a compliment at all? I’m actually not sure.

My goal is always to write with honesty, even when I contradict myself (which seems more common through these crazy, fluid, everything-is-uncertain time). I don’t mind it when someone messages me and says, “Hey, you’re wrong,” or when they respectfully disagree with me (I have one particular friend who excels at respectful disagreements. I look forward to them, and yes, he’s actually changed my mind on Facebook, so it DOES happen). I’m constantly learning, and I hope that’s my permanent state of being. I firmly believe that when we stop being honest, and we stop being open to other perspectives or to discussions with those whom we wouldn’t necessarily agree with, that we stop learning, and when we stop learning, we stop growing. Honesty and respect are two words we are sorely lacking in society these days, so I want to buckle in and hold on to them more tightly than ever before…

The written word leaves a legacy—it’s the opportunity for us to claim our narratives, for us to leave our mark somewhere, even if it’s just in cyberspace. Every stroke of the keyboard is an indelible impression on the universe that may someday disappear, but with the retention of the digital world, probably not completely. Our Twitter feed, our Facebook statuses…every single one of them is marked in the annals of the digital history of the world. That’s insane—especially when I consider just how many idiotic posts I’ve made and/or “liked” over the years. It gives us an opportunity to truly think before we post: How will this affect my job? How will this affect my family? How does this reflect my faith?

Someone once told me to never end a blog on a bad note—to always try to find a way to end it with hope. I took her advice to heart, and I’ve tried to do that in every situation. I haven’t always succeeded, but sometimes, forcing myself to refocus and to view life through a lens of hope has been such an incredible healing process. Even when I’m drowning in my own cynicism, and I want to wallow in whatever pathetic state I’m in, I have to stop. It’s about His story and how He’s working in and through my life….even when I’m being “pathetic.” He Still Works—through all of us.

I have found myself thinking about the lyrics of Hamilton, and about the concept of legacies, for a few weeks now. It’s not because I have some kind of morbid fascination with death (in spite of how much of it is inundating our media these days). I think it’s because the older I get, the more I realize how short time gets. Days fly by, one bleeding into another, and it feels like it’s going even faster in the wake of COVID-19. I’m on my hamster wheel of work-home-work-home-work-weekend-work, and it feels both exhausting and never-ending. The needs are never met, the questions aren’t getting answered, and there’s no stability, so it seems especially draining. There’s no time to stop—to just stop—and to process before something else comes along to upset the apple cart (THERE IS NO CART! AND THE APPLES ARE FALLING EVERYWHEEERRRRE!). Murders in the St. Louis area are up by 30%, and there’s no justice. The nation is fractured and broken, and we’re on the cusp of an election that would take an act of God to be peaceful (please, God, do something). We are speeding along an Autobahn of chaos, and there is nothing stopping the insanity (that we can see).

The anxiety builds…and it’s tangible.

Time is shorter in unsettled waters…

What stays?

“Who lives, who dies, who tells Your story?”

I want to.

I hope that I have.

For me, the spoken word gets me into trouble. My lack of a filter combined with a face that physically can’t stop emoting bundles together to create some kind of idiotic verbal Thunderdome. I swear far too easily (a lazy man’s way of expression), I ramble too much, and I struggle with interrupting people. I’ll say it—I’m obnoxious (at times). The spoken word is fleeting & annoying…No one remembers your spoken words, but they sure as heck remember their impression of you based on what you said. I hate to think about what people think of me and of what I represent, based on verbal conversations.

The written word is permanent, and WILL be used against you…

So, how do you want it to be used?

To answer Hamilton’s questions…

I don’t care who remembers my name….have I written in such a way that people remember the Name of Jesus? The Hope that He brings?

Have I kept His flame burning throughout what I write? Will my own words be enough to convict me, if my faith becomes prosecutable? Have I lived a life of clear faith, or have I been satisfied with a lukewarm life of treading water?

 “I ask myself, what would you do if you had more time?
The Lord, in His kindness
He gives me what you always wanted
He gives me more time…”

Have I done enough? Have I told Your story? Have I glorified Your Name?

I’ll keep writing “like I’m running out of time.”

It’s not enough.

 

*Photo Credit: Hamilton magnets by HeyThatsCuteStudio on Etsy–Shop St. Louis! Shop Single Mom!

 

Hurry Up and Wait, AKA, “It’s Allllll Right.”

/ Cassidy S. Cooley / Leave a comment
Some of you may have caught that back in February, my thyroid cancer decided to make a comeback. In typical “Cassidy” fashion, my sense of timing was AWESOME, and as the country was shutting down from COVID-19 in March, I was running back and forth to the hospital to have injections and scans done (Thyrogen injections and RAI with a full-body scan, for those that understand this garbage). This was all set up after my tumor markers (which were 0.00 back in December, which is why BJC decided to release me from monitoring for 3 years back in January ’20) jumped up to 0.7 in February. That may seem like a nominal amount to some, but in my case, it was not a great sign.
So, I had the full body scan done, and just like the last time I went through the test back in 2018, the full body scan was negative. Unlike in 2018 (when my labs were pretty clear), the labs said the cancer was present, but the scan didn’t pick it up (I have cloaking cells. Very Star Trek). In that case, the line of care is to repeat the labs and check the markers, and based on those changes, possibly to graduate to a PET scan and (I hope) eventual surgery to remove the threat (in my case, it’s a few lymph nodes in my neck that have been suspiciously enlarged for the last few years. Large lymph nodes with clean labs = No big deal. Large lymph nodes with positive labs = Kind of a big deal). I know it might sound crazy, but these lymph nodes have been a thorn in my side since my original diagnosis back in 2015. I’d really like to get them out of my body. I don’t know if taking them out will reduce the chances of the cancer showing up elsewhere, but either way, they stress me out, so I want them gone.
My endocrinologist said that if my tumor markers have gone up to 1.0, we’ll move on to the PET scan. I put off getting the tests done until the absolute last possible minute, which was this morning…
Labs are completed…so now, we wait.
I think the hardest part of any medical decision/result is the waiting. It’s like, “Let’s hurry up and get this done…but wait until your insurance approves it,” or, “let’s hurry up and get this done…but wait until the results come in, then we’ll do another test, then we’ll wait some more, and eventually, we’ll have answer…maybe…but that answer may just be that we monitor the condition, so yeah, our treatment advice is just to keep waiting (even though you feel like you have a ticking time bomb in your neck).”
Man, I don’t DO well in the waiting–haven’t we already established that, Lord?!?! Like, YOU KNOW I don’t wait well. I’m not saying that I’m going to sit here and worry until I get the test results, because I’m not going to LET myself say that–I’m going to argue with myself and pray for peace. I’m not going to worry. There’s enough worry in the world, and worry stresses out every body system. It doesn’t MATTER what the test results are–God is still in control, I’m not going to die from this, and it’s going to be okay. It’s the easiest kind of cancer to treat–so much so, that there are some that debate whether or not it’s an actual cancer (although how that’s debatable, I do not know). It really is the stress in the waiting, and the stress in the process, that’s the worst.
I have a friend right now that has metastatic breast cancer (and her treatment during COVID-19 has been terrible–I think the medical industry has let their standard of care drop significantly in the wake of trying to prevent the spread of the disease. Patients are still people, and they still need actual care). We were emailing yesterday, and she said something that really caught my heart: “I just want to feel normal again.”
I’ve said those words. I think anyone who’s been through a major medical issue has said those words, and the truth is, the day you received your diagnosis, your “normal” changed. You don’t look at life through the same lens. People can choose to let it define them, to make it part of their identity. I don’t believe that’s a healthy approach (although you do you–whatever it takes to get through it, do it). To me, it’s not a badge.  I told my friend that it’s part of my story, but it’s absolutely NOT who I am, and it’s not something I candidly speak about to just anyone (although here I am, blogging away. Yeah, I see that.). I think doctors let it define you–every time I go into a medical office, I get 3 things: History of congestive heart failure. History of thyroid cancer. History of diabetes. Every single other thing that has/can go on, is looked at through those lenses, regardless of what I say. That can be frustrating, but I know now to anticipate it. I can live my life with cancer in the background; doctors can’t treat me without considering the history at the forefront. I get it.
But as a human being (and I say “being,” meaning that “as a present, focused individual”), and as someone who says they believe in a Creator Who defines them, cancer/other medical issues are a consequence of living in a fallen world. They don’t reflect Him, and they don’t reflect Who He sees me as. Jesus loves Cassidy. Yes, He knows Cassidy the Cancer Patient, but He Loves Me as who He made me to be, and who He made me to be is whole.
So, that’s how I identify–I identify in hope as someone who’s jumped through the hoops and has come through the other side, unscathed. I might be scarred, but I’m not burned; that might not make sense to you, but that’s okay. The hardest thing for me to deal with through this resurgence of cancer cells is anger, and I’ll admit that it’s still an issue–but I’m not mad at God. I’m aggravated at the Enemy. Cancer didn’t come from God. It came from Satan, and he sucks, so yeah–I’m mad at him. I’m mad at weirdo-genetics and my own laziness, and the frustration of the American healthcare system, and the cost of the procedures, and the feeling like my own sin caused this to happen to me (that’s a lie from the pit of Hell. God is NOT sitting in Heaven with a Smite button. I believe in pleading the Blood of Jesus over sins for my redemption, so no–I’m not being punished by God with cancer. People that teach that kind of religious garbage need a swift kick in the head with the book of James. That’s a whole ‘nother conversation).
God does not look at us through a lens of sin or of sickness. He sees us through His Son, and He sees us through Love, so even though I’m angry at my present situation, I am grateful and I believe that He knows what He is doing. I think my best course of action is to get these rebellious lymph nodes removed. I’ve caught myself pleading my case for that to God, and I have realized that it will be a hard pill to swallow if He says, “no.” That will mean I’m back to square one with a treatment plan, and that I’m back on the hamster wheel of, “hurry up and wait” for another 3-5 years (which may happen if I get the nodes removed. My hope is that if I get the nodes removed, then we can just do periodic lab work instead of ultrasounds and scans).
Part of the new “normal” after a medical diagnosis is relearning how your body is going to function; it’s learning new medications and side effects, and how you need to treat yourself in regards to them. It’s learning the signs of when you’ve pushed things too far, and of listening to your body. It’s educating yourself and your loved ones to hopefully understand and extend grace when you’re not yourself, and it’s part of finding out how to be YOURself, when things can come along chemically, that try to alter that. It’s learning how to reach out when you’re frustrated or sad, and to find someone who can and will listen without judgement. It’s learning to ask for help, even if you may be a person that hates doing so. Asking for help is not a sign of weakness (I’ll say that again, for the people in the back: ASKING FOR HELP IS NOT A SIGN OF WEAKNESS. Thank you.).
Part of the new “normal” is learning to handle a load of fear, impatience, and apprehension that comes at you from every side–from well-meaning friends and family; from physicians; and from yourself (just think of them as these guys: Fear, Impatience, Apprehension–bloodthirsty little hyenas).
shenzi_banza_Ed_disney-villain-sidekicks
I’ll definitely admit to struggling in this department. Once the “C” word is in your vocabulary, it stays. Some days, it’s a Hollywood marquis; other days, it’s a whisper in the back of your mind. When I’m not in active treatment, it’s usually just a whisper. My daily struggles involve the thyroid replacement meds and the HRT–one missed or mistimed medication can wreck me for days, so I have to have constant organization to remember to stay on top of those things. And because my memory skills aren’t what they used to be (age, meds, oxygen loss, etc.), I have mental systems in place to try to keep things straight, but sometimes, I make mistakes (For anyone who’s on a regiment of multiple medications, I highly recommend PillPack. It makes things SO much easier!!! And they handle vitamins, too, which is nice). Fear, impatience, and apprehension are not from God, so we (I) have to come to a place where we recognize those feelings as they’re coming on, take a stand, and lay them at His feet. Easier said, than done.
And that brings me back to today…The labs are done.
He truly is in the waiting….And in the waiting, we (I) take deep breaths; I focus on knowing that it will all be okay; I pray that God would provide clear answers and direction; and I pray that I will hear Him clearly…
Some people would say, “Well, why don’t you just pray for healing?” Sometimes I think it takes more faith to believe for a healing, than it does to pray for a resolution. I think that’s another blog I will eventually be able to write–there’s a lot to unpack, there.
Right now, we wait. And like my sister’s macaw likes to say, it will be “allllllll right.”
🙂
Hey, if a bird can get it, so can I. 🙂
scully

Cardiology Update!!!!

/ Cassidy S. Cooley / Leave a comment

So, for any of y’all that don’t know, back in 2006, I delivered my daughter Hannah via emergency C-section due to severe preeclampsia.

Long story short, my physician was a third-generation OB/GYN who had basically written off my complaints of being short of breath during my second and third trimester. My daughter was delivered at 34 weeks, and the preeclampsia was “supposed” to resolve…except it got worse. I wound up in full congestive heart failure due to peripartum cardiomyopathy and pulmonary hypertension. My left ventricle blew up like a balloon–it was 3x the size of the rest of my heart, and my lungs were full of fluid. In the first night after my diagnosis, if I remember correctly, they removed 30 pounds of fluid from my body that I had retained. Dealing with that, post C-section? Not cool.

As most of you know, my daughter passed away at 29 days of age, due to Late-Onset Group B Strep and bacterial meningitis. Her cause of death was not due to my heart failure-it was a completely unrelated issue. We were told for years that due to the extent of the damage my heart had gone through, that we should never have another child….but we did not believe them. Cardiologist after cardiologist refused to see me as a patient, until Dr. Michael Paul, perinatologist at Mo-Bap, referred me to Dr. Robert Kopitsky, who did the right tests and discovered that miraculously, my heart had recovered to running at 50-55%, which was completely normal! I had no scarring, no permanent damage, and I was cleared to get pregnant with my son. It was the best news I’d ever heard!

Through my pregnancy with Jericho, my heart was closely monitored, and I was admitted to Mo-Bap at 32 weeks along. At that point, my cardiac function was already less than 30%. It continued to decline, and the decision was made to deliver early once again. I had excellent care, and my miracle baby was born! My heart was still an issue, and remained closely monitored & medicated for the next few years.

In 2016, I had an echocardiogram performed, and my cardiologist (I’d had to find a new doctor due to insurance changes) put my estimated cardiac function at 40-45%. That’s not bad, but it’s not normal; however, my cardiologist said it was acceptable and to be happy with it, “because you’re stuck there. I don’t think you’ll see those numbers improve.'”

And you know what? I was happy with that. I mean, c’mon, I almost died–twice! I’m happy with what I can get!!!! I took my regular meds and considered myself blessed!

Last month, my new PCP said it was time to check on my heart again. I’ve had some issues with stress, headaches, and back pain, so she wanted to rule anything out. My cardiologist agreed, so last week, I went in for a new echo. I got the phone call from his nurse today, as I was getting ready to leave my office.

MY HEART FUNCTION IS AT 60%!!!!!!!!!!!!!!!!!!!!!!!!!!

I’m completely floored–the nurse said, “We just don’t see that. We don’t see those numbers with people with your history. Someone is looking out for you, for sure.” HA!!!!! Ya’ THINK?!?!?!?

My mind is blown. Like, I wasn’t even praying about it–I just accepted 40-45% and went on my way. Subconsciously, I think I was writing off even trying to exercise or anything, because why bother if I’m “stuck?” I come from a long family history of crappy hearts, so I just took it for granted that this is my life.

BUT IT’S NOT.

God takes over and answers prayers when we don’t even ask. He works miracles that we don’t expect or anticipate. David & I are in this season of struggle, where things have been extremely stressful. Yet in this, over and over again, I keep seeing little things, and big things, and random things, that remind me that God is watching. He is PRESENT. He meets needs we didn’t even know that we had. He loves us, He works in our lives unexpectedly, AND HE STILL WORKS MIRACLES!!!

Spiritually, mentally, and now physically (multiple times!), my heart has been broken and repaired in miraculous ways. I know it may sound dramatic to say, but I will shout this testimony from the ROOFTOPS, y’all, because I know my God is in the business of healing hearts.

“My heart overflows with a good theme; I address my verses to the King! My tongue is the pen of a ready writer. You are fairer than the sons of men; Grace is poured upon Your lips; Therefore, God has blessed You forever.”–Ps. 45:1-2, NASB