rainbow baby

Cardiology Update!!!!

/ Cassidy S. Cooley / Leave a comment

So, for any of y’all that don’t know, back in 2006, I delivered my daughter Hannah via emergency C-section due to severe preeclampsia.

Long story short, my physician was a third-generation OB/GYN who had basically written off my complaints of being short of breath during my second and third trimester. My daughter was delivered at 34 weeks, and the preeclampsia was “supposed” to resolve…except it got worse. I wound up in full congestive heart failure due to peripartum cardiomyopathy and pulmonary hypertension. My left ventricle blew up like a balloon–it was 3x the size of the rest of my heart, and my lungs were full of fluid. In the first night after my diagnosis, if I remember correctly, they removed 30 pounds of fluid from my body that I had retained. Dealing with that, post C-section? Not cool.

As most of you know, my daughter passed away at 29 days of age, due to Late-Onset Group B Strep and bacterial meningitis. Her cause of death was not due to my heart failure-it was a completely unrelated issue. We were told for years that due to the extent of the damage my heart had gone through, that we should never have another child….but we did not believe them. Cardiologist after cardiologist refused to see me as a patient, until Dr. Michael Paul, perinatologist at Mo-Bap, referred me to Dr. Robert Kopitsky, who did the right tests and discovered that miraculously, my heart had recovered to running at 50-55%, which was completely normal! I had no scarring, no permanent damage, and I was cleared to get pregnant with my son. It was the best news I’d ever heard!

Through my pregnancy with Jericho, my heart was closely monitored, and I was admitted to Mo-Bap at 32 weeks along. At that point, my cardiac function was already less than 30%. It continued to decline, and the decision was made to deliver early once again. I had excellent care, and my miracle baby was born! My heart was still an issue, and remained closely monitored & medicated for the next few years.

In 2016, I had an echocardiogram performed, and my cardiologist (I’d had to find a new doctor due to insurance changes) put my estimated cardiac function at 40-45%. That’s not bad, but it’s not normal; however, my cardiologist said it was acceptable and to be happy with it, “because you’re stuck there. I don’t think you’ll see those numbers improve.'”

And you know what? I was happy with that. I mean, c’mon, I almost died–twice! I’m happy with what I can get!!!! I took my regular meds and considered myself blessed!

Last month, my new PCP said it was time to check on my heart again. I’ve had some issues with stress, headaches, and back pain, so she wanted to rule anything out. My cardiologist agreed, so last week, I went in for a new echo. I got the phone call from his nurse today, as I was getting ready to leave my office.

MY HEART FUNCTION IS AT 60%!!!!!!!!!!!!!!!!!!!!!!!!!!

I’m completely floored–the nurse said, “We just don’t see that. We don’t see those numbers with people with your history. Someone is looking out for you, for sure.” HA!!!!! Ya’ THINK?!?!?!?

My mind is blown. Like, I wasn’t even praying about it–I just accepted 40-45% and went on my way. Subconsciously, I think I was writing off even trying to exercise or anything, because why bother if I’m “stuck?” I come from a long family history of crappy hearts, so I just took it for granted that this is my life.

BUT IT’S NOT.

God takes over and answers prayers when we don’t even ask. He works miracles that we don’t expect or anticipate. David & I are in this season of struggle, where things have been extremely stressful. Yet in this, over and over again, I keep seeing little things, and big things, and random things, that remind me that God is watching. He is PRESENT. He meets needs we didn’t even know that we had. He loves us, He works in our lives unexpectedly, AND HE STILL WORKS MIRACLES!!!

Spiritually, mentally, and now physically (multiple times!), my heart has been broken and repaired in miraculous ways. I know it may sound dramatic to say, but I will shout this testimony from the ROOFTOPS, y’all, because I know my God is in the business of healing hearts.

“My heart overflows with a good theme; I address my verses to the King! My tongue is the pen of a ready writer. You are fairer than the sons of men; Grace is poured upon Your lips; Therefore, God has blessed You forever.”–Ps. 45:1-2, NASB

Mommy Bloggers & the White Women of Hope (in the Real World)

/ Cassidy S. Cooley / Leave a comment

Dear Mommy Bloggers and White-Chick-Motivational-Speakers:

Hi.

I wanted to be like you, more than you could possibly know.

I wanted the Pinterest life, the 2.5 kids, the I-Can-Bake-Sugar-Cookies-And-Not-Get-Flour-Anywhere perfection that’s gorgeously-photographed-with-a-perfect-filter persona.

I wanted to have the right Bible verse at the right time, to show you and everyone that I. Am. A. Good. Christian. Wife.

I wanted the en-pointe brow, the Jenner-worthy highlight, and the Hatmaker-moxie that makes everyone love me and want to be like me…Just. Like. You.

I wanted to be Candace.

I wanted to be Jen.

I wanted to be Glennon.

 

I can’t.

 

Am I the only one that sees these “normal” women and weeps because they feel like their life is wasted in a reality that is NOTHING like what they read? Am I the only one that can’t listen to someone tell me, “Girl, Wash Your Face,’ because at this point, there aren’t any bootstraps to pull myself up by? Am I the only one that had a dream that keeps getting derailed by illness or finances or a million other obstacles that just keep coming, one after another, without a break?

 

Am I the only one that’s about to give it all up?

 

There are things in my life that I was told would never happen—my son, first and foremost—and they DID happen, so I know it’s possible. I know it CAN happen, but what does it take? Why am I not good enough, if I truly am giving my best?

 

How much more of myself do I have to pour out, before there is that promised refreshing of the Spirit? Before the “potential” is the realized present?

 

I’m not whining or indulging in defeat. These are honest questions that we as Christians need to be willing to ask with open hearts. These are questions that are very easy to slap a Bible verse and a Snapchat filter on, along with a “Cheer up, Charlie!”  response, but all that does is create impressions of a Martha-Stewart Reality. Jesus doesn’t listen to hurting hearts and say, “Girl, get yourself up and out of that funk, right now!”

Jesus says, “You’re hurting, and I know it. I feel it, and I’m here. You won’t be in this place forever, daughter, but you’re here now, and I’m here, too. Today, we rest. Rest in Me. I know you feel defeated. I know you feel like you’re at the bottom. I know you want to give up.

I know you’re broken.

I’m here to make you whole.

But it’s going to take a while.”

The Song of Solomon says, “Do not awaken Love before its time.” (Song of Solomon 2:7; 3:5; 8:4) It actually says it like, 3 times in the book, so that tells me it’s important. The dangers of focusing on the Mommy Bloggers and the White Women of Hope are that the image and the promises are instantaneous, although I do not think that’s their intention. We see the Glennons and the Jens and we see beautiful faces and gorgeous honesty…we see the aftermath, and we think our redemption and the answer to our problems is RIGHT NOW.

 

Well, I’m here to tell myself and to remind myself (and you, maybe) that we don’t want to awaken Love before its time. The statement tells us, it reminds us, that everything has a TIME—everything has a designated time and a designated process, and we (I) always hurt the most when my time frame and His time frame don’t match up.

 

He has a plan for my life.

I can’t see it, right now.

Right now, I’m an internal ball of electrified yarn, and every time I try to untangle it, I get shocked by the situation I’m in, and wounded even further.

I have to wait this out, and as I once told a friend of mine, “there is breaking in the waiting.”

 

I’m not pretty right now.

I’m not Pinterest-worthy (not that I ever was).

I don’t have pithy sayings and roll-script placards to hang in my foyer (LOL—like I have a foyer).

I want to awaken Love, and see the end of this story, because THIS CHAPTER SUCKS. (Underlined, italics, all-caps—get it?!?!?!?!?!??  I really, REALLY mean it. This chapter sucks. Completely.)

 

I am going out on a limb and saying that I need prayer right now. My family needs prayer. I hate saying that, because I feel like there’ve been so many times where we’ve had a “dramatic” thing happen and have needed prayer; it’s very hard for me to suck up my pride and just admit it right now. My little family is broken, and our hearts are hurting. We need supernatural provision and for doors to open in unforeseen ways.

 

I need peace that passes all understanding, and the physical capability to cope with the stress that we’re under. I need a refreshing in my heart that pushes past the things I see—the Jens and the Glennons and the Candaces—and seals in my heart the love and value that God sees in me, because I can’t see it right now.

 

The disappointment that is choking me is usurping my ability to find the joy in every situation, which is something I’ve always said I wanted to maintain. I can’t laugh, and that’s not like me, so this has to lift. I’m being transparent, here—the depression/anxiety that is always on the brink is threatening much more than just my sanity this time, and I’m struggling to fight through it (and yes, I’m medicated, but that only goes so far). This year is ending on the battlefield, and we’re wounded.

 

So, I can try to read the words of the Jens and the Glennons and the Candaces (and even the Voskamps), but they’re bouncing off, because all I taste is the bitterness of a sanitized presentation.

Then again, who wants to read the words written from the middle of Ground Zero?

 

Sometimes, I look back on what I wrote in the thick of it, in other times in my life.

I look back on the things I said from Ground Zero, and I remember the journey out of that valley.

 

I’ve been here before.

 

It’s different, but familiar

And I know that God is faithful,

Even when I’m broken.

 

I’m not going to awaken Love before its time.

I’m not going to read someone else’s words about how they went from nothing-to-something, or from broken-to-whole.

They’re not me, and the more I think about them, the more I sink into a pit of jealousy and frustration.

 

I’m going to read the words of eternal Life,

And I’m going to cry, and break, and be a snotty, un-Snapchattable, Pinterest-failure of a person, and I’m going to (eventually) accept that it’s okay.

 

I’m going to put one foot in front of another, and most likely, trip and fall flat on my face…again…and again….and again…

But eventually,

I’ll get back up, as will my household.

 

For right now, though, we are in yet-another valley, & there aren’t enough pithy sayings from the White Women of Hope that can pull us out.

 

We will not awaken Love before its time…we will go through this process, and we will embrace the hurting; we will learn the lessons we need to learn, and we will be as transparent as we need to be, even when it breaks our pride & makes us feel raw & exposed. We will accept the failure on our own, & we will not whitewash it in Magnolia paints or Pinterest craft boards. We will live in this moment, and maintain the hope that we have that it’s not forever. It’s a time, and there isn’t a fast-forward button on this one.

 

And someday, He will make the exchange of Beauty for Ashes, and we will see how His hand worked through it all…because He is Who He says He is, and through it all, we believe.

3am…

/ Cassidy S. Cooley / Leave a comment

I don’t want to be awake right now.

Steroids do funny things. I’m on Day 4, & I know they’re doing what they need to do, but I’m tired…but jumpy…and honestly, emotional.

Her birthday is this week….it’s Tuesday. If you ask me specifically why it hits me differently every year, I couldn’t tell you. Everything was running along smoothly, except for, same as last year, when I realized that life was running along so quickly that I wouldn’t have time this week to take that “pause” to honor her….to reflect on her life….and I hate that.

I had to say the words last night out loud, “Hey, I get this. We need this. She was real, she was a person, and she is part of who we are, so even in this crazy, busy week, we make time.”

I don’t know how that is going to happen, but it IS going to happen.

We move along in life so quickly….we have our routines and schedules. We don’t take time to sit and reflect, so it feels unnatural, but it needs to be done. Pain and sadness need to be recognized, so they can be processed….so that they don’t get buried….because we all know they don’t STAY buried.

For me, if I don’t take this time now, these feelings and frustrations will manifest themselves in a couple of ways. I’ll cry or fly off of the handle about something innocuous. I’ll sulk or withdraw. I won’t sleep. I will carry around unnecessary guilt and shame. I’ll get sick. My family will suffer, & it will all be fallout from my failure to listen to that still, small voice that says, “Stop. Breathe. Remember.”

My daughter…my beautiful winter butterfly…would be 12 years old this week. We’d be going through “the change” that all of the women in my family went thru at 12, and OMG HOW WOULD WE DEAL?!?!? I imagine we’d be having arguments about social media & boys, & junior-high drama…there would be the introduction to makeup, or maybe a CCW class with Auntie, & Lord knows what else. We’d be starting the conversation about college, and I would be internally freaking out about how much information about LIFE, & HOW do parents maintain that balance? I think my Hannah & I would have a good relationship, & that I would be finding myself on my knees more than ever before as we enter the last year before TEENAGERDOME. 🙂

My little girl passed away before too much of her personality could be established, but there are some things I know for certain: She loved music. She loved songs with soul & excitement. 🙂 She smelled like Cheerios, & she knew her Daddy’s voice. She was a happy baby, which is amazing, considering the duress by which she came into the world…

And she made me into someone I’ve wanted to be, for as long as I can remember: She made me a Mom.

I will always, always be grateful to God for blessing us with her. I will always be grateful for our 29 days on this earth together, & I have absolutely no regrets. We had a gift that changed the course of our lives, our marriage, & our faith, & we are eternally impacted by 29 days with the most precious princess this world has ever seen.

I love that our journey with Hannah isn’t over. I love knowing that because of Jesus, it’s only on “pause,” until we are together in eternity. I love that He gives us that level of hope, and that He takes our despair & turns it into a beautiful anticipation of what is to come….

Happy birthday, Hannah Elizabeth Gayle Cooley. You’ve made my world more amazing and beautiful, just because I had the chance to call you mine.

3am isn’t so bad, after all.

“Out of the mouths of babes….”

/ Cassidy S. Cooley / Leave a comment

You guys, God blew up my brain this morning. Like, He shattered me in the best of ways…..I know that sounds crazy, but hear me out:

In the morning, I have about a 45-minute commute. I like quiet in the mornings. My drive is usually where I try to get focused, I pray, and I listen. This morning, I had just finished praying the intro (LOL–by “the intro,” I mean the Lord’s Prayer. I start every day with that. Long story. Good enough for Jesus, good enough for me.) and I was thinking about my son. I was thinking about how he’s said a couple of times lately that he wants to be baptized. Now, he’s 5–I’m pretty sure he’s not ready yet, but it’s on the table. I was 9 when I became a Christian and was water-baptized, so I firmly believe that kids can know what they’re doing.

We pray with him every night. I want my son to know that God is real, that He is listening, and that we don’t have to fake anything with Him. Jericho’s prayers are really, really cute, and I believe that he prays with intention. David has been AMAZING at working with him on Bible verses (I highly recommend Pixie Paper on Amazon; we purchased superhero-themed prints with Bible verses on them, and Jericho’s been learning them since he was 3. “Green Lantern verse!” “Your Word is a lamp unto my feet and a light onto my path!” “Captain America verse!” “Jesus is the Captain of my Salvation!”), and he’s been learning them at school. Image result for jesus is the captain of my salvation

Watching a child develop their own faith is fascinating.

As parents, we have to be careful of a trap that I have found myself in: Don’t disregard the strength of their prayers because they’re cute.

I was driving into work, thinking about how Jericho had jumped at the opportunity to pray over my family’s Father’s Day meal. It was a simple prayer, full of thanksgiving, and one I really didn’t put much stock into, because let’s face it: I have a really cute kid, and it’s cute when kids pray.

I was, of course, happy that he WANTED to pray (my mother was verklempt, LOL), but I didn’t really think too much more of it beyond the general pride I felt that MY KID PRAYS. Outside of that, it was adorable, and we go on with our day.

Image result for verklempt meme

God feels differently.

I felt Him whisper to me this morning as I merged onto 270: “His prayers are REAL.”

My brain exploded like a firework. If I could have stopped my car and pulled over, I would have.

He kept going–it all rushed in: “His prayers are real, his heart is pure, and I AM LISTENING. All of Heaven is listening when a kid prays. His prayers have stock in them, just as yours do. Age doesn’t matter. I listen. Nothing he says is in vain; all of Heaven takes note. It’s written down. Jericho’s prayers are HEARD.”

So much for my mascara this morning.

How dare I sit back and write them off as a novelty?!?!?!?!?!?

The prayers of our children are heard in the heavenlies!!!!!!!!!!

I came into work, and turned on Bethel worship from a few Sundays ago. I picked it based on the screenshot of the worship leader, who I hadn’t heard before (Sean Feucht), and Pastor Bill Johnson was doing the intro. What he said made me stop in my tracks, and open up this blog to write all of this down:

Psalms 8:2:
Through the praise of children and infants you have established a stronghold against your enemies, to silence the foe and the avenger. (NIV)

Mr. Johnson went on to read a paraphrase of a few more verses of the chapter (hit the video at the 4:32 marker):

“You have built a stronghold, a dwelling place of strength, from the songs of babies. YOU HAVE BUILT A FORTRESS FROM THE SONGS OF BABIES!!!!!!!!!!!!  Strength rises up from a chorus of babies. This kind of praise has the power to shut Satan’s mouth. Childlike worship will silence the madness of those that oppose you.”

I have never, EVER read this verse like this. I’ve never seriously considered the power or strength of the prayers of a child. I’ve said, “oh, sure, that’s adorable, it’s good to teach kids to pray,” etc., but it’s never impacted me like it has this morning. Between what God whispered in my ear on my commute, and a different interpretation/paraphrase of a verse I’ve heard 1,000 times, my world is rocked this morning, and I am renewed in my prayers of gratitude for my son in my life. That boy is a gift and a blessing who has taught me more about God than in almost any other time in my life. He keeps me reliant on the Lord, and he keeps me committed to renew my faith every single day. Today is just one more example of the lessons God has taught me through Jericho…

You guys, how amazing, that the Creator of the universe stops in His tracks to hear the prayers of a child…that the prayers of the least of these matter to our Savior. Our prayers are never just a novelty act; He never writes them off because we’re who we are. He’s listening, and He’s not just listening–He’s looking forward to our conversations. He’s engaged with us as His Beloved. Jesus truly loves us so much more than we can know, and it’s a joy to belong to Him…it’s a joy to get to parent with the influence of His kindness…it’s a joy to be loved by Him…

 

Stay little….just a little while longer…

/ Cassidy S. Cooley / Leave a comment

He crawls up beside me on this couch where I’ve been recuperating for the millionth time…”Play with me, Mommy!”

He sounds off–my Mom-radar is triggered, & I covertly check his cheek for warmth. Nope, all good. He snuggles up. Evidently, “play with me” is Rico-speak for, “I’m tired, and I just want to use you as my giant pillow, Mommy.” I oblige. Even when he hits a sore spot, or digs in his dagger-like elbows to jockey for position, I welcome him to this space that he has made on my lap. 

He takes his glasses off, he pats my arm, and he floats back-&-forth between watching, “Meet the Robinsons,” & whatever 5-year olds dream of.

He really is beautiful.

He gets those eyelashes from his father. 🙂

I know that I have to be consistent, set rules, maintain boundaries. I have to have structure, schedule, education, etc….But sometimes? I just want to look at him. My little miracle boy…Gosh. He’s just such a gregarious, hilarious, mysterious little creature….he’s happy, sunny, and just plain glorious. He makes my heart smile in ways I never could have understood, and I am so, so grateful for him.

I was a big advocate of “baby-wearing” from early on with him. We started with a Moby wrap (thanks, Kat & Susie!), went to an Ergo, and finally, moved up to a Tula that can go up to 50lbs. He’s just now 40lbs., and because of my surgeries, I haven’t been able to backpack him like I was. And, although he still meets the size requirements, he’s 5, so there’s that. I’ve been purging the house, simplifying closets and storage,  etc., and when I cleaned out my car, the Tula was sitting there. 

I know I can get a good price for it.

I’m not ready to sell it, yet. 

I’m not ready to close that chapter. 

He’s growing up so, so fast…How can I save every moment? How can I hang on, but let go while he grows? He met his kindergarten teacher today, & I am more emotional than I’d like to admit. Kindergarten!!! But….but….He was just born, like, yesterd……oh…..

You start letting go the second you say hello.

Go to sleep, Beautiful Boy, and I will still be your squishy Mama when you wake up. Stay little just a little while longer…..

Merry Christmas, Happy New Year, and the Blessings of “Boring”

/ Cassidy S. Cooley / Leave a comment

Christmas cards, postage, etc., COST. So, in the interests of saving our budget, we greatly reduced the number of Christmas cards that we physically sent out this year. Besides, everything–EVERYTHING–is online. Also, the only stamps I have left are either Harry Potter or Disney Villains, and NOTHING says “Christmas” like a Cruella De Ville stamp. 🙂 That being said, here’s our OFFICIAL Christmas Card/Letter for the year:

Christmas Card 2017

Christmas, 2017

One of the doctors in the clinic stopped by my office the other day, and commented on how sometimes, people need to learn to be happy with “normal.” I’m a big fan of “normal.” As a society, we’re told we need to “thrive on chaos,” and to “work well under pressure.” That’s all fine, but I think we’ve lost the luster of celebrating every-day life.

Wake up at 4am. Get ready for work. Drive—a lot—and maintain your Christianity in the process. Do your job—and maintain your Christianity in the process. J Drive some more. Pick up your child from school, head home, make something edible for dinner, and crash in front of the television, read a book, play a game, etc., until it’s time to do the whole day over again. There’s a schedule, and the days tend to flow into one another in some kind of monotonous blur…Or do they?

I’m definitely locked into my routine; I know I can hit that snooze button 3 times before I’m at Critical Rush. My closet is organized so I can spend 5 more minutes in bed, and I usually pack my lunch the night before. I’m as streamlined into my routine as I can possibly be, all in the name of a few extra minutes under the blankets. Do I look forward to every single day? Heck, no. There are more days than not where I fight a major battle just to put one foot on the floor. It’s for medical reasons, it’s for mental reasons—My “expectation” for the day is honestly just to get it over with. I know that sounds like absolute drudgery, but I also know it’s more common than some people realize. I think that’s part of why when something exciting happens, it’s so much more dramatic, because HOLY COW, WE HAVE BROKEN OUR ROUTINE!!!!!!!!!!!!!!!!!!!!!!

Do you know one thing that breaks any concept of a “routine?”

Love.

Although the first part of my day is routine, as soon as I pick Jericho up from school, it’s really “anything goes.” I know I’m going to get him, maybe talk to his teacher, and we’re going to drive home, have dinner, and talk about his day. I know he’s going to go to bed somewhere around 7:45, and that I’m going to bed at the same time. What I don’t know, is what he’s going to say…what he’s going to do, or what new skill he’s picked up. It seems like he grows every day, and before we know it, he’s going to be starting Kindergarten. Impossible. I know that when he says something sweet, that on the outside, I’m going to remain calm; on the inside, my heart is going to turn into confetti, and my brain is going to replay the memory a thousand times over the course of the next “routine” day. When he stops everything and hugs me, I know my heart is going to go full-on Grinch, and grow 3x in 30 seconds (it does that a lot). It’s a brand of love unlike anything I have ever known or can describe, and it’s mind-blowing. I don’t understand the love I have for my son. I don’t get it—where does it come from? How does it just keep getting bigger? How is every day with him so amazing? I mean, yes—he’s 4.

Four has tested us in ways we never thought we could be tested in. Everything everyone said about the “Terrible 2’s” or “Terrifying 3’s” is a load of garbage, because FOUR?!?!?. Four is insane. Four means we occasionally have a Tiny Tyrant who is dead-set on voicing his own opinions, on doing is own thing, and is NOT dead-set on simply accepting “DO WHAT I TOLD YOU TO DO!!!!” as a viable reason to do what he’s told. Jericho is feisty, opinionated, determined, and incredibly creative. He is also very loving and very sweet, most of the time. There is never a doubt as to what he is thinking, and I can’t help but to think that he comes by that honestly. J

He’s decided he wants to be a foot doctor, a chef, and a police officer. He’s working on his handwriting; he’s able to read lots of words, and his spelling is pretty impressive. He’s in Pre-Kindergarten!?!?! School has been very good for him, and it’s definitely been a year of transition. He’s just a typical 4-year old boy. I celebrate that.

David’s “routine” day is a little different than mine; he gets Jericho ready for school every day and takes him in. Jericho wakes up ready to punch the day in the face! His day starts with YELLING, “I’M READY TO GET UPPPPPPPP!!!!!!!!!!” over and over and over again, until David finally goes into his room and turns the light on. The child is persistent. I’m not sure how David deals with the volume level of the morning, but on the weekend, it makes me a little buzzy. J I’m used to absolute silence in the morning when I leave, because everyone is still asleep. It’s a culture shock on Saturday morning!

David’s still working with MetLife, and if there’s any “routine” to his day, it’s that he’s going to be busy. Between hurricanes, floods, storms, fires, and crazy drivers, he never knows what kinds of claims he’s going to be dealing with (or what kinds of excuses he’s going to hear). We each have to maintain certain amounts of confidentiality with what we do, but when he does tell me a carefully-redacted story, it’s always jaw-dropping. People are hilarious.

I continue to work with the Center for Eye Care at UMSL. My favorite part of my job is working with our Mobile Eye Van to provide vision services in underserved schools. A proper diagnosis of a vision issue can change a child’s life; that’s exciting, to be a part of making that change. I also continue to work with contract negotiations, compliance, and credentialing. The laws change constantly, and my biggest challenges are being made aware of, and of understanding, these changes. I appreciate the “simplicity” of just being “Mom” at the end of the day, and of not having to worry about government regulation enforcements! J I also continue to do freelance editing when I have time, and “officially” launched www.CassidysCommentary.com over the summer.

We’re a completely “normal” family. We’re a Dad, a Mom, and a child, who start each day, work and learn each day, and go to bed each night. But when you look at that sentence, there’s a lifetime of hope and of love in each comma. There is no happier moment of my day then when Jericho crawls up into my lap, and sits with me. I’ve never known a fulfillment like I feel when we sit there, doing nothing. I’m so thankful for that little boy, and so grateful for the love I see in him. He’s such an answer to prayer, and such a daily testimony to David & I…

I remember that feeling of waking up on Christmas morning when I was a kid—the anticipation, and the expectation. I kind of feel like that every day when I pick Jericho up from school. J Even though it’s “routine,” it’s the best time of the day, full of the excitement of seeing his face and of hearing about his day. It’s a beautiful “normal,” and I am so in love with having it in my life. We are both so grateful to God for these “typical” moments…

For this Christmas season, I hope that you & your family find the gratitude and joy in whatever your “routine” may be. My prayer for all of us is that the drama we are so affected by on a regular basis, go back to being out-of-the-ordinary. My prayer is that the “routine” would be calm and joyful, and that as a society, we would learn to appreciate the beauty of the mundane. Celebrate “normal” this holiday season, and enjoy the peace of the Holy Spirit in your families as you celebrate the birth of Jesus.  Merry Christmas!!!!!

Love,

David, Cassidy, & Jericho Cooley,

And Holly the Boxer, who is very, very old….

“Let Me Entertain You….” Or How About Not?

/ Cassidy S. Cooley / Leave a comment

My weeks are crazy. I work full-time, I drive around 2 hours/day round-trip for my commute, and I try to run a livable household. I know that’s not anywhere near as crazy as some people’s lives, but it’s a full plate for me. I’m grateful to have my husband as a partner-in-crime, but during the week, we feel a bit like “ships that pass in the night.” It’s why we cram SO much into our weekends, and why my house stays messy. I’d rather make life experiences and memories on the weekend, then deep-clean my house. No kid ever grows up and says, “Gee, remember all of the fun we had while cleaning the house? Remember how much we LOVED a clean floor?”

Nope.

So, my house is messy, but my heart is full, on the weekend.

During the week, however, it’s a different story (okay, my house is still messy, even during the week). During the week, for me, I’m up at 4am, off to work by 5:15, in my office by 6; I leave at 3, get Rico from school at 4, try to come up with something for dinner (and cook it, unless I just say “to heck with it,” and feed him peanut butter sammies), and I’m usually in bed by 8. The days kind of blur together, and I know that’s common.

When I get home from work, there’s this feeling of absolute hectic panic that sents in. What am I making for dinner?!? What groceries do I have? WHAT IN THE WORLD IS THIS CHILD GOING TO EAT?!?!?!?!? Meanwhile, while I”m assessing the supplies, Jericho is throwing a three-ring circus in our little living room, complete with occasional yells of, “LOOK AT ME, MAMA! LOOK AT ME!!!!”

Sometimes, I stop everything and I take a look at the chaos he’s created. His little imagination is the greatest gift, and I love to see where his brain takes him.

Sometimes, I can’t stop (raw chicken, anyone?), and I have to yell back, “I’m sorry, honey, but I can’t! I’m making dinner.”

Occasionally, this conversation upsets him or makes him angry; usually, he just keeps repeating himself incessantly until I finally am able to stop what I’m doing, and give him my full attention.

One thing I really wanted to stress when becoming a mom, was that I never, ever wanted to be too busy to give my son what he needs in life. If that’s a hug, if that’s a cuddle–I always wanted to be able to stop the world and give him that gift. I wanted to be present for every single moment of motherhood. It didn’t come easily to me, and I always wanted him to know he was more important than anything or anyone in my life.

Medically, that hasn’t always been the case. Whereas some women are physically just made to be moms, I’m pretty sure I’m not one of them. After I had my daughter, I went into heart failure. I did the same thing with Jericho (though not nearly as badly). 4 years after having Hannah, I had issues with fibroids, scar tissue, and an abdominal wall fusion that required major surgery. A few months after having Jericho, I had 2 different procedures to get rid of my evil gall bladder. This was followed by a complete hysterectomy (again, scar tissue and fibroids) and a thyroidectomy due to thyroid cancer. Being without a thyroid has been the most challenging part of my entire convoluted medical history; the fatigue, combined with the emotional imbalances that come when you don’t have a thyroid to regulate your hormones, have made things difficult. David has really had to jump in more than anyone realizes, to keep our son well-cared for when I literally cannot get out of bed.

I’ve done really well since earlier this year; earlier this year, I wound up with mono, which meant that I spent a lot of days coming home from work, fumbling through something quick-and-easy for dinner, praying for David to just get home from work, and then going to bed at 6pm. Maintaining that level of fatigue is nearly impossible, and it took some pushing for me to get the right diagnosis with my PCP. Once we knew what it was, and that it wasn’t thyroid-related, David & I both took a breath. Had I been that tired on what was looking like a permanent level? We had no idea what we were going to do.

So, gradually, I’ve felt better and better, and now, I’m back to my “normal” post-thyroidectomy self. My levels are good, our house is still standing, and our child is happy….

Unless I can’t stop everything and pay attention to him.

On Wednesday, Jericho wanted me to hold him for a while. I started to say, “just let me read the paper,” but stopped mid-sentence, picked him up, and put him on my lap. The fact that he WANTS me to hold him, has an expiration date. I’m aware of it more and more, so I take the hugs whenever I can get them…unless raw chicken is involved.

Yesterday, he was running amok in the living room, and wanted to me to come and watch him. I was making dinner and dealing with raw chicken, so I told him that I couldn’t come into the living room. He was frustrated, but I explained that raw chicken is disgusting, and that I was up to my elbows in grossness. His fascination with gross outweighed his frustration, so he acquiesced to my instructions to “stay in the living room!!!”

This means that he promptly came into the kitchen to watch the rest of my food prep.

While I was working on dinner, I found myself having one of those internal conversations with God: “Lord, I wish I had a clone. I wish I could take the time and pay more attention to him, but there is just so much work to be done.” I think my Mom-Guilt was in full play.  I mean, why am I working? I’m working because we’re broke. Why are we broke? BECAUSE I SHOP TOO DANG MUCH. Oh, and we’ve also had 2 million-dollar babies, periods of extended unemployment, one year with 2 mortgages (2008), and blah-blah-blah. We’re in debt. So are most Americans. I work to work on debt and to prevent more. I work to provide a future for my son. I work because I’m good at it, and I like it. I work for a lot of different reasons. The mom-shaming that is so exacerbated by social media is something that I simply do not have time to embrace. This is how I parent. Go parent your own way for your own child. I refuse to embrace the judgment ascribed by so many that do not work, or even by so many that do. We are a double-income family because we HAVE to be. Period.

But my conversation with God, though brief, really summed up a lot. I wish I had a clone, or maybe more hours, or maybe an assistant (HA!), or Rosie the Robot. I wish there was more of me (and less pounds of me). I wish I could be a perfect, always-present parent.

I am not.

And I felt God answer in His way, in His beautiful, gentle way, into the recesses of my heart: “You are a good mom. Your heart is always with your son. Even when you’re not paying attention to him in his way, you are paying attention to him.

It’s not your job to entertain your son.  It’s your job to care for your son.”

Consider me undone, Lord.

Sometimes caring for my son means I focus on making him a healthy dinner, instead of embracing the circus in the living room.

Sometimes caring for my son means I surrender to knowing that I can’t do it all, and to trusting the man God gave me to do more than he should have to do.

Sometimes caring for my son means I tell him, “not right now.”

I wonder how many times God has said the same to me? “Cassidy, My job is to love you…to care for you…not to entertain you.

My job is not to tell you what you want to hear.

My job is not to give you the material things you want (hello, iPhoneX!).

My job is not to make your life easy.

My job is to love you.

My job is to call you to higher things and higher thoughts.

My job is to draw you into Me, and for you to run with Me.

My job is to be your Bridegroom, and for you to understand what it means to be my Bride.”

Oh, Jesus….to be Your Bride…

Suddenly, all of the accoutrements of stress wash off, and I’m laid out before God. I’m reminded of my only job–my Only Job–even above being a wife and a mother.

My job is to love Him.

My job is to make Him the center of it all…the goal of my every day, the focus of my every moment. My job is to be for Him, above all others…and in that, everything else comes into alignment.

Regardless of the chaos of the day, the endless need to give attention to others, the rush, the pace, and the fatigue, He is my Center.

He’s not my “entertainment.”

He’s my heart.

 

 

Grief, Gratitude, and the Grace of Pumpkin Spice

/ Cassidy S. Cooley / Leave a comment

4 years ago, I wrote the following (thank you, Timehop):

“I’m in a season of celebrating one new life, while remembering the short life of one gone far too soon. It’s conflicting, celebratory, sad, & a beautiful dichotomy that is not lost on me, even in my current chaos. Hello, Autumn-you remind me again of what is lost, even in the midst of great, wonderful, amazing gain…”

If you’re new to my blog and haven’t read the “About Me” section, then you may not have picked up on the fact that my husband David & I lost our first daughter, Hannah, at 29 days of age, to late-onset Group B Strep with Bacterial Meningitis. I could wax loquacious about the details, but I will spare you (and me), and stick with the general, “Google It” response that I tend to give in order to stop reliving the worst 5 days of my life.  Our daughter was a preemie (34 weeks), and could not fight off the flukiest-of fluke diseases (even though she was born completely healthy). My pregnancy with her basically wrecked my heart (physically and emotionally), and it was nothing short of a miracle that we conceived and successfully delivered our rainbow baby, Jericho, 7 years later. My pregnancy with Jericho was spent partially in the peripartum “spa” (if you’ve been “incarcerated” into peripartum care long-term, you know I’m joking) of the amazing Missouri Baptist Hospital, under the care of phenomenal doctors (shout-out to Michael Paul, MD, life-saving and baby-loving perinatologist) and nurses that I couldn’t have survived (physically and emotionally) without.

Bringing home a newborn after losing one, is a strange, difficult, conflicting process…For Jericho’s first month of life, I’m pretty sure I didn’t sleep (which led to some serious post-partum issues, that I am neither ashamed of nor silent about. Post-partum depression is real, and if you’re suffering from it, save yourself and your family, and get help), and I’m not so sure my husband did, either. I had a full 8 weeks at home with my little guy, and I think I spent most of my time crying happy tears, crying sad tears, swearing about a lousy milk supply, praying that I didn’t screw this up, and thanking God for how He keeps His promises….while also praying with everything within me that we could just get through the first 30 days. I think when Day 30 hit, I finally took my first post-partum breath. It felt like the oceans receded (proceeded? Words are hard) after being held back for a month…like all of the tension flew out of my body with that breath, and I finally, finally, could rest.

I didn’t, of course—hello, sleep training!—but I knew that I COULD, and that made a huge difference. After 30 days, I think I finally went from handling motherhood like a Swarovski crystal spider-web, and began to actually embrace that this really was my life now…he was ours, and he was everything I prayed for. The reality of the answer to years of prayers was staring me in the face, and he wasn’t going away. He was real…my precious boy…and I could truly, sincerely be happy.

After that first 30 days, through the spring and summer, I began to struggle with the “we nevers.” Jericho would have a milestone moment, and I’d think, “We never got to see Hannah do that.” I tried to turn it off, tried to celebrate what was happening, but the thoughts would creep back…”He giggled…I never got to hear her laugh.” “David, he flipped over…we never got to see Hannah do that.”

At one point, I dreamt that Jericho was lying on my bed, and a little red-haired girl was sitting there with him. Even now, as I type this, I can feel the tears at the back of my eyelids…that image was so, so powerful, as was the sentiment with it: “I will never, in this life, have a picture of my children together. What has happened to us? We will never be a normal family.” I woke up from that dream absolutely hysterical…I was deeply, deeply grieved. I can remember that intensity as if I’d dreamt it last night. Family pictures with one boy, one girl? They are still hard for me to see, even amongst friends…You just never have that sense of completion. You learn to accept it, to view it as your “normal,” but as a parent? You will always recognize that missing person in your family picture.

Anyway, the first year with Jericho was tough, as it is for all parents: You’re learning how to be a mom, learning how to juggle a full work-week, and finding trustworthy childcare. I had further complications that first year; my heart still wasn’t functioning correctly, my gall bladder required 2 different surgeries to remove, and my recovery post-C-section caused scar tissue to develop that would later result in a full hysterectomy just one year after having my son.

However, one of the greatest joys of that year was how often David & I would look at each other, or look at Jericho, and just know how great was the love of Jesus? How amazing was it that this tiny little person came about because of healing, grace, and love? We could look at this child and see tangible evidence that when you have a dream in your heart, and you know beyond the shadow of a doubt that God is NOT finished with you, despite what modern healthcare says– He can make miracles happen!  We could look at this child and know that you cannot accept the things men say, when you hear in your spirit the things God says!!  My son is nothing short of a breathing miracle, and frankly, I am, too. He has that legacy—that legacy of prayer, of hope, of determination. There is nothing in this world I am more grateful for, except my husband and my salvation.

Yep—I’m officially crying now. Jesus, I am so thankful! You can’t know how my heart blows up at just writing these words…I am grateful, with every cell of my body.

Even as I write this, though, I come back to how this blog started, with that quote from 2013: “Hello, Autumn—you remind me again of what is lost, even in the midst of great, wonderful, amazing gain…”

The spring and summer of 2013 were full of new-mom fog, surgery, work, etc. We were just trying to get our feet back under us to charge ahead on our new life together as a Party of 3. But then….

Then came Autumn.

And then came The Hardest Part.

When I went into Missouri Baptist Hospital in October, 2006, the fall leaves were still on the trees. My room overlooked the highway, so I really didn’t get a good handle on watching the season change to winter; when I left my hospital room in November, 2006, winter had come, and the world was bare.  I missed the entire season in a 4-week span, and we brought our little girl home the week before Thanksgiving. By the day after Thanksgiving, she was in a coma, and then she was gone…we buried her on December 1st, the day after one of the worst ice storms Missouri has ever seen. The sun shone, and the world was crystallized for my winter princess.  I’ve never forgotten the beauty of the day my child was buried…it was like the Lord decided to cover the trees in diamonds in her honor. It was stunning, even in the darkness of our grief.

But that year, 2006, I missed the fall. So when the leaves turned in 2007, something hit my heart, and I could only think of that Fall I Had Missed…and every year, I am reminded as such.

In 2013, the reminders came as I was looking into the eyes of my son…my miracle boy…and I was so totally conflicted in ways I hadn’t realized were possible. I had so much, but had lost so much, and the season reminded me of all of it, combined with gutting guilt. HOW dare I mourn, when I had so much to be thankful for?

How could I not, when that world was staring me in the face every day I walked out of my door?

I found myself not necessarily regressing in my grieving process, but really struggling with the dichotomy of grief and gratitude. And I’m writing this not to say that I have ever found an answer to that conflict, but to say that every year, I’m reminded of Hannah’s precious life in so many stronger ways than in my usual daily thoughts.

There is no season like Autumn, in all of its symbolism and glory…it’s a season of death, but a season where colors come alive….where we breath in the dust of the trees as they make their fiery curtain call for the year. It’s a season of living at bonfires and parks, a season where photographers revel in making memories, and where families gather to celebrate all things together…

We know death is coming…that winter is coming…but there is no day like today, and today, we celebrate the abundance of the harvest.  Are we near-sighted, to not hunker down and prepare for the winter? Or do we understand the breath/breadth of life, and own the day with its undeniable charm?

We cram our calendars with activities to take in every moment. That first year? We did it all. And we did the second year, and the third, and I’m getting ready to do it all again in the fourth year with our Rico-Bean. We celebrate the Fall, and we run ourselves ragged with the memories we make…and we make no apologies. I celebrate the Fall season with my little guy, and I never let on that I am internally fighting the conflict of that grief and that gratitude.

And I realize through it all, that there is no “conflict.”

There is only cohabitation.

I miss my little girl. Fall reminds me of her birth, of her death, and of the 29 days we had between…of the crunching of the leaves as I walked into the hospital, and the Christmas decorations as we came out…of that first day home from the hospital with her in our arms…and of the last day, where home was a place I never wanted to go back to…I wish I could separate her birth and her death, but her death came so quickly that I simply cannot. It all happened in the same season…this season…and every day is a reminder…

But every day is also a gift.

Every day, I look at Jericho and marvel at who he is, who he was born as, and what possibilities are to come…Every day, I am so grateful, and so genuinely happy. Every day, I praise God that I get to be that boy’s mother…Every. Single. Day.

This fall, we have adventures planned…it’s his first year in Pre-K, so there are school events (field trips!), fall festivals, our annual events with Parents-As-Teachers, and my favorite, Halloween!!!!!!!! This year, he’s going as Harry Potter for at least one event (he wears glasses, so it’s perfect!).  We celebrate this season; don’t be surprised to see me in my Uggs with my leggings and some S’mores, cradling a Pumpkin Spice Latte in my monogrammed fleece jacket,  as a shining example of Suburban White Chick Bliss (that’s an entire other blog).

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I love this season. I love that it has multiple meanings, deep significance, and a beautiful, melancholy soul. I love the constant reminders of grace, which hovers over the grief and the gratitude. Grace envelopes both feelings, and makes them walk side-by-side instead of in mental conflict.

Grace is how we had our Hannah…how we said goodbye…and ultimately, how we will say “hello,” again…

Grace is how we had our Jericho…how we said “hello” for the very first time…and how we embrace each new day and sleep peacefully each night.

Grace is what brought David & I together in this crazy world—two kids with no idea of what was to come, and no idea how to engage on this life or on this journey—

Grace is what keeps us together, and is what pulls us through the tough times. It pushes us constantly toward the Father Who bestows it in abundance, and works in us independently to keep us engaged…to keep us from throwing up our hands and breaking our hearts in this process.

Grace is what binds our hearts, and binds our hearts to each other.

And Grace is what leads us home…

There is a beautiful loss in the season of Autumn, but it is part of the journey to a beautiful rebirth…and we are constantly on that journey, surrounded by grace, with eternity in our hearts….<3

Ecclesiastes 3:11 “He has made everything beautiful in its time. He has also set eternity in the human heart; yet no one can fathom what God has done from beginning to end.“

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