13…

Every year around Hannah’s birthday, I Google things that girls her age like. I’m not sure why; I think because it helps clarify what she might have been like, had she lived. This year (today, actually), she’d be 13, so I looked up what a 13 year-old girl would like. I’m now convinced that I’m secretly still a teenager, because EVERYTHING on the list is something I like!!! 🙂  Seriously–a mini Polaroid camera? A tie-dye kit? Bluetooth headphones? YES, PLEASE!

I can look back on myself at 13 and remember what I liked (Lisa Frank EVERYTHING! Flamingos! Pink notebook paper!).

lisa frankI have to laugh–it was such an awkward time for me. I was all neck and legs, big puffy hair, and glitter. I was finally old enough to wear makeup; I was too tall for the dress code; and I was still wearing the Coke-bottle plastic frames that everyone wore in the late-80’s/early 90’s. I was in the 7th-&-8th grades; I was a dramatic, hormonal mess; and I had deep, deep hatred of hairbrushes (my hair had just decided to be curly, and it was a shock). I blogged recently about what I’d say to myself at 15; I think it’s totally different than what I’d say to myself at 13, because the drama level at 13 is A LOT. I think I barely survived that year. 🙂

Back to 2019…Thirteen year-olds today are VERY different than 13 year-olds in the 90’s. The threats they face; the exposure they get; it’s more than I can comprehend at almost 42. I don’t have a CLUE about how they make it, or what kind of parents they have to have. What would David & I be like, if she were here? Would we ever let her out of our house?!?!  How does anyone let a teenager out of their house?!?!?!?! I’m considering installing invisible fences. 🙂

I’m kidding, of course…..of course…..well, mostly…..

My little girl would be 13 years old…almost grown. And as much as I want to sit and reflect on what she’d be like, I’m finding that I can’t. There’s been a tremendous amount of healing that has happened over time, but when I try to fill that hole with what might have been, I realize that although I have a fantastic imagination, it doesn’t stretch that far.

I have no idea what she would be like.

I don’t want to sit here and say that it’s “okay” that she’s with Jesus. That will never be okay, if I’m honest, because I will always miss her, and I will always wonder why she died. The longing and the wonder will never go away, and I don’t think that I need to justify that. It’s not a sign that healing hasn’t or won’t continue to progress. It’s a sign that I am a mother that is missing her child, and that it’s unnatural for us to not be together. Moms want their babies, period, whether they’re 5 days old or 50 years old. We’re created to be with our children, and when that is taken away, there’s a hole. The only thing that can close that gap is Jesus, and even with that, the scars are sensitive. After 13 years, it’s a “tolerable” grief, but it’s still grief. I miss her.

I don’t have answers when I get asked questions like, “why?” All I can say is that I believe she’s with the Lord, and that one day, I will be, too. I can tell you with all sincerity that I believe in Heaven and in Hell;  I can tell you that I believe one day in His presence is like a thousand years on earth, and that what I feel like is a lifetime, is a split-second where I know my daughter is at. I believe in Jesus, and in His will, even when I don’t understand it. Faith means believing when we don’t see. We don’t see things clearly on earth; we see them once we’re in eternity. I can rest when I put my eyes on Jesus, and let Him sort out all of the details. He knows what He’s doing.

Tonight, before we get home, Jericho & I are going to stop and get a little cake (or I might bake one, depending on how I make it through the day), and he’s going to goof off and make me laugh, and I’m going to tell him a little bit more about her. I might show him some more pictures, and he’s most likely going to ask some uncomfortable questions–that’s totally okay. More than anything, I want him to understand that we’re grateful for the time we had with her, and for the impact she made. I want him to understand that Jesus brings restoration and healing, even in the midst of confusion and questioning. I don’t know what kind of situations our son will face in his future, but I know that if we can impart to him the undeniable love, compassion, and plan that God has for his life, then we’ve done our job as parents for both of our children.fb_img_154071595978315789262.jpg

I was reminded the other day that my story is His story. I can’t tell the story of Hannah’s life, or of our life before, during, and after her loss, without starting and finishing by pointing everything back to God. We’ll always miss our daughter, in this life. We rest securely in the knowledge that Heaven is real; we also have peace in knowing that salvation through Jesus Christ is possible, and that He can redeem any person and any situation. Grief is temporary (temporary is a relative term); His love is permanent, and Heaven is eternal.

II Corinthians 4:18: “So we fix our eyes not on what is seen, but on what is unseen, since what is seen is temporary, but what is unseen is eternal.”

Grief doesn’t win. Death doesn’t win.

Love wins.

And it’s because of His Love, that I can still say, “Happy birthday, Hannah Elizabeth Gayle!” I can know that she is loved and cared for, and that I have such hope:

And I heard a loud voice from the throne saying, “Look! God’s dwelling place is now among the people, and He will dwell with them. They will be His people, and God Himself will be with them and be their God. ‘He will wipe every tear from their eyes. There will be no more death’ or mourning or crying or pain, for the old order of things has passed away.” –Revelation 21:3-4

 

Diaspora…

During worship on Sunday, I had this moment where I felt the presence of God hit so strongly. I almost said something, but held back–how do you verbalize something like that? In my mind’s eye, I could see a giant, navy-blue blanket cover the congregation as so many knelt and prayed…it was like the Holy Spirit was covering us with His love and comfort.

I spent a lot of time this week at church, during the Feast of Tabernacles. There will be more on that later, but for now, I’ll say that spending 8 days straight with any person usually results in a lot of tension and aggravation. You get sick of each other, and I know some personalities get sick of others more readily. We didn’t have any of that, that I could see. Every night was different, and every time we met together, there was the most amazing sense of community and family. It was awesome, and now I can’t wait until next year. Like I said, more on that, later….In the midst of all of this, come Sunday morning, I was so ready to come together with these people; I felt like we had a better understanding of each other, and where our hearts were. Guess what? We’re all on the same page. That’s so ridiculously cool and amazing–we’re united. It will be interesting to see what happens next.

Anyway, Sunday morning worship hit, and I felt such an impact and clear vision in my spirit–I truly felt like God was holding us together in such a loving way.  This poem/prose/whatever came out of that:

“Diaspora”

We don’t know the day or the hour

But the season of power comes

Like a hurricane to believers and unbelievers alike.

But what one thinks is devastation, another knows is declaration,

And the world changes and what we see revolves around the Son.

What does the blind man see but the darkness?

But we who have accepted Him are blinded by the light,

And we walk in faith

Trusting Him for sight,

Every step a testimony of faith.

And when the blind reach for us,

We’ve walked away, toward the glorious outpouring;

And their hearts are hardened,

And the darkness grows,

And the earth is split in two

While we run onward to the place He’s prepared.

Take the blinders off and march to the rhythm pouring out of Heaven.

Let the revelation become your motivation,

Stepping out of the shadows of destruction,

While the veil is shattered and the truth covers us all….

He is coming….

He is coming…

And we are going Home….

 

When you’ve spent a week communing with family, outside and under the stars, you learn so much…you learn where you’re from, and most importantly, you learn where you’re headed as a community….Coming together is a beautifully powerful thing. The word “diaspora” literally means, “the dispersion,” and it refers to the scattering of the Jewish people across the earth. As Christians, we’re scattered in a different way, but when we come together, amazing things happen. All of us will be reunited some day.

In getting closer together as a church family, I found my heart often thinking of Heaven as our true Home…how everything before then is a dim reflection of how beautiful and whole Heaven will be. How kind is our God, that He goes to prepare a place for us? How amazing is it, that we should have such a thing to look forward to? And how great is the testimony of each one of His children, that we come out of darkness, into His Light? We gain eternity in our hearts the second we accept Christ as our Savior, and it never leaves.

I get to spend eternity with some pretty amazing people.

I get to spend eternity with a pretty amazing God. 🙂

And so do you.

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Suddenlys and Falling Leaves…

One of the Millennials that I work with said something very interesting to me a few weeks ago…

[Please note that when I say, “one of the Millennials,” it’s with a surprising amount of love and respect. I say, “surprising,” because a lot of people in the “millennial” demographic have honestly bugged the holy heck out of me. This girl though (this young woman, excuse me)–she continually surprises me with words of self-empowerment and wisdom that I WISH I had at her age (or at MY age), and I learn a lot from her. When I turned 40, I told myself I was going to stop making apologies over everything. Emma has been a very influential voice that has echoed that sentiment, and even though we don’t always agree, I can’t help but to admire her strength and almost-frightening level of self-acceptance. Her story is encouraging and beautiful, and tough and scary, and it’s not mine to tell…but what I can say, is that she’s still standing, and that she has so much more becoming to do…There is so much beauty in her, and she doesn’t know it, but one day I will tell her just how much she’s taught me. I just want to sit on the sidelines and watch her bloom; there’s such a richness in her soul…she’s amazing.]

I digress.

Anyway, Emma looked at my Instagram feed, and said something to the effect of, “You guys LIVE for weekends.” It’s so true. My house is a wreck, I’d hire a housecleaner to bulldoze the kitchen in a second, and I barely stay on top of the laundry, but you know what? No one talks about a clean house when they tell the stories of their childhood. David & I are two very busy adults trying to keep a roof over our heads and raise a kiddo while working full-time and not abandoning either our families or our marriage, and it gets challenging. Monday through Friday, we barely seem to have time to carry on a full conversation, but on Saturday and Sunday? We refuel and burn it up in laughter.

Every weekend isn’t awesome, for sure. We’re far from rich, so we’re always doing things on the cheap; by the end of this hot summer, we’re sick of parks and tired of sweating to death…but October? Oh, you sweet, beautiful, melancholy month, how I love you!!!

I used to face the end of October like Grover in the “Monster at the End of This Book.” Hannah’s birthday is on the 30th, so every fall, I’d watch the days change on the calendar, and with every leaf that fell, my heart would break. For five long years, the month of October was crushing…but then, we were given the gift of making new memories, and of filling those painful places with peace and joy and anticipation…I have the greatest gift of having been given beauty for ashes, and for that, I can only sit back and praise God.

October still comes with “suddenlys….” I still have moments where my breath will catch, as a memory comes back, or with different realizations (I think I mentioned in my last blog that I realized out of nowhere that Hannah would be turning 13 this year. I’m still coming to grips with that one). Today, I was scrolling through Instagram when I came across a picture taken at Thee Abbey in Arcadia Valley. The owner had posted a picture of her two children with puppies, and I suddenly remembered that we had been pregnant with our daughters at the same time. She was baking cinnamon rolls in the restaurant, and I was working long hours doing makeup on a film project. We were pregnant at the same time, and there was her beautiful girl, showing up on my social media feed. I doubt they remember me, or that we were pregnant at the same time…Thee Abbey holds a very special place in my heart, for multiple reasons, and we go back there several times a year, but it’s not like we’re friends with the owners or anything. We were just two women with dreams of families, who had very different outcomes from the same seasons in our lives.

It’s in those moments that I still make conscious decisions. Those are the “sink or swim” moments, those “suddenlys.” Do they become a noose or a beacon? Do I drown in the waves? Do I pause, take a breath, and let the tears fall? Oh, my Jesus….how many bottles in Heaven are marked with my name? He knows, because He cares about every tear that’s fallen on this journey and beyond…

Do I rush through the thoughts that hit, ignoring them even as I know they’ll come back to me later, when I finally have some quiet time to process them?

Should I even be affected by these moments anymore?

Those moments…some of those moments are huge, while others are minute, but they do still happen. When they do, it’s a conscious decision to move forward, to pause, or even to fall apart (which doesn’t happen very often, thankfully). There are conscious decisions to remain hopeful and wholehearted, to not become bitter or faithless. Sometimes, I hear other women tell their birth stories, and it gets hard to not be angry or hateful. Sometimes even now, old pieces of things I thought I forgave, as far as my medical care went, come up and I get mad. Two women in line next to me in a resale shop were bragging about how they had their babies out in public at 1-and-2 days old. I said, “Wow, you’re brave.” They laughed and said, “well, that’s how you GOT to do it!” One of them went on her way, but I quietly said to the other, “We lost our first from something very common…I didn’t leave the house with my second, except to go to the doctor, for 6 weeks.” The look on her face said it all–perspective. When other moms look at you like you’re some kind of germ-phobic freak or a helicopter mom, it’s hard not to lash out. There’s a conscious decision that’s made, to either tell the story in kindness, say silent and put up with the awkwardness and feel completely inauthentic, or to tell the story in a way to slap them upside their heads for judging your parenting. I’ve done all of the above, and I’m not proud of that fact.

There are conscious decisions made that people who haven’t walked this road will never understand, and that’s perfectly fine. I refuse to apologize for the fact that I am a woman who has given birth and said “goodbye,” and that this is the season where those memories and dreams are the closest to the surface….

So, like Emma said, we “LIVE for the weekends,” ESPECIALLY in the fall. October is full of everything beautiful…the trees are putting on their finest colors just before they blaze out into their rest, and I want to celebrate every one of them. I want the “basic” life of pumpkins and spice and bonfires. I want my (second-hand) UGGs and my leggings, and I want to jump into every pile of leaves I can find. I’m not a huge fan of corn mazes (I did my first one last week; it was a kids’ version, and it freaked me OUT), but I dig pumpkin patches! We didn’t do that kind of stuff when I was a kid, but we’re sure enjoying them now.

When the second lady in line at the store was talking to me about Hannah, Jericho jumped into the conversation: “I’m a rainbow baby!” I don’t know if she knew what he meant, but I laughed because it was the first time I’ve ever heard him tell a stranger that fact. It kind of blew me away–what does it mean, to grow up, knowing that about yourself? I had a friend chime in on an Instagram post that she was a rainbow baby, and that she loved knowing about what that meant; she said she loved that her parents never hid the truth from her, and that blessed me. I never wanted to keep it from him, but I also never wanted it to be a burden, so we always want to paint his birth as the miracle to us that it truly was. He knows he’s special (maybe a little TOO well, LOL).

We have this chance–we have this GIFT–to LIVE, and to live well. We have this opportunity to seriously carpe diem–to seize the day (can you tell I grew up in the 90’s?)–and to make amazing memories of each season. Jericho is no doubt spoiled. He hates the weekends where we’ve stayed home, and I get it. We don’t stay home on the weekends very often (although to be fair, we don’t go anywhere during the week. Total hermits.), and he expects an adventure. When he doesn’t get it? He’s kind of a punk, and I can say that as his mother. 🙂 And even today, after we drove for 2 hours, did a cool hayride, got lost in a maze, shoveled pizza in our faces in the car, and ate something amazing called a “cinnamon chimney,” he STILL had some bratty moments–he’s 6, and there was a LOT of walking–and I found myself wondering why I try to do cool stuff. Um, kiddo, I’m going to admit that sometimes, I am the one that wants to do the cool stuff, and you’re along for the ride. I want to make these memories with you, so stop whining and smile for the camera (“You will smile for this picture, or SO HELP ME GOD!” #TheStruggleIsReal). I want to make the cool memories, and I want to look back at that awesome photo book that I make at the end of every year, and look at this amazing life that God has given us.

I know that life in pictures is only part of the story…but what a beautiful part of the story it is. I have to laugh–when I was 8, my mom took my sister and I to Disneyworld. There’s a really cute photo album somewhere that shows us in all of our glory in Florida…but do you know what we still laugh about to this day? The fact that my sister and I were absolute MONSTERS on that trip. OHMYGOSH, I can’t–we whined so much, and my mom had to have busted her rear to pay for that trip; we were SUCH punks, I can’t even…AND I AM REMINDED OF THAT TRIP, EVERY TIME I TAKE MY SON TO DO SOMETHING COOL, AND HE WHINES. Like, #KARMA. I have to laugh. We have the pictures, and we have the memories, and oh, what a life we get to experience!!!!

Life is hard. It is–it’s a struggle for so many of us. But we have each day to start over, to make new memories and to make the conscious decisions to breathe, to move forward, to celebrate and to grieve. We have the opportunity to celebrate the sweet and to not become bitter…we have the chance to stop apologizing when we’re doing our best, and to accept the love Jesus offers us. We have the choice to pick grace, and to put one foot in front of the other on this journey, and to help others to do the same. Fall is the season of such incomparable beauty. I hope and pray that you get to embrace it and the changes that come along in it. “LIVE for your weekends,” and if you can, let the dishes wait a bit while you make some memories–and don’t make any apologies for it, dang it. You carpe that diem, dangit, and light up your Instagram feed!!!!

Seriously, though–take every chance you can to enjoy this season. May your “suddenlys” and your fall leaves remind you that you are loved by our Creator who made all of the beauty that you see, just to bring you closer to Him. ❤

We Need to Talk.

We need to talk.

I want to talk.

I want to have a conversation without the sensation of alienation,

To speak words that flow like a river without suspense or pretense or nonsense or

Offense to the thoughts that tempt us like distractions to reactions to words

We didn’t mean

Or maybe we did

But who would know

Because who has the time

To just sit

And

Talk?

I want to talk.

I want to look someone in the eyes without alibis or denials of a need for more than

Survival

I’m

Not

Satisfied

With

The ticking of the clock

I’d like to knock it off of the shelf or send it straight to hell.

The bells that toll the hour are trolls and what I’d really like

Is a good cup of coffee

With a friend

That knows me well enough to know when I’m falling apart but

Laughs at my stupid jokes

Because we all know that laughter is the best

Thing for insanity…

I want to talk.

I’m so tired of feeling like I’m constantly apologizing or capsizing or disguising true intentions

Of verbal apprehensions and the attempts for my redemption…  

So tired of the anxiety; it’s crippling and debilitating but the meds only go so far

And then I’m just left with me

And I’m a mess

But I’ve got prayer for that, right? #Blessed

Because serotonin and dopamine are free and if only I were good enough I’d see that they’re

Out there waiting for me if only I could get enough sleep but I don’t see that happening,

So what I’d really like

Is a good cup of coffee

With a friend

That maybe doesn’t make me talk

But just sits there

And understands that I can’t understand

And tells me I’m going to get through this…

Even when I don’t have the words to say what “this”

Is.

I want to talk.

Because maybe if I write it or verbalize it instead of fighting it, in spite of my confusion my delusions will clear up or clear out & I’ll be up from this place where I’m down for the count

On the upside of the bipolar pendulum no one has ever officially told me I’m on

But I wonder.

 

I need to talk.

But sometimes…

I can’t.

 

Things I’d Say to Myself at 15

I’ve been seeing this thing on Facebook (yes, I still Facebook, although I’m on it a lot less–mostly because I’m sick of seeing the same things. How do I get it to where I can see ALL of my friends’ stuff in my news feed?!?! I swear, technology makes me feel much dumber than I’m actually supposed to be) where people write things they’d say to their 15-year old self. I find it fascinating, introspective, and a bit sad…but it made me curious, as to what I’d say to that girl, so long ago….

WALMART ARCHIVE-0017

Look at that kid. Now, I’m not sure if I’m exactly 15 in this picture…but I remember wearing that shirt in England, and I went to England & France when I was 15, so I’m thinking I’m somewhere close. I think the biggest thing I notice in this picture is how much sharper my collarbones are…how much thinner my face is, and how much bigger my glasses are…I don’t know what’s going on with my hair, but okay…..Those high-waisted jeans aren’t doing me any favors, but that’s a great many pounds ago, and I can get lost in the rabbit hole of sadness, where my weight is concerned…oh, for the days of having a working thyroid!

There are no scars on that neck, nor are there any scars on that body that couldn’t be covered with basic makeup. There are freckles, which haven’t gone anywhere, and there is a tremendous lack of self-confidence that I see in that picture, that has only slightly improved with age.

So, what would I say, to that unconventional girl? There’s a lot that comes to mind…

  1.  You’re going to be okay. Yes, you’re nervous about everything–your hair, the sky, whether or not you’re going to get dress coded for whatever today–yes, life is going to hit you without restraint, but You. Will. Be. Okay. It’s going to take a long time, and you may feel okay one day, but wrecked on another. It’s alright–you’ll be okay.
  2. Love is real, and your wait was worth it all. Since you were 3, you’ve wanted to be a wife and a mama. Even though guys are curiosities at this point (oh, Cass, you think you know SO much), you’re not going to fall in love for a long time. And when you do, it’s going to hurt, and he’s going to let you down. And so will the next guy, and he’ll hurt you even more than the first. You’ll cry; you’ll feel broken and unloved. And you’ll watch your friends grow up and get married, and start families; you’ll feel rejected, and then one day, you’ll realize that, per #1, you’re okay. Jesus has taken His time repairing your heart and restoring your faith. One day, a fateful e-mail opens the door for a lifetime of love and insanity, but it couldn’t happen until you were in the right place, spiritually, and you DO get there. He’s worth it all…Your marriage is tough, but fun; amazing, and sometimes awful, but it’s always worth every step you take with each other. He’s going to drive you crazy, but you can’t imagine your life without him…And he may not remember to say it, but he can’t imagine his life without you, either. Hang on, little girl–those dreams of being a wife and a mama come true.
  3. Your mom loves you. You’re sometimes too similar; you’re sometimes too different, and you don’t always speak the same language. She works hard and she’s tired, and she always loves you. She’s not perfect, and you only hurt yourself when you expect her to be. She’s growing up, too, and everyone learns for a lifetime. Don’t project your own feelings of rejection onto her–that’s not where they’re coming from.
  4. You feel like an outcast, everywhere you go. That doesn’t really go away, and you learn to live with it. You challenge yourself with it, you make yourself talk to strangers and be inviting, just to create your own atmosphere where you feel comfortable. Once you’ve made a habit of forcing yourself to push past the chains of self-rejection, you start to find camaraderie with other weirdos, and you eventually have a solid group of weirdo-friends.
  5. The one person that stays with you, from before you were 15, until today, many years later, is Vinita. Cherish that friendship–don’t ever take it for granted, because no matter how much of a jerk you can be, she will always love you enough to keep you real. Keep that best friend (you just can’t know how much she will mean to you as you grow up. She’s the best).
  6. You have some medical garbage to go through. Pay attention to your body, but don’t be paranoid. Also, advocate for yourself. You’re worth it.
  7. Your body. Cass, you’re growing up in an era that celebrates stick-thin women. Society doesn’t stay there, and it’s amazing, but even now, at 41, I feel physically appalling. I can’t celebrate this body, because it doesn’t look the way I want it too…but it never has, has it? At 15, I looked 21 (and that was a huge problem–carry mace). I felt judged by people that didn’t understand how hard it was to dress curves that arrived far too early…I dealt with men who were inappropriate, and had to stand up for myself early on. I was never “thin,” and I never felt like I had a figure worth admiring, but because I had large breasts early on in life,  people felt like they had to comment on them  (both men and women–it was AWFUL). You may feel like you look the worst, and you’ll struggle with that for a lifetime, but know that you don’t. You’re not the kind of pretty that Hollywood tells you to be, but you’re unique, and you have a great sense of style (but not in THAT picture, LOL). You learn to dress what you have, and you’re pretty good at it. 🙂 (Too good–you have shopping issues. Get It Under Control. The sale will wait).
  8. You have huge dreams. That trip to England, those things you felt the Lord say to you? They don’t happen when you thought they would, and you go through a big portion of your life feeling like God was too disappointed in you, to let you do the “big things.” In fact, you still feel like that sometimes, even at 41. But don’t give up….I haven’t forgotten the prayers said on the wooden floor of an old church in Clacton-On-Sea, Essex…and I haven’t forgotten what He told me. God doesn’t lie; He just doesn’t answer on our schedule. But He’s “not a tame Lion,” and He will have His way…
  9. At 15, you have absolutely no career plans (people might think you do. Lies.). You want to be a writer, and it’s such a slow-burning thing. Your college plans go belly-up in your first semester; your career plans go belly-up after a failed internship your senior year. You literally do not care about what you want to be when you grow up, partially because you’re trusting God, partially because you’re not allowed to go the school you want to go to, and to major in what you want to major in (no Webster, no B.A. in English). Your academic plans get derailed time and time again, and you wind up in health care…where once again, your academic plans get derailed, and you start to think that Master’s degree is never going to happen. It might not. Your career in health care, although unexpected, takes care of your family, and you’ll be surprised that you enjoy it. You still want that Master’s degree, but you get to a point where you’re working to fund your child’s education…even if you’re not so sure you see the point of a degree anymore…You wanted to be a wife and a mom–you get those dreams, and they’re hard-earned. You find joy in those things, in ways you never found in a classroom or in an article. You’re published early on, and you do nothing with it. It sits there on a shelf in a library (it’s a boring book, like, for real–non-profits? BORING) and you find a great deal of joy in editing for others, but your dreams of writing that perfect story haven’t come true…yet…Have hope. Make connections. There’s this thing coming called, “blogging.” Maybe you should get into that. 🙂
  10. Finally, the most important thing I’d say to 15-year old me: Jesus. You’re growing up in the middle of the rebirth of the Charismatic Movement in the Church, and the things you’ll see both in the U.S.A. and abroad are going to create permanent milestones in your life. You’re going to go through multiple crises of faith as you grow up. One thing you never do, though, is wonder whether or not God is real–you always know. Your family, your school, and your church poured into you a solid foundation of faith, and even when the tempest rails, you’re grounded. When you’re shaken, God puts people around you that hold you together….even when you’re destroyed, and you will be, in ways you can’t fathom. You never find the words to tell the Lord exactly how you feel, but He knows. You have so much to be thankful for. There’s a song in your heart that the enemy tries to silence in the harshest of ways, but it carries on, even when you lose your voice. You were made to worship, and you’ll do it for eternity; never let that be dimmed. If you feel like your faith is shaking, reach out and talk to the people around you that love you–they will walk you through it. Get in the Word, and rewire your brain to stop looking at the Bible as a textbook. It’s a lifetime lesson that you’ll work on learning, and it’s hard, but that Word is a Love Letter. No one and nothing will love you or carry you like the Lord. He carries you a LOT, and He never fails. Don’t forget that.

Wow. Looking back at 15-year old me is a bigger trip than I thought it would be. I was a hot mess back then, and I’m a different person now….that’s still a hot mess…

I’m grateful for the journey.

And the improvements in Curl Control. 😉

 

Faith and Finding Your Fabulous with the Fab Five…

Me on Sunday Morning: “God LOVES us!!!  He restores us and He renews us!”

Me on Thursday night: “I AM SO INADEQUATE! I feel pushed in so many different directions! I’m EXHAUSTED!!  This SUCKS!!  Why am I such A TOTAL FAILURE?!?!?!?!?!?!?!?!?!?!?!?!?!?!?!?” Aaaand, cue the sleepless night.

Why do I live in this world of polarities?

So, little-known-fact: I absolutely love the show, “Queer Eye.” Of course, being that I run in mid-American Judeo-Christian circles, I know that this admission may bring some Internet or in-person-based gooey, thick judgeyness, but whatever. I’m not changing my mind.

I’m not going to argue about it. I’m just going to remind you that we’re all made by a God Who loves us & that we are all on our own journey. We don’t have to agree; we DO have to love, and according to 1 Peter 3:15, we have to be respectful. SO, that’s all I have to say, about that (and no, we’re not going to engage about their personal politics. Off the table).

Anyways, I love the show, “Queer Eye.” The biggest takeaway I have from the show is that these 5 men, from 5 totally different walks of life, have each grown into the “simple” act of BECOMING, and they take their subjects along the same route. They’ve each learned to accept themselves, to love themselves (even on days when they’re struggling), and to teach others to do the same. I’m not very good at that, so I love seeing people succeed on that journey.  I started writing this blog yesterday, and then watched another episode on Netflix. Lo and behold, it was the episode featuring those Barbecuing Babes, The Jones Sisters. Every episode makes me tear up, but this one had me Katy-Perry-Ugly-Crying.

I’ve struggled with my weight for the past, oh, I don’t know, TWENTY YEARS? I’ve never accepted my body, whether it was as a 14-year old with gigantic boobs, or as a 41-year old with a gigantic butt (and not in the sexy, Kim-Kardashian way). I’ve struggled with my looks, particularly as multiple surgeries have left some pretty unflattering scars. I oscillate between thinking my face is okay, and “OHMYGODWHYDOISTILLHAVEACNEAND WRINKLES?!?!?”

I can pick apart my personality to an obsessive degree: “You’re stupid. You’re not funny. Your sense of timing is crap. SO many people are smarter than you.  You’re never going to be successful. You’re just support staff. You basically just suck and are wasting your time. Oh, you’re bad at math, you’re a terrible mom, and you’re fat.”

I can DESTROY my faith; I constantly feel like people are judging my output….like, I don’t go to this meeting, or to this church, or I don’t raise my hands enough, or OMG, bad things have happened to me, so God must hate me. Whatever.

I know it’s all lies…but I find myself believing them anyways.

How can I say that we’re all created by a God Who made us in His image, but then have such a deprecating monologue?

How can I say that God restores us and renews us, yet beat myself up continually for my seemingly-perpetual state of exhaustion (it’s not an imagined exhaustion—I literally have Chronic Fatigue Syndrome caused by my thyroidectomy. I don’t think I’ve ever actually written that down before)?

And here comes the guilt from the constant struggle of living in a dichotomy…

I watch the guys on “Queer Eye,” and I follow them on Instagram. They’re a bevy of positivity. I also follow Tess Holliday (founder of the #EffYourBeautyStandards hashtag) and several other body-positive influencers. They’re all younger than me, and way cooler than me, and they’re doing an amazing job of being candid, positive, and strong. They show strength in honesty and in vulnerability, and even though they’re not “religious” influencers, I still find my spirit encouraged by them.

They’re “unconventional.” They’re not from “my” people (you know what I mean—don’t get it twisted. I’m referring to the stereotype of the church-raised, Midwest-born cisgender, straight, suburban/rural mom, and/or one of my previously-blogged-about Great White Women of Hope that I’m supposed to strive to be like…and that I gloriously fail in striving to be like…). They’re POC, or they’re gay, or they’re bi, or they’re EXTREMELY politically liberal, or whatever. They’re all the kind of people that a lot of people I know would love nothing more than to engage in enraged discussions with, and I want nothing to do with that.

I love them.

I love that when they look at someone who looks like me—average height, overweight, struggling—they see something beautiful. They look past what I perceive are flaws, and they find BEAUTY. They bring it out…isn’t that what we’re supposed to do for each other, not only as Christians, but as human Beings?

They’ve taught me to rethink my narrative….to reconsider the self-deprecating “humor.” I only tell fat jokes because in my brain, it’s (I’m) the elephant in the room, so if I just bring it up and make it funny, it’s okay and I’m getting the inevitable out of the way. THAT’S A LIE. Bobby, Tan, Karamo, Antoni, and JVN would NOT hear those words coming out of my mouth!!!!  Karamo would probably stick me in intensive therapy to learn how to see myself better, and how to speak better about myself. He LITERALLY recorded one guy and when the man heard how many times he fat-shamed himself, he was shook. I should try that.

A few years ago, before we got pregnant with our son, I had a conversation with David where I was the most vulnerable I have ever been. I told him that I thought God hated me. I had to come to a place where I could allow myself to trust that no, He actually LOVES me. Jesus LOVES me. I still struggle with it on a daily basis; it’s like I somehow have to un-brainwash myself, and it takes time. I have to push myself out of the thought pattern that, “people only say they love you because they feel  obligated to.” No, Cassidy, there are people out there that truly, deeply love you (um, like your husband? Seriously!?).  I feel like those are words that I need tattooed on my arm, to remind me that I’m not some wretched being. I’m not.

Christianity fails us when it doesn’t teach that Jesus loves us and that we can foster a relationship with God. Too often we sit in churches or classes that teach us that we’re never good enough for anything, and that we have to fit into a certain mold before He’ll accept us. That’s religion. I’m not about that, and neither is God. I’m not going to get all Calvinistic on you, but GRACE IS AWESOME. We are so loved, and our Father wants to know us. He wants us to know Him, and life is about that process–it’s about building that relationship between Him and us, not about us thinking we’ll never measure up, we suck, etc., He never says that. He gives grace, He loves us in ways we can’t understand, and He knows our hearts. When we build that relationship with him, it pours over into every facet of how we view ourselves and how we treat other people. It’s gorgeous!!

Why have I allowed erroneous, religious, self-flagellating theology to make me think that it’s a bad thing, to look in the mirror and be satisfied with what I see? Fat, scars, acne, wrinkles—it’s all part of my story, even the parts that aren’t pretty, so why can’t I look at this whole package and be thankful that I’m still here? For women in particular, I think we’ve been brainwashed into believing that negative self-talk is a requirement, and that we have to trust in other people to validate us in order for us to count. What a crock, right?!?

It’s hard for me to look in a mirror and like what I see. Is it arrogant? Is it foolish? Sure, I will take a selfie (thanks, Cousin Lisa, for that lesson in angles so many years ago!) if I feel like I look less-Princess-Fiona-ish or if I like my outfit. I think I’ve learned from the Instagram influencers that I follow that it’s good to documkermitent your journey, even if it doesn’t get you any clicks. As a mom, it’s hard for me to remember sometimes to snap that picture; however, I think of how I feel about pictures of MY mom when she was my age, and I want to recreate those feelings for my son. “Hey, Rico! Here’s your Mama feeling herself in that Kermit shirt!!!!! “ LOL!  Seriously, though—Maybe my mom didn’t feel like she was beautiful in every picture that I have of her, but I definitely think she was and is. I’m glad I have every picture of her that I have. David taught me the value of a photograph, and I respect photography as a method of journaling. Sometimes a selfie is just that—it’s a diary entry that happens to be public…kinda like a blog.

I’m learning to accept myself and the skin that I’m in. I’m learning that less is more….That I don’t “need” more to fill the void; I just need to redirect my focus on positive thoughts and on uplifting my spirit to fill the void. In Philippians 4, Paul talks about being content both with and without…I think that verse, and the other verses in the link, are verses that I/we could read every day just to teach us how to not only be grateful to God, but also how to love and respect where we are in life, be it how we look, where we work, or whatever our “station” is. I have to learn to love where I am and who I am, right now, before I can improve.

Part of that, for me, includes deluging my brain with positivity….Not positivity for the sake of lying to myself….more like, positivity for the sake of keeping my sanity and of finding my worth, and for the sake of the actual truth.  The Fab Five are SO positive, watching them make life-changing decisions and re-wire stuck mental concepts for internal success, has been good for my soul. It’s one thing to know you need to reboot your outlook…it’s another thing to actually watch it happen, and to learn how you can do it for yourself.

It makes me stop and think, and it makes me grateful to know the God Who created me with Love. Honestly, it makes me want to build that relationship with Him even more.

There’s a beautiful thing that happens in every episode of “Queer Eye,” where you see the subject look at themselves in the mirror, and you see them “snap.” It’s like someone takes the blinders off of their eyes and their minds; they realize, whether it’s because of Karamo’s life-goals; JVN’s hairography; Tan’s closet overhaul; Antoni’s food love; or Bobby’s renovation (seriously, he works THE HARDEST, and he’s my favorite); they realize that THEY’RE WORTH IT. They’re worth self-care! They’re worth having an organized household! They’re worth eating good, quality food! They’re worth LOVING!!!!!!! It’s like no one ever told them these things, or if they were told, they forgot!!!

The Fab Five REMIND them of who they TRULY are, and I think that’s an important spiritual truth.

I need to be reminded of Who I Am.

There’s a scene in Moana where she is facing the fire demon/god on the island, and she has to replace the Heart of Te Fiti. Moana has a SNAP moment where she realizes that the Fire Demon/god IS Te Fiti, but she’s completely forgotten it over time, and has resigned herself to being this horrible, terrifying being.

She bravely takes the Heart stone, and walks up to the scary monster….She sings the lines, “This is not who you are; I know who you are,” and she puts the heart back in its rightful place. SPOILER ALERT: The monster turns into Te Fiti, and the land is beautiful and fertile once again.

To me, it’s one of the single most spiritual moments I have ever seen in a film (and I’ve probably blogged about it before). You’ve been broken and burned; you’ve lost your heart and your way, and you don’t even realize it. Someone believes in you…someone sees you for who you truly are…and your heart is restored and healed. It’s what Jesus does for us on every possible level. He knows Who We Are…and He knows WHO HE MADE US TO BE.

I firmly believe that God uses unconventional methods to minister to our hearts. For me, it’s watching 5 guys give makeovers in rural America….5 men who see beautiful hearts in everyone they meet, and who just wants to help them live their absolute best life…5 men who know that human beings are WORTH fostering and loving, regardless of their appearances….5 guys who have faced their own journeys, failures, and successes, and who are on a mission to leave blessings and positivity everywhere they go.

I NEED THAT KIND OF LOVE IN MY LIFE, Y’ALL!!!!  Confidence in abilities, goals and achievements, having someone else not only see something in you, but having the ability to help you bring it out—isn’t that what we’re supposed to do for each other?!?  I need to do that for people! I need it for myself! Jesus says I’m worth something, and so are you…even if we just say the words to ourselves, it’s positivity we can speak into ourselves. Negative self-talk is so easy, and I know I feel stupid if I say, “Dang it, YOU’RE WORTH IT!” (Shout-out to Stuart Smalley!)! But I/we need to!

We can speak Bible verses aloud to ourselves about how much God loves us. We can literally write down things that we like about ourselves in order to offset those negative attacks of the Enemy. We can share those verses with people around us that are struggling, and we can help others, and ourselves, find our SNAP moment where we catch a glimpse of how HE sees us…how Jesus sees us….

So, thank you,  Queer Eye….Thank you for being a reminder that regardless of what I think I see, there is so much more, and that there is more than enough to bridge the gap between Sunday and Thursday night. Thank you for being one more thing in this world to point me back to the love and the value that God pours over us.

There’s nothing more fabulous than that. ❤

qe

P.S. (This is where I fan-girl out): IF I WERE TO EVER get the chance to meet them, I might die–and yes, I am a 41-year old grown woman. Also, my husband is dying to know how Tan does his hair. Also, I want to hug Antoni and Bobby in particular and tell them I’m sorry on behalf of every Christian that hurt their beautiful giant hearts, because that’s not what we’re supposed to be about. Also, I want Karamo to know his mental revolution of the guy that got married in the 3rd season WRECKED ME & was better than most sermons I’ve sat through. Finally, I want JVN to know that I would NEVER IN A MILLION YEARS enter into a political debate with him, because sister knows her stuff–JVN would DESTROY me. Even though we disagree on some things, I just like to hear him talk, because to hear someone of any side of a debate intelligently explain their position is like gold these days, and I am here for ALL of it.

Y’all got me writing with bad grammar. I’m shook. That is all. ❤

Cardiology Update!!!!

So, for any of y’all that don’t know, back in 2006, I delivered my daughter Hannah via emergency C-section due to severe preeclampsia.

Long story short, my physician was a third-generation OB/GYN who had basically written off my complaints of being short of breath during my second and third trimester. My daughter was delivered at 34 weeks, and the preeclampsia was “supposed” to resolve…except it got worse. I wound up in full congestive heart failure due to peripartum cardiomyopathy and pulmonary hypertension. My left ventricle blew up like a balloon–it was 3x the size of the rest of my heart, and my lungs were full of fluid. In the first night after my diagnosis, if I remember correctly, they removed 30 pounds of fluid from my body that I had retained. Dealing with that, post C-section? Not cool.

As most of you know, my daughter passed away at 29 days of age, due to Late-Onset Group B Strep and bacterial meningitis. Her cause of death was not due to my heart failure-it was a completely unrelated issue. We were told for years that due to the extent of the damage my heart had gone through, that we should never have another child….but we did not believe them. Cardiologist after cardiologist refused to see me as a patient, until Dr. Michael Paul, perinatologist at Mo-Bap, referred me to Dr. Robert Kopitsky, who did the right tests and discovered that miraculously, my heart had recovered to running at 50-55%, which was completely normal! I had no scarring, no permanent damage, and I was cleared to get pregnant with my son. It was the best news I’d ever heard!

Through my pregnancy with Jericho, my heart was closely monitored, and I was admitted to Mo-Bap at 32 weeks along. At that point, my cardiac function was already less than 30%. It continued to decline, and the decision was made to deliver early once again. I had excellent care, and my miracle baby was born! My heart was still an issue, and remained closely monitored & medicated for the next few years.

In 2016, I had an echocardiogram performed, and my cardiologist (I’d had to find a new doctor due to insurance changes) put my estimated cardiac function at 40-45%. That’s not bad, but it’s not normal; however, my cardiologist said it was acceptable and to be happy with it, “because you’re stuck there. I don’t think you’ll see those numbers improve.'”

And you know what? I was happy with that. I mean, c’mon, I almost died–twice! I’m happy with what I can get!!!! I took my regular meds and considered myself blessed!

Last month, my new PCP said it was time to check on my heart again. I’ve had some issues with stress, headaches, and back pain, so she wanted to rule anything out. My cardiologist agreed, so last week, I went in for a new echo. I got the phone call from his nurse today, as I was getting ready to leave my office.

MY HEART FUNCTION IS AT 60%!!!!!!!!!!!!!!!!!!!!!!!!!!

I’m completely floored–the nurse said, “We just don’t see that. We don’t see those numbers with people with your history. Someone is looking out for you, for sure.” HA!!!!! Ya’ THINK?!?!?!?

My mind is blown. Like, I wasn’t even praying about it–I just accepted 40-45% and went on my way. Subconsciously, I think I was writing off even trying to exercise or anything, because why bother if I’m “stuck?” I come from a long family history of crappy hearts, so I just took it for granted that this is my life.

BUT IT’S NOT.

God takes over and answers prayers when we don’t even ask. He works miracles that we don’t expect or anticipate. David & I are in this season of struggle, where things have been extremely stressful. Yet in this, over and over again, I keep seeing little things, and big things, and random things, that remind me that God is watching. He is PRESENT. He meets needs we didn’t even know that we had. He loves us, He works in our lives unexpectedly, AND HE STILL WORKS MIRACLES!!!

Spiritually, mentally, and now physically (multiple times!), my heart has been broken and repaired in miraculous ways. I know it may sound dramatic to say, but I will shout this testimony from the ROOFTOPS, y’all, because I know my God is in the business of healing hearts.

“My heart overflows with a good theme; I address my verses to the King! My tongue is the pen of a ready writer. You are fairer than the sons of men; Grace is poured upon Your lips; Therefore, God has blessed You forever.”–Ps. 45:1-2, NASB

The Inconvenience of Healthcare AKA, Making a Big Deal out of Nothing At All

*Never doubt my love of Air Supply.
**Back Story: If you’re new to the blog, I was diagnosed with metastatic thyroid cancer in 2015. I had a tumor that wrapped around my throat and went into my mediastinum; the cancer broke through the capsule of the tumor and went into my lymph nodes. I had a total thyroidectomy (TT) in 2015, and have been on thyroid replacement hormones (TRH) since then (Armour Thyroid). After firing my first set of doctors (oncology, ENT, and endocrinologist–the oncologist didn’t want to see me back for any follow-up care for a year, which my PCP didn’t appreciate; the surgeon became out of my insurance network; the endocrinologist miscommunicated a medication dosage to her staff, and almost killed me), I wound up switching all of my cancer-related care to Barnes Jewish Hospital’s Siteman Cancer Center, where I’ve remained since 2016.
Surgeon: “You need to visit the oncologist for updated testing; it’s been 2 years, so you’re due.”
Oncology Nurse: “Please come in for a consultation!”
Me: Has a day off, arranges schedule accordingly (I work 40 hours a week, and have a 45-minute commute each way. I stay busy. For this appointment, I was going to have my son with me, but whatever–we’d make it work).
Oncology Nurse (2 days before the scheduled consultation): “Oh, no, we don’t want to see you for a consultation until you get all of these tests, which will take an entire week to accomplish. Let’s get this scheduled.” This testing involves 2 days of injections, plus one day of radiation (tracer dose), plus 1 day off (because I can’t be around pregnant people), and then a day of labs and a full-body scan….which didn’t work on me, the last time I did it, and I wound up having to have a very expensive PET scan….so I was trepidatious, to say the least.
Me: Arranges appropriate time off of work; arranges childcare. Gets everything scheduled and gets everything approved through office (which couldn’t come at a worse time, given my current workload). Gets emotionally prepared to be a pincushion for a week. Informs family of process to come, and struggles with ensuing anxiety.
Oncology Nurse: “Oh, no, wait, we don’t want to do any of this testing until we have a consultation scheduled.”
Me: “ARE YOU KIDDING ME?!?!?!?!?!?!?” LOSES MY TEMPER on highly-degreed individuals who have obviously forgotten that I AM A HUMAN, and I am more than the stupid disease that has been hanging over my head for 3 years!!!!! “Could you NOT have decided to do the consultation first, like we ORIGINALLY SCHEDULED, before putting me through all of the hassle to put a very busy life on hold for a week? Could you maybe have REVIEWED A CHART and a medical history, and REMEMBERED a few key details?!?!?! Who decided this?!?  Who decided to do one thing, then another, and then the first thing, after I already rearranged my life?!?!?! The Nurse Practitioner? Can I speak to her?!?!?!” She takes a message, and says the NP will call me back.
Me (super-mad): Calls surgeon who sent me back to oncology in the first place; gets favorite nurse on the phone. “Lisa? Can you help me? Can you talk to them and figure out the why in what the heck they’re doing, since your MD sent me back to that office in the first place?!?!?” She agrees to call them; she was out of the office when I was told to make the oncology appointment, and she’s aggravated that the MD forgot to explain everything to her. She’s been amazing. She can’t help what happens next.
Oncology Nurse Practitioner (now I’ve moved up the chain of command; my phone was IN MY HAND and went to voicemail, and this is what I got): “Mrs. Cooley, the insurance company won’t cover any of the testing until you’ve had a consultation.”
THEN WHY DID THEY CANCEL THE ONE I HAD SCHEDULED IN THE FIRST PLACE!!!!!!!!!!!
I am so sick and tired of the medical BS that doctors put people through, because somehow, in all of this, they forget that we are individuals who put our actual lives on hold to deal with these things that come from out of nowhere to sideline us and our families!!!!! It’s been 12 hours since my conversation with oncology, and I’m STILL mad. It’s an endless cycle of bad communication, and it’s a small wonder that insurance companies are now basically practicing medicine without licenses in order to dictate the course of care/medical authorizations. IF THE DOCTORS THAT ARE RESPONSIBLE FOR THE CARE THAT AFFECTS THE QUALITY OF OUR LIFE CANNOT EFFECTIVELY COMMUNICATE WITH EITHER THEMSELVES OR WITH THEIR PATIENTS, what hope do we have for our medical well-being?!?!
CRO_Health_CROH_May_Doctor_Office_Confusion_03-15
I don’t think it’s too much to ask, for a doctor to review at the very least, a list of the patient’s diagnoses before they walk into a room for a consultation or order a test…but guess what? They’re so over-scheduled that they don’t have time. BUT, they’re so over-scheduled, because the insurance contracts reduce their allowed amounts to the point that in spite of popular opinion, doctors and hospitals generally make just enough money to make a profit, or even to barely meet costs. My orthopedic surgeon–you know, the woman who was responsible for cutting my feet open and rearranging the tendons so that I could relearn how to walk properly–was allowed maybe 10 minutes for each visit (actually, I think it was 4 minutes) by her overseeing medical group. 4-10 minutes, to make sure that surgery is necessary, that 4″ of incisions are healing properly (mine didn’t), to decide what steps need to be taken–she has 4-10 minutes to make decisions that will affect me for the rest of my life. Me, and the 50-90 other patients that she’ll see in a day.  Fortunately for me, my ortho was AMAZING, and her staff was phenomenal….not every MD is as dedicated, and not every MD can handle the workload they’re assigned (patients, documentation, insurance reviews–it’s more than the average patient understands).
ARE THEY KIDDING US?!?!?!? Are they kidding the doctors? They didn’t sign up for this; they signed up to help people, not to treat them like a cattle call.
But there they are, making decisions, saving lives, and leaving a trail of confusion and frustration in their wake…
At this point, I’m not sure what’s more frustrating—the doctors, the insurance companies, or the diseases that exist in the first place.
I was whining on the phone to my mother last night (God love her, for listening to me), and she pointed out (very gently) that since my thyroid was ripped out, my ability to process my emotions has been greatly affected. I detest admitting that she is correct, but it’s true. I struggle with being angrier when I’m mad, with being deeply depressed when I’m sad. There’s no happy medium with my emotions, and it makes things much more difficult. There are times when I’ve wondered if I’m straight-up bipolar, or on the spectrum, or if I’m just permanently screwed up from all of this. Maybe it’s PTSD on steroids, or maybe I’m just a terrible person. I don’t think it’s normal for people to stew on things like I do, or to have the internal (and sometimes external) monologues that I have to sort things out. I don’t want to admit that I’ve changed, but it’s true: I’m different.
I don’t know if I’m more honest, or if I’m just, frankly, more of a bitch. I don’t know if I’m more unfiltered (because I don’t have the patience to wrap things in snowflakes for the general public), or if the more choleric side to my personality has somehow mutated, but what I do know is that I am sick and tired of the hamster-wheel that a chronic illness put me on.
index
I like people less. I have less patience for people. I like the fact that I sit in an office by myself, because I don’t think I can deal with the anxiety and stress that dealing with the public puts me through. I don’t like getting out of my familiar, and I don’t want to do it. When doctors lay out a course of treatment or protocol, I will latch onto that, and Type-A get it scheduled, and God-help-you if you get in the way of MY PLAN.
On the plus side, since my whole cancer debacle, at least you know when you ask me a question, you will get the whole truth, and nothing but the truth, once I’ve warmed up to you and feel like I can trust you with the unfiltered version of me. That takes a while–I’m not as easy of a person to get to know as one would think at first.
I think the thing I’m the angriest about is that I have an incredible amount of anxiety any time I have to deal with the oncology department. I can’t explain it or make it go away; just knowing I have to go back there seems to undo me, and I had just gotten it into my brain that this was actually happening again. Surely I am not the only person in the world who deals with this?!?!?  I had just made peace with it all, and had made my plans accordingly; as aforementioned, I do NOT like it when my PLAN gets messed up or taken out of order, LOL. That’s not doing me any favors in motherhood, let me tell ya’. Am I crazy for being this aggravated about this one instance of medical miscommunication?!? Or should we all get this mad, and maybe make something happen from it?
I know the “right” things to say, here: “God has a plan.” “This will all get worked out.” “Trust Him with your anger.” “Be angry, but don’t sin (stop swearing!).” “Stop ranting (that’s part of my monologue-ing)”. “It’s still the good kind of cancer, right? Be grateful!” Blahbaty-blah-blah. And yes, I’m praying about it..sort of. It’s one of those throw-up-your-hands-and-yell/pray kind of prayers. 🙂 I do that a lot lately.
Healthcare in this country has got to get figured out. I consider myself to be a pretty informed patient after almost 20 years of working in this industry, and if this kind of confusion in healthcare is “normal,” WHAT IN THE WORLD is going on? What have we come to?!? And what are we paying for?!?!?!?!?

Annual Title IX Training, AKA, Where Bible College Failed

I work for a University. It’s not hard to figure out which one; I draw very little attention to where I work, because, DUH, public forum. I like where I work. It’s a very different world from where I grew up, and how I grew up; it’s a very different way of functioning from what I’m used to, and I’m very grateful that I have the opportunity to be here. It’s time for our Annual Title IX Training, and I have a few things to get out of my system…

I grew up in a small town (no stoplights!), and I graduated from a small, private school (in a class of 6 people, I was the valedictorian!). When I went to college, I went to my third- or fourth-string pick of a Bible college in Florissant, Missouri, not too far from where I’m currently employed.

I still don’t know why I wound up there. Honestly, it was down to the wire to make a college decision, and my choice of a school in Tennessee was firmly shot down, as was my choice of a school in Webster Groves, so here I was, in this tiny, little Bible college at 17, feeling out of place and completely on my own.

I grew up in a charismatic church, and was partially sold on my Bible college by a man who told me the school was “non-denominational.” This was, in fact, technically true…but not practically true. Sure, there wasn’t a governing body or a synod, but the Bible college was full of people from what’s called the Independent Christian Church, which I was unfamiliar with.  The basic theology was the same amongst 70-80% of my peers and professors, which was fine at first, but the longer I was there, the more it rankled me. Even as I went on to represent the school for over 3 years in various events and committees, the cracks in the foundation became wide-spread faults, and by the time my academic career ended with the school, I was in counseling as a devastated, spiritually-void trainwreck.

I was a shell of who I’d been just 4 years earlier.

As a freshman, I’d been excited to learn new things, and try out new clubs, meet new friends, and start a life outside of Franklin County. I sang, I taught Sunday School, I received decent grades, and even though I lost 1 scholarship my freshman year, I made up for it with 4 different scholarships over the next 3 years. I pushed myself harder than I should have; I got sick more often than I should have. I made terrible financial decisions, and I brought a lot–A LOT–of hard times upon myself…but not all them came by my own hand.

I loved (love) Jesus, and I wanted to serve Him. I wanted to reach out to people, to work with teenagers and junior-highers, and to eventually parlay that into a writing career. I didn’t really have a career trajectory, but I knew I wanted to work in the public speaking circuit. More than anything I knew I wanted to be a wife and a mother, which really played to the whole, “get your MRS. Degree” stereotype that every woman heard as she went through Bible college. None of us, of course, could ever hope to make it in ministry without a husband, didn’t you know that?

So, I got a boyfriend.

That was a mistake.

Between the emotional intensity of being 18-19, the lack of maturity, and the understanding that as a woman, I was automatically an inferior being, I was not prepared for the level of temptation that came with autonomous free time and a boyfriend at that age. I made some bad decisions. When I tried to rectify those decisions, my right to decide was taken away from me, and after that point, I knew God didn’t want me anymore.

I didn’t want me, either.

Wouldn’t you think that in a Bible college, a woman would have solace in knowing there would be someone she could identify with? Someone she could talk to, someone she could pray with? Doesn’t God have forgiveness and healing for all of us, not just for men? Nope.

I had no one, and I was nothing.

Although I never came forward with my story, I knew of 2 other girls that had similar situations happen with a guy. One actually had the bravery to come forward, and the shame she endured from leadership is TEXTBOOK for what NOT to do. Since my college years at that “fine” establishment, I know of a professor who was terminated because he dared to speak up about the inappropriateness and lack of proper reporting amongst students and faculty, and has basically been blacklisted because of his willingness to take on the topic. I know of at least 10 other people, men and women, who have endured sexual inappropriateness and harassment at this same institution, yet the school itself refuses to acknowledge any incorrect behaviors, responses, or situations that have repeatedly been reported to them, and has in fact taken great pains to silence them. Taking the time-tested path to “sweep things under the rug” seems to be their modus operandi; I’m assuming their Bible takes Luke 8:17 and chucks it right out the window.

There is something to be said for the simple acknowledgement that a wrong has occurred. There is something to be said for the basic acceptance that “bad things have happened,” and “we failed to respond, we failed to acknowledge, and we failed to provide a place of healing in an institution based on the very grace of a loving God.” 

The level of sexual harassment I endured on campus over the course of 4 years would not be tolerated today. I know this, because I’m current on my Annual Title IX Training (which, at last check, my alma mater does not require…but they sure do appreciate those government dollars for student loans and grants, don’t they?). It was common for women to be shamed for ANY kind of dress, thought or words deemed to be sexual, but for the guys? It was practically honored. The girls were actually subjected to an entire evening of “well, we’ve heard rumors of sexual activity,” that was nothing more than an attempt to get us to rat out our friends, and an overwhelming reminder that impure thoughts and behaviors meant that we were unlovable and terrible human beings. We were shamed for even THINKING about sex, and if we’d already had it?!? OMG, we may as well surrender any thoughts, hopes, or dreams we could ever have, because we were “Damaged Goods.” It was purity at the cost of hope, and more than a few of us lost both.

So much for being a “place of healing.”

I’ve been working on a series of blogs this summer about the “Pesky Umbrella Graphic” which firmly places women at the bottom of the totem pole of the Good Christian Family. My goal is to redefine this graphic, and place men and women in the roles God designed. I have one blog left to write, about the Role of a Woman in the Church, and it’s been simmering. I believe this blog had to come first–I had to get this out of my system, because for me, my role as a woman was never so undermined as it was over the course of 4 years in Bible college. It took 4 years to wreck who I was as a person, as a Christian, and as a woman; it took 13 years to heal, to hope, and to have a clearer understanding that as a woman, Jesus loves me, He understands me, and He sees me as relevant, with all of my hormones, emotions, and crazy detours that paint anything but the “perfect” Christian life.

My Annual Title IX Training is often referred to (by me) as our Annual “Don’t Be a Terrible Human Being” Training. I think we take it for granted that people understand that sexual inappropriateness of any kind is wrong, but we have people in national leadership and in Christian leadership that consistently prove us to be incorrect. People don’t understand inappropriate sexual behavior. Now, I could launch a diatribe on how the media takes a turn on this; how the rampant rise and access to pornography takes a turn on this, and how being scientifically reduced to molecular accidents takes a turn on this, but that’s an entirely other conversation. The reality is that EVERYONE needs annual training on abuse, discrimination, sexual inappropriateness and how to report it, how to respond to it, and how to understand that IT’S NOT OKAY.

It’s not okay for “no” to mean anything other than, “no.”

It’s not okay to make the “joke” or the inference.

It’s not okay to make women feel inferior. It’s not okay to discriminate against anyone, and it’s not okay to make someone feel differently or to be robbed of opportunities because of their gender, religion, skin color, race, or orientation.

Your (My) Christianity does not give you a “Get out of Jail Free” or a “Bypass” card. Your (MY) Christianity does not give you the right to play judge or jury to that person who comes to you, or to that person that is reporting an issue.

Your (MY) Christianity requires that you treat people with honor, integrity, and respect. ALLLLLL of these verses tell us how to treat people. NONE of these verses tell us to shame someone or to throw a blanket over bad things and act like they didn’t happen.

Above all, your (MY) Christianity tells us that our Father is close to the brokenhearted…that He is a strong tower, that He is a refuge, and that HE LOVES US.

For me, Bible college should have been a place of spiritual growth and encouragement. Instead, it became a place of private shame and hopelessness, and to be honest, I do not look back on a most of those years with fondness (although I’m grateful for the relationships with friends that I still maintain). Bible college was where I learned how to pretend that everything was fine, even as it was falling apart. It was where I learned to speak fluent “Christianese,” and where I learned that Jesus was not big enough to love me through my darkest days.

In the years that followed, I went through an intensive breaking process of learning to be very, very real in my relationship with God . It’s an ongoing process, and one I think I’ll always work on. I also went through a healing process that involved counseling (the first of several encounters with counseling that I’ve been through) with a pastor who was AMAZING. He restored my faith in church leadership and in the compassion of Jesus, and I’ll never forget him. I was directed to him by a professor at my Bible college, who was overseeing an internship that ended halfway through–it almost cost me my college degree, but that’s another story. Either way, between that professor and that pastor, they saved my life physically and spiritually, and they became the light at the end of the Bible college tunnel. They had the concept RIGHT–Biblical counsel and healing, and GRACE over shame–and they were a blessing. I’m still grateful. They showed me there could be good, kind men in Christian leadership, and I needed that hope restored. T

I know this is a lot; I know I’ve written a lot more than I intended, but the Annual Title IX Training has “bothered” me for the past 7 years that I’ve been required to take it. Where was this training when I was in college? Would it have saved me, or saved the 10 or more other people that I know of? Would it have saved our professor, who gave up his career in order to speak a truth that no one wanted to listen to? Would it have saved the others who never told their stories?

I don’t know.

I’m not upset that I “have” to take this training. I’m not upset that we’re creating a Culture of Compliance over a Climate of Fear or a Climate of Shame or a Culture of Arrogant Ignorance. The more Christians that stop thinking they’re above all of this stuff, and instead choose to engage the fact that we’re all sinners, we all struggle, and we all need grace, the less stories we’ll hear about places like Willow Creek, or the Catholic Church issues (which could be in ANY church), or whatever. The second we think we’re immune is the second we fall…it’s time that we all acknowledge our weaknesses, that we train to be aware of situations, and that we as Christians provide a place of healing and of hope, particularly in our areas of educational institutions for children and adults of all ages.

***Edit: I’ve had a few remarks on my Facebook post on this blog, and I just want to say that college was a long, long, LOOOOOONNNNNNG time ago. What I thought was the hardest time in my life was a cakewalk compared to losing my daughter, so I’m looking back at those experiences through completely different lenses. In fact, the breaking/building process I went through after college laid the grounds for a solid foundation for that very journey. It was an entirely different breaking/building process, but the foundation was tried and true. 🙂 My entire point in bringing up those years is to draw attention to the lack of care and the lack of change that’s been seen in places of so-called Christian education. NOTHING has changed–NOTHING. That’s wrong. Secular universities like the one I am employed by have moved farther and higher than religious institutions, and that boggles my mind. I’m not a broken or hurting college kid, anymore. I’m a grown woman, I know who I am in Christ, and I BELIEVE with all of my heart that the Church is failing in the areas of training their leadership to guard their sheep. I will definitely admit to being angry…Every time another story comes across my Facebook page where another person in ministry has hurt or abused someone, I’m reminded of how far we have to go in the journey to educate Church leadership, to educate those in places of Christian education, and to educate ourselves how to be wise and to be aware…I’m reminded that shame never helped a soul, and that the basis of our very faith is gentleness, respect, and love. We have a long, long way to go…and we are all–not just me, and not just you–responsible to make the necessary changes.

“Out of the mouths of babes….”

You guys, God blew up my brain this morning. Like, He shattered me in the best of ways…..I know that sounds crazy, but hear me out:

In the morning, I have about a 45-minute commute. I like quiet in the mornings. My drive is usually where I try to get focused, I pray, and I listen. This morning, I had just finished praying the intro (LOL–by “the intro,” I mean the Lord’s Prayer. I start every day with that. Long story. Good enough for Jesus, good enough for me.) and I was thinking about my son. I was thinking about how he’s said a couple of times lately that he wants to be baptized. Now, he’s 5–I’m pretty sure he’s not ready yet, but it’s on the table. I was 9 when I became a Christian and was water-baptized, so I firmly believe that kids can know what they’re doing.

We pray with him every night. I want my son to know that God is real, that He is listening, and that we don’t have to fake anything with Him. Jericho’s prayers are really, really cute, and I believe that he prays with intention. David has been AMAZING at working with him on Bible verses (I highly recommend Pixie Paper on Amazon; we purchased superhero-themed prints with Bible verses on them, and Jericho’s been learning them since he was 3. “Green Lantern verse!” “Your Word is a lamp unto my feet and a light onto my path!” “Captain America verse!” “Jesus is the Captain of my Salvation!”), and he’s been learning them at school. Image result for jesus is the captain of my salvation

Watching a child develop their own faith is fascinating.

As parents, we have to be careful of a trap that I have found myself in: Don’t disregard the strength of their prayers because they’re cute.

I was driving into work, thinking about how Jericho had jumped at the opportunity to pray over my family’s Father’s Day meal. It was a simple prayer, full of thanksgiving, and one I really didn’t put much stock into, because let’s face it: I have a really cute kid, and it’s cute when kids pray.

I was, of course, happy that he WANTED to pray (my mother was verklempt, LOL), but I didn’t really think too much more of it beyond the general pride I felt that MY KID PRAYS. Outside of that, it was adorable, and we go on with our day.

Image result for verklempt meme

God feels differently.

I felt Him whisper to me this morning as I merged onto 270: “His prayers are REAL.”

My brain exploded like a firework. If I could have stopped my car and pulled over, I would have.

He kept going–it all rushed in: “His prayers are real, his heart is pure, and I AM LISTENING. All of Heaven is listening when a kid prays. His prayers have stock in them, just as yours do. Age doesn’t matter. I listen. Nothing he says is in vain; all of Heaven takes note. It’s written down. Jericho’s prayers are HEARD.”

So much for my mascara this morning.

How dare I sit back and write them off as a novelty?!?!?!?!?!?

The prayers of our children are heard in the heavenlies!!!!!!!!!!

I came into work, and turned on Bethel worship from a few Sundays ago. I picked it based on the screenshot of the worship leader, who I hadn’t heard before (Sean Feucht), and Pastor Bill Johnson was doing the intro. What he said made me stop in my tracks, and open up this blog to write all of this down:

Psalms 8:2:
Through the praise of children and infants you have established a stronghold against your enemies, to silence the foe and the avenger. (NIV)

Mr. Johnson went on to read a paraphrase of a few more verses of the chapter (hit the video at the 4:32 marker):

“You have built a stronghold, a dwelling place of strength, from the songs of babies. YOU HAVE BUILT A FORTRESS FROM THE SONGS OF BABIES!!!!!!!!!!!!  Strength rises up from a chorus of babies. This kind of praise has the power to shut Satan’s mouth. Childlike worship will silence the madness of those that oppose you.”

I have never, EVER read this verse like this. I’ve never seriously considered the power or strength of the prayers of a child. I’ve said, “oh, sure, that’s adorable, it’s good to teach kids to pray,” etc., but it’s never impacted me like it has this morning. Between what God whispered in my ear on my commute, and a different interpretation/paraphrase of a verse I’ve heard 1,000 times, my world is rocked this morning, and I am renewed in my prayers of gratitude for my son in my life. That boy is a gift and a blessing who has taught me more about God than in almost any other time in my life. He keeps me reliant on the Lord, and he keeps me committed to renew my faith every single day. Today is just one more example of the lessons God has taught me through Jericho…

You guys, how amazing, that the Creator of the universe stops in His tracks to hear the prayers of a child…that the prayers of the least of these matter to our Savior. Our prayers are never just a novelty act; He never writes them off because we’re who we are. He’s listening, and He’s not just listening–He’s looking forward to our conversations. He’s engaged with us as His Beloved. Jesus truly loves us so much more than we can know, and it’s a joy to belong to Him…it’s a joy to get to parent with the influence of His kindness…it’s a joy to be loved by Him…