Hurry Up and Wait, AKA, “It’s Allllll Right.”

Some of you may have caught that back in February, my thyroid cancer decided to make a comeback. In typical “Cassidy” fashion, my sense of timing was AWESOME, and as the country was shutting down from COVID-19 in March, I was running back and forth to the hospital to have injections and scans done (Thyrogen injections and RAI with a full-body scan, for those that understand this garbage). This was all set up after my tumor markers (which were 0.00 back in December, which is why BJC decided to release me from monitoring for 3 years back in January ’20) jumped up to 0.7 in February. That may seem like a nominal amount to some, but in my case, it was not a great sign.
So, I had the full body scan done, and just like the last time I went through the test back in 2018, the full body scan was negative. Unlike in 2018 (when my labs were pretty clear), the labs said the cancer was present, but the scan didn’t pick it up (I have cloaking cells. Very Star Trek). In that case, the line of care is to repeat the labs and check the markers, and based on those changes, possibly to graduate to a PET scan and (I hope) eventual surgery to remove the threat (in my case, it’s a few lymph nodes in my neck that have been suspiciously enlarged for the last few years. Large lymph nodes with clean labs = No big deal. Large lymph nodes with positive labs = Kind of a big deal). I know it might sound crazy, but these lymph nodes have been a thorn in my side since my original diagnosis back in 2015. I’d really like to get them out of my body. I don’t know if taking them out will reduce the chances of the cancer showing up elsewhere, but either way, they stress me out, so I want them gone.
My endocrinologist said that if my tumor markers have gone up to 1.0, we’ll move on to the PET scan. I put off getting the tests done until the absolute last possible minute, which was this morning…
Labs are completed…so now, we wait.
I think the hardest part of any medical decision/result is the waiting. It’s like, “Let’s hurry up and get this done…but wait until your insurance approves it,” or, “let’s hurry up and get this done…but wait until the results come in, then we’ll do another test, then we’ll wait some more, and eventually, we’ll have answer…maybe…but that answer may just be that we monitor the condition, so yeah, our treatment advice is just to keep waiting (even though you feel like you have a ticking time bomb in your neck).”
Man, I don’t DO well in the waiting–haven’t we already established that, Lord?!?! Like, YOU KNOW I don’t wait well. I’m not saying that I’m going to sit here and worry until I get the test results, because I’m not going to LET myself say that–I’m going to argue with myself and pray for peace. I’m not going to worry. There’s enough worry in the world, and worry stresses out every body system. It doesn’t MATTER what the test results are–God is still in control, I’m not going to die from this, and it’s going to be okay. It’s the easiest kind of cancer to treat–so much so, that there are some that debate whether or not it’s an actual cancer (although how that’s debatable, I do not know). It really is the stress in the waiting, and the stress in the process, that’s the worst.
I have a friend right now that has metastatic breast cancer (and her treatment during COVID-19 has been terrible–I think the medical industry has let their standard of care drop significantly in the wake of trying to prevent the spread of the disease. Patients are still people, and they still need actual care). We were emailing yesterday, and she said something that really caught my heart: “I just want to feel normal again.”
I’ve said those words. I think anyone who’s been through a major medical issue has said those words, and the truth is, the day you received your diagnosis, your “normal” changed. You don’t look at life through the same lens. People can choose to let it define them, to make it part of their identity. I don’t believe that’s a healthy approach (although you do you–whatever it takes to get through it, do it). To me, it’s not a badge.  I told my friend that it’s part of my story, but it’s absolutely NOT who I am, and it’s not something I candidly speak about to just anyone (although here I am, blogging away. Yeah, I see that.). I think doctors let it define you–every time I go into a medical office, I get 3 things: History of congestive heart failure. History of thyroid cancer. History of diabetes. Every single other thing that has/can go on, is looked at through those lenses, regardless of what I say. That can be frustrating, but I know now to anticipate it. I can live my life with cancer in the background; doctors can’t treat me without considering the history at the forefront. I get it.
But as a human being (and I say “being,” meaning that “as a present, focused individual”), and as someone who says they believe in a Creator Who defines them, cancer/other medical issues are a consequence of living in a fallen world. They don’t reflect Him, and they don’t reflect Who He sees me as. Jesus loves Cassidy. Yes, He knows Cassidy the Cancer Patient, but He Loves Me as who He made me to be, and who He made me to be is whole.
So, that’s how I identify–I identify in hope as someone who’s jumped through the hoops and has come through the other side, unscathed. I might be scarred, but I’m not burned; that might not make sense to you, but that’s okay. The hardest thing for me to deal with through this resurgence of cancer cells is anger, and I’ll admit that it’s still an issue–but I’m not mad at God. I’m aggravated at the Enemy. Cancer didn’t come from God. It came from Satan, and he sucks, so yeah–I’m mad at him. I’m mad at weirdo-genetics and my own laziness, and the frustration of the American healthcare system, and the cost of the procedures, and the feeling like my own sin caused this to happen to me (that’s a lie from the pit of Hell. God is NOT sitting in Heaven with a Smite button. I believe in pleading the Blood of Jesus over sins for my redemption, so no–I’m not being punished by God with cancer. People that teach that kind of religious garbage need a swift kick in the head with the book of James. That’s a whole ‘nother conversation).
God does not look at us through a lens of sin or of sickness. He sees us through His Son, and He sees us through Love, so even though I’m angry at my present situation, I am grateful and I believe that He knows what He is doing. I think my best course of action is to get these rebellious lymph nodes removed. I’ve caught myself pleading my case for that to God, and I have realized that it will be a hard pill to swallow if He says, “no.” That will mean I’m back to square one with a treatment plan, and that I’m back on the hamster wheel of, “hurry up and wait” for another 3-5 years (which may happen if I get the nodes removed. My hope is that if I get the nodes removed, then we can just do periodic lab work instead of ultrasounds and scans).
Part of the new “normal” after a medical diagnosis is relearning how your body is going to function; it’s learning new medications and side effects, and how you need to treat yourself in regards to them. It’s learning the signs of when you’ve pushed things too far, and of listening to your body. It’s educating yourself and your loved ones to hopefully understand and extend grace when you’re not yourself, and it’s part of finding out how to be YOURself, when things can come along chemically, that try to alter that. It’s learning how to reach out when you’re frustrated or sad, and to find someone who can and will listen without judgement. It’s learning to ask for help, even if you may be a person that hates doing so. Asking for help is not a sign of weakness (I’ll say that again, for the people in the back: ASKING FOR HELP IS NOT A SIGN OF WEAKNESS. Thank you.).
Part of the new “normal” is learning to handle a load of fear, impatience, and apprehension that comes at you from every side–from well-meaning friends and family; from physicians; and from yourself (just think of them as these guys: Fear, Impatience, Apprehension–bloodthirsty little hyenas).
shenzi_banza_Ed_disney-villain-sidekicks
I’ll definitely admit to struggling in this department. Once the “C” word is in your vocabulary, it stays. Some days, it’s a Hollywood marquis; other days, it’s a whisper in the back of your mind. When I’m not in active treatment, it’s usually just a whisper. My daily struggles involve the thyroid replacement meds and the HRT–one missed or mistimed medication can wreck me for days, so I have to have constant organization to remember to stay on top of those things. And because my memory skills aren’t what they used to be (age, meds, oxygen loss, etc.), I have mental systems in place to try to keep things straight, but sometimes, I make mistakes (For anyone who’s on a regiment of multiple medications, I highly recommend PillPack. It makes things SO much easier!!! And they handle vitamins, too, which is nice). Fear, impatience, and apprehension are not from God, so we (I) have to come to a place where we recognize those feelings as they’re coming on, take a stand, and lay them at His feet. Easier said, than done.
And that brings me back to today…The labs are done.
He truly is in the waiting….And in the waiting, we (I) take deep breaths; I focus on knowing that it will all be okay; I pray that God would provide clear answers and direction; and I pray that I will hear Him clearly…
Some people would say, “Well, why don’t you just pray for healing?” Sometimes I think it takes more faith to believe for a healing, than it does to pray for a resolution. I think that’s another blog I will eventually be able to write–there’s a lot to unpack, there.
Right now, we wait. And like my sister’s macaw likes to say, it will be “allllllll right.”
🙂
Hey, if a bird can get it, so can I. 🙂
scully

Merry Christmas, Happy New Year, and the Blessings of “Boring”

Christmas cards, postage, etc., COST. So, in the interests of saving our budget, we greatly reduced the number of Christmas cards that we physically sent out this year. Besides, everything–EVERYTHING–is online. Also, the only stamps I have left are either Harry Potter or Disney Villains, and NOTHING says “Christmas” like a Cruella De Ville stamp. 🙂 That being said, here’s our OFFICIAL Christmas Card/Letter for the year:

Christmas Card 2017

Christmas, 2017

One of the doctors in the clinic stopped by my office the other day, and commented on how sometimes, people need to learn to be happy with “normal.” I’m a big fan of “normal.” As a society, we’re told we need to “thrive on chaos,” and to “work well under pressure.” That’s all fine, but I think we’ve lost the luster of celebrating every-day life.

Wake up at 4am. Get ready for work. Drive—a lot—and maintain your Christianity in the process. Do your job—and maintain your Christianity in the process. J Drive some more. Pick up your child from school, head home, make something edible for dinner, and crash in front of the television, read a book, play a game, etc., until it’s time to do the whole day over again. There’s a schedule, and the days tend to flow into one another in some kind of monotonous blur…Or do they?

I’m definitely locked into my routine; I know I can hit that snooze button 3 times before I’m at Critical Rush. My closet is organized so I can spend 5 more minutes in bed, and I usually pack my lunch the night before. I’m as streamlined into my routine as I can possibly be, all in the name of a few extra minutes under the blankets. Do I look forward to every single day? Heck, no. There are more days than not where I fight a major battle just to put one foot on the floor. It’s for medical reasons, it’s for mental reasons—My “expectation” for the day is honestly just to get it over with. I know that sounds like absolute drudgery, but I also know it’s more common than some people realize. I think that’s part of why when something exciting happens, it’s so much more dramatic, because HOLY COW, WE HAVE BROKEN OUR ROUTINE!!!!!!!!!!!!!!!!!!!!!!

Do you know one thing that breaks any concept of a “routine?”

Love.

Although the first part of my day is routine, as soon as I pick Jericho up from school, it’s really “anything goes.” I know I’m going to get him, maybe talk to his teacher, and we’re going to drive home, have dinner, and talk about his day. I know he’s going to go to bed somewhere around 7:45, and that I’m going to bed at the same time. What I don’t know, is what he’s going to say…what he’s going to do, or what new skill he’s picked up. It seems like he grows every day, and before we know it, he’s going to be starting Kindergarten. Impossible. I know that when he says something sweet, that on the outside, I’m going to remain calm; on the inside, my heart is going to turn into confetti, and my brain is going to replay the memory a thousand times over the course of the next “routine” day. When he stops everything and hugs me, I know my heart is going to go full-on Grinch, and grow 3x in 30 seconds (it does that a lot). It’s a brand of love unlike anything I have ever known or can describe, and it’s mind-blowing. I don’t understand the love I have for my son. I don’t get it—where does it come from? How does it just keep getting bigger? How is every day with him so amazing? I mean, yes—he’s 4.

Four has tested us in ways we never thought we could be tested in. Everything everyone said about the “Terrible 2’s” or “Terrifying 3’s” is a load of garbage, because FOUR?!?!?. Four is insane. Four means we occasionally have a Tiny Tyrant who is dead-set on voicing his own opinions, on doing is own thing, and is NOT dead-set on simply accepting “DO WHAT I TOLD YOU TO DO!!!!” as a viable reason to do what he’s told. Jericho is feisty, opinionated, determined, and incredibly creative. He is also very loving and very sweet, most of the time. There is never a doubt as to what he is thinking, and I can’t help but to think that he comes by that honestly. J

He’s decided he wants to be a foot doctor, a chef, and a police officer. He’s working on his handwriting; he’s able to read lots of words, and his spelling is pretty impressive. He’s in Pre-Kindergarten!?!?! School has been very good for him, and it’s definitely been a year of transition. He’s just a typical 4-year old boy. I celebrate that.

David’s “routine” day is a little different than mine; he gets Jericho ready for school every day and takes him in. Jericho wakes up ready to punch the day in the face! His day starts with YELLING, “I’M READY TO GET UPPPPPPPP!!!!!!!!!!” over and over and over again, until David finally goes into his room and turns the light on. The child is persistent. I’m not sure how David deals with the volume level of the morning, but on the weekend, it makes me a little buzzy. J I’m used to absolute silence in the morning when I leave, because everyone is still asleep. It’s a culture shock on Saturday morning!

David’s still working with MetLife, and if there’s any “routine” to his day, it’s that he’s going to be busy. Between hurricanes, floods, storms, fires, and crazy drivers, he never knows what kinds of claims he’s going to be dealing with (or what kinds of excuses he’s going to hear). We each have to maintain certain amounts of confidentiality with what we do, but when he does tell me a carefully-redacted story, it’s always jaw-dropping. People are hilarious.

I continue to work with the Center for Eye Care at UMSL. My favorite part of my job is working with our Mobile Eye Van to provide vision services in underserved schools. A proper diagnosis of a vision issue can change a child’s life; that’s exciting, to be a part of making that change. I also continue to work with contract negotiations, compliance, and credentialing. The laws change constantly, and my biggest challenges are being made aware of, and of understanding, these changes. I appreciate the “simplicity” of just being “Mom” at the end of the day, and of not having to worry about government regulation enforcements! J I also continue to do freelance editing when I have time, and “officially” launched www.CassidysCommentary.com over the summer.

We’re a completely “normal” family. We’re a Dad, a Mom, and a child, who start each day, work and learn each day, and go to bed each night. But when you look at that sentence, there’s a lifetime of hope and of love in each comma. There is no happier moment of my day then when Jericho crawls up into my lap, and sits with me. I’ve never known a fulfillment like I feel when we sit there, doing nothing. I’m so thankful for that little boy, and so grateful for the love I see in him. He’s such an answer to prayer, and such a daily testimony to David & I…

I remember that feeling of waking up on Christmas morning when I was a kid—the anticipation, and the expectation. I kind of feel like that every day when I pick Jericho up from school. J Even though it’s “routine,” it’s the best time of the day, full of the excitement of seeing his face and of hearing about his day. It’s a beautiful “normal,” and I am so in love with having it in my life. We are both so grateful to God for these “typical” moments…

For this Christmas season, I hope that you & your family find the gratitude and joy in whatever your “routine” may be. My prayer for all of us is that the drama we are so affected by on a regular basis, go back to being out-of-the-ordinary. My prayer is that the “routine” would be calm and joyful, and that as a society, we would learn to appreciate the beauty of the mundane. Celebrate “normal” this holiday season, and enjoy the peace of the Holy Spirit in your families as you celebrate the birth of Jesus.  Merry Christmas!!!!!

Love,

David, Cassidy, & Jericho Cooley,

And Holly the Boxer, who is very, very old….