Wallpaper Christianity…

I’ve been so focused on the new job that I’ve felt like my brain has left me zero room to process emotions–does that make sense? I’ve been struggling with feeling like God is near (is He? I mean, of course He is, but He’s hard to hear when the world is so loud & obnoxious), in the middle of trying to get thru the day-to-day…
But He finds ways & places to capture our hearts, sometimes when we least expect it, & emotions, like water, WILL make their way thru.
Sitting at Hannah’s grave hurt today… it hurt in a way that it hasn’t in a long time. 💔 

Maybe it’s the season–after all, her birthday was October 30th, & November 28th is the date of her death. Maybe it’s the fact that this time of the year, I feel pulled in more directions than are humanly possible to reach. Maybe it’s that time is flying by, & I get this “hitch” in the center of my chest every time my son outgrows another piece of clothing…

I sat at her grave, putting up her Christmas tree, & as I was making things “just so,” I felt God say, “Wait. Take a breath–you need to process this.” David & Jericho were in the car–they could wait. I sat there & looked at the beautiful hills…15 years. 15 years of memories, of decorations come and gone…15 years of tears, of occasional stoicism or anger, many years of finding, losing, and re-finding peace in the unknowing….even peace in the non-understanding…and still, 15 years of unanswered questions…

I still find myself asking if it will ever make sense…and I still find myself leaning back on Him, knowing that He is still there to catch me. He is in the unknowing, even when He is all we know.

You know, people have gotten really crazy with what I call “wallpaper Christianity.” I can’t do the whole, “live, laugh, love” thing on my wall…I have a Cricut, & I’m pretty sure David’s biggest concern when he bought it was that I’d plaster the house with all of that, “this is us” crap, LOL, but he needn’t worry…usually….But the other day, I saw a sign on Facebook that I’m going to have to duplicate. It said, “I still remember the days I prayed for what I have, now.”

Oooooh, that got me.

I still remember the letter 14-year old me wrote to her future husband, & all of the prayers poured into this man that steals my heart & my bath towel, or forgets to change the toilet paper roll. I still remember the prayers poured into finding joy again, or into recovery. I remember the prayers poured into learning to trust God all over again, into finding who I was again….and I remember on a daily basis, the prayers poured into the crazy-pants, static, loud, lovable, kind, adorable, occasionally obnoxious, and always-amazing now 8-year old miracle that I get to call, “Son.”

Even on the days where I have utterly failed at wife-ing or parenting, I remember those prayers, & I am endlessly grateful.

I’m thankful for this journey. Above all, I am thankful for a God Who loves & sustains us thru the the business & chaos, & Who lovingly calls us to selah, or “pause” & to listen to His voice….Who created us as emotional beings & Who never tells us to “stifle it” or to “suck it up.” He understands our processes because He created us in His image, & He IS an emotional Being–He loves, He grieves, & He celebrates. He doesn’t expect or want us to pretend; He wants our reality & our actuality.

We may want to focus on “live, laugh, love, ” but He is also in those commas & spaces between,,,in the parts no one wants to paper their walls with. He is calling us to pause in the chaos, and to allow ourselves to feel…to feel all of it, and to share it with Him.

So, I got a little….well, I almost said, “wrecked,” but it was more like an emotional flat tire: easily fixed, but not to be ignored. And that’s okay. There is peace after the processing.

I hope that you get to take the time through the next few weeks to breathe, to feel, and to fall into His arms. He will always be there.

Happy Thanksgiving, and if you don’t hear from me, Merry Christmas, beloveds. May you find your selah in this season.

Update…COVID & The Cooleys

In the month of June, for multiple reasons, I had a mental health freakout. My anxiety hit the roof, I wound up face-to-face with unresolved childhood trauma; there were parenting crises, & things at work were coming to a boiling point. When one area of my life goes haywire, I can generally process. When EVERY area of my life goes haywire?!?!?! My brain broke.

I wound up reaching out to my pastors, a counselor, & a friend; they all counseled me to take a break, & after pushing the guilt to the back-burner I asked my boss if I could take 4 vacation days over the Fourth of July holiday.

Those four days turned into TWENTY.

For my first day of my vacation, I spent an entire day with my mom. I had her ALLLLLL to myself! We had an amazing time, shared stories, had some adventures, got the car stuck on the side of the road in no-man’s land, & I cherished every single minute. I love my mom, & I love learning from her. It looked like this break was going to be awesome!

Me & My Beautiful Mama!

On the second day of my self-imposed mental health break, I received a text that my son had been directly exposed to COVID. My initial reaction was, “Oh. Well, I guess that’s really nothing new.” It’s not that I didn’t take it seriously–rather, we’d been so good about masks, hand-washing, etc. The environment in which he had been exposed was a small group of kids and 2-3 adults. I notified my family, but that same day I received word that I needed around $2000 in car repairs, so I had more pressing things on my plate…or so I thought. Two days later, our plans for celebrating the Fourth with my family moved forward as usual.

‘Merica!

We spent most of the time outside, and my parents have a large, airy house. Towards midday, I looked at my son & thought, “He seems off. NO WAY.” Out loud, I said, “Mom, do you have a thermometer?”

Lo & behold, my beloved boy had a temp of 102. The bottom fell out of my stomach, & the anxiety hit me like a punch from Conor McGregor. My mom looked at me and immediately prayed; we gave Jericho some aspirin & began hourly temperature checks. We kept him hydrated; outside of the fever & a lack of appetite, he was as keenly interested in the fireworks as ever before, and in less than 24 hours, he was perfectly fine. Whew!!!! We’d spent a lot of time outdoors, so maybe it was just a sinus bug? The next day, we went to the zoo (we were masked), & all seemed fine! He seemed a bit crankier than usual, but it was bloody HOT, so it wasn’t completely out of the norm. Life moved on.

The Zoo!

The next day, I had some tests to run at the hospital. I’ve had a lot of issues with pain and inflammation this year, particularly in regards to my legs. The cramping, aches, and stabbing pains have left me unable to rest, & that’s contributed to my mental health struggles. The testing took two hours; after I left, I noticed that I wasn’t feeling all that great. I stopped and got what seemed like a super-bland lemon-berry slush, & made my way through the hell we all know as Wal-Mart. By the time I got to the car, I felt like I was coming down with the flu–I still hadn’t put it together.

The following morning, I had a telehealth appointment. By the end of it, it was determined that I had better get tested; I was supposed to return to the office the next day. I opted for a rapid test & set up the appointment for later that afternoon. By the time of the appointment, I couldn’t drive, & had to ask David to come and get me. The test, to my surprise, was positive.

I spent the next 5 days in bed…& somewhere in there, David got sick as well (he never bothered to get tested). I stayed in bed from Wednesday evening through Monday afternoon.

People, COVID sucks. If you haven’t had it, it’s horrible. I am still pretty sure that the three of us had a more moderate version of it in February, 2020; I thought I had it again last November, but I never tested positive. THIS, though? This has been infinitely worse than both respiratory things I had in February & in November. It’s been 3 weeks; I still have major chest tightness and unrelenting fatigue. I feel like my lungs have been destroyed by a cheese grater. David still has a cough, along with the fatigue. We haven’t gone ANYWHERE with the exception of work & Jericho’s summer school, since the holiday weekend. I tried to go into a store last week, but couldn’t do it. It’s bad enough that I asked my sister to take Jericho for the weekend just so we could rest & sleep (she’s NEVER cared for him on her own before, so this was a huge ask. Not only did she volunteer to take him for the whole weekend–I had initially only asked her to take him for a day–she knocked it out of the park! They had a TON of fun, & the pictures are awesome!! She braved Sky Zone!!!!!), and so that Jericho could get out of the house.

If I didn’t have a nebulizer, albuterol, & a CPAP machine, I don’t think David or I would have been able to avoid the hospital. I have monitored our oxygen saturation like a vulture. We both have medical appointments at the end of this week that will make sure we’re recovering, but seeing David as sick as he’s been? That’s been terribly alarming to me. He’s never really sick, & he’s terrible about taking anything when he is. We’re both exhausted. The reports that this can take a long time to come back from are not anything I want to read–ain’t anybody got time for this!!!!! Neither one of us can taste or smell anything properly, which I suppose is fantastic for the diet; it’s frustrating for me, because I like food!!!!!! And when you have a taste for something, but can’t taste it?!? ACK!

I personally think COVID was designed from the pits of hell. It’s debilitating, demoralizing, destructive, & deadly. All of the conflicting information, the division, the inconsistencies–I am sick & tired of reading about masks, vaccines, incentives, etc., because from the very beginnings of this mess, the “facts” have constantly changed. I’ve been dragged for being unvaccinated–if I’m willing to keep wearing masks and washing my hands, why do I need to be vaccinated? I’d rather do that, than inject something into my system that is proving to have inconsistent results. And now that I’ve got all of these lovely antibodies, it’s giving me more time to think about the vaccine, the information, the consequences, and the benefits. I’m the type of person that the more something is pushed, the more likely I am to take a step back & say, “wait a minute.” Vaccine incentives & the constant propaganda is off-putting to me, especially based on government involvement. I’m completely content to do my part to reduce the spread/exposure by wearing masks and washing my hands (and social distancing–I love social distancing), & I feel like that’s generally enough–isn’t that what they told us for the first 10 months of this mess?

We take preventative measures to protect ourselves & others. I’m not an anti-vaxxer, but I am someone who has been known to have the weirder, more rare reactions to various drugs, & I don’t want to take any chances. Wearing a mask has zero side-effects to me (I know that’s not the case for everyone) & I am happy to do so. I’m not going to rail on anyone who doesn’t want to wear one (but I will not hesitate to tell you to step off if we’re indoors & you’re not wearing one, ‘k? I’m not getting this crap again).

With all of the preventative measures that David & I were taking, we still got COVID (and it’s pretty clear to me that we got it through our son). With vaccines, people are STILL getting breakthrough cases of COVID. It’s become very, very evident that the designs of this disease are just evil, & even with all of the things we try to do to comply and/or to prevent, it’s mutating past the expectations. I don’t honestly have a lot of hope for a COVID-free future.

Please take every preventative measure you can take! Get your vitamin C (it’s particularly good for the lungs), get your N-Acetyl-Cysteine. Boost your immune system (chiropractic adjustments have been shown to boost your immune systems!), wash your hands, wear your mask if you want. Be cognizant of your surroundings and your distance from people, even when you’re outdoors. Know that your kids can be little germ vessels, and help them take personal responsibility for their hygiene–I think that’s the one area where we let our guard down.

COVID SUCKS. Period. David & I are trying to get back to “normal” at a much slower pace. To everyone who has reached out in prayer; to the family that dropped off an amazing meal; to the friends who gave us an Instacart gift card; to INSTACART: THANK YOU. We have appreciated all of the love, prayers, and support. Please be patient with us as we try to get caught up on things & as we try to get some energy back. This feels like a long road to come back from, & I feel like we’re going to need a lot of grace with ourselves and from others!

DON’T GET COVID. <><

Noodle, the #ChiweeniePuggle, demonstrating what we’ve accomplished since the Fourth of July

“Don’t Get Drunk and Do Things!”

Like that title? LOL—okay, maybe it’s a bit click-baitey. Life moves FAST, and even though I try to document all of the hilarious things my kiddo says (#ConvosWithRico), there are some things that I just don’t get the chance to write about. Not all of them are funny, but even the “unfunny” conversations have a way of ending with a laugh. It’s just part of how I’m wired, and seemingly, how my son is wired (also, David has a pretty good sense of humor. He’s not as funny as he thinks he is, but he has his moments).

I love #Fail videos. Jericho & I have watched Fail videos since I first discovered Fail Army on YouTube. I’ve loved Fail videos since I first discovered America’s Funniest Home Videos (in its first incarnation, and now, as AFV), and I think it’s because had there been video cameras as easily accessible when I was a kid, I’m sure I could have gone viral for my own idiocy. I once fell over a trashcan in the middle of Disney World…and I once tripped over a Safety Cone in Northwest Plaza, making my poor mother laugh so hard that she SAT DOWN in the MIDDLE of the MALL because she couldn’t walk from laughing. I have a knack for tripping and falling, and it really hasn’t gotten that much better in my adulthood. In fact, if I were to keep writing about all of my klutzy adventures, I wouldn’t stop typing until December. I’m that graceful.

Humanity is one big epic fail YouTube video - Imgflip

So, my lack of coordination and/or general lack of observance has made me fodder for Fail videos my entire life, and if I can laugh at myself when I fall down, I think I have the right to laugh at videos of other people doing the same thing, as long as no one is bleeding.

Generally, we’ll watch montages of Fail videos and they’ll involve things like snowboarding, or stairs, or falling off of porches—all things your Average Joe-Jane can do with aplomb. Sometimes these videos clearly involve alcohol, and this has involved moments of Adam Sandler-inspired parenting:  “Alcohol = puke = smelly mess = Nobody Likes You.” It’s a classic quote, and has served me well in both reminders and in education, about the perils of booze. And let’s face it—Mr. Sandler knew what he was saying. I think anyone can point a finger and preach to someone about alcohol, but how much of that actually sticks? I’ve never, ever forgotten that scene in that movie, and it’s lasted in my brain far longer than any sermon on the topic.

I have a fear of my son taking things like alcohol way too lightly.

He’s 8. Alcohol and drugs are far too commonplace in society, either in billboards or commercials, or in news stories, or in random conversations. Addictive behaviors present pretty early on, and I have to wonder if we intervene with a healthy presentation about what addiction is, and how it can change your life, at this age? Do we stoke curiosity, or do we lay a foundation of preparation?

I joke about being addicted to chocolate (I totally am), or that he’s addicted to his tablet or to YouTube (curse you, YouTube. I rue the day I let you into my house!!!!!!); we talk about how Jesus breaks addictions, and how it’s good to talk to Him about these things.

Fail videos often show cups of beer or obviously inebriated people, doing really dumb stuff. It’s an easy conversation starter along those Adam Sandler lines: “Alcohol = Fall down and look like an idiot, and get made fun of by the entire world = Never goes away in Cyberspace.” We talk about actions having permanent consequences. Drunk people doing dumb things have enabled me to have gentle conversations with my son about feelings of abandonment and sadness, because someone I loved, loved alcohol more than me…Nothing good comes from the abuse of alcohol or drugs, and it’s not the life Jesus wants for us.

I say all of this because this past Sunday, I realized how much of an impact some of these conversations have had—you know, you don’t realize what your kids retain until it comes back to haunt you. David was making pork steaks, and he opened up a beer to add to the marinade.  He put half of a beer in with the steaks and he gave me the rest of it to drink (it was a Wicked Orchard Apple Ale from Aldi, and they’re delicious. They’re also AMAZING to use in beer bread). Jericho looks at me wide-eyed and goes, “MOM!!!!!!! DON’T GET DRUNK AND DO THINGS!!!!”

I laughed so, so hard. Like, snort-laughed. I think he thought that if I drank that half-beer, I would immediately start falling down and being a Fail video star. My son says the funniest things, and he has no filter (much to my chagrin—I have found myself LAUNCHING to intervene after he’s said something unintentionally rude or embarrassing), & I know that will tone down as he gets older. I feel like by maintaining the #ConvosWithRico, I’ve made it where I can retrace every funny thing he’s said that I’ve documented online. It’s sentimental—I know these things will decrease as his awareness of the world and his maturity levels increases. He’s growing up…and there are so many building blocks I want to lay out for him as he’s on his way.

Some things are too heavy for him to understand, and I worry that the world will throw them at him too soon. Corrie Ten Boom has a marvelous quote in her book, The Hiding Place, that I’m often reminded of when I’m faced with a Big Topic:

‘And so seated next to my father in the train compartment, I suddenly asked, “Father, what is sexsin?” He turned to look at me, as he always did when answering a question, but to my surprise he said nothing. At last he stood up, lifted his traveling case off the floor and set it on the floor. Will you carry it off the train, Corrie?” he said. I stood up and tugged at it. It was crammed with the watches and spare parts he had purchased that morning.

It’s too heavy,” I said.

Yes,” he said, “and it would be a pretty poor father who would ask his little girl to carry such a load. It’s the same way, Corrie, with knowledge. Some knowledge is too heavy for children. When you are older and stronger, you can bear it. For now you must trust me to carry it for you“.’

The world wants our kids to grow up way too soon. Conversations about sex, desire, gender roles, drugs, alcohol, etc., are heavy topics, and they’re not meant to bear the weight of them too soon. It’s our job as parents to determine the when and the how of those conversations (and not the schools, although they’ve taken it on as parents are often too naïve or too inattentive to do so). When certain conversations become unavoidable (it’s astounding how much alcohol and drug advertising there is, or how much it sneaks into family programming or cartoons. Beer billboards are a dime-a-dozen in this city–go figure), I try to make them relatable or in kid-friendly terms. Because of my paternal family history, I know that addictive tendencies run deep, so I want my son to understand how dangerous these things are. I want him to know there are consequences and that Jesus offers both freedom, and a better way.

Our conversation on Sunday went from me laughing, to a gentle explanation of the concept I quoted earlier: “Everything in moderation.” Jericho brought it up again yesterday in a conversation about cigarettes (SO. MUCH. LITTERING.) & I rephrased my quote to, “everything in moderation…except cigarettes & drugs. Those are a Hard NO.” I’ll probably repeat that to him countless times as he grows up and faces the world. I hope & pray that David & I are building a foundation with him that will keep him protected from things like being drunk and doing stupid things (and worse). I hope that these gentle conversations that start with laughter still impact his heart, and that the concepts of love, truth, and purity stay with his spirit as he grows…Maybe I’m not taking the most conventional approach? I don’t know…I feel like preaching things “at” him will only push him to rebel, but that being honest about the good, the bad, the idiotic, and the ugly, will help him understand & to respect the dangers that are out there. Kids are going to grow up and make their own decisions…I want to raise this child to make Good Decisions, grounded in faith, with wisdom and intelligence. Maybe we set him on this path with a big dose of faith coupled with love and a sense of humor, to gird him for the journey…

“Breaking Down,” AKA, “How to Hide the Decline of Your Mental Health, for Dummies”

“I hear the subtle hum inside my head as I push the pillow further into my face, trying to stifle the sobs that are trying to escape: ‘You’re crazy. No one is listening. No one can help you. You’re losing it. Give up already. This is where it all falls apart. You can’t do this much longer. Admit that you’re failing. Admit that you’re nothing. You’re dying. You’re drowning. You’re dying. You’re drowning.’


Over and over, the words run through my head, fast, then slow…louder….louder….it’s a tattooed rhythm that, if I don’t stop it, will become a non-stop stranglehold that stops the air from escaping my lungs.


I feel the panic rising, and I try, try, try, TRY to breathe…I try to pray, calling on the Name of Jesus, knowing that He’s there but completely unable to grasp His peace or to hear His voice. I’m failing in this…just another thing that I’m failing at…


The water rises, and I can feel the pressure…my chest hurts, my heartbeat is heavy and erratic, and I wonder if it’s the stress, or the new medication for the never-ending headaches that seem to be beyond my doctor’s diagnostic abilities. Change a medicine. Order a test. Get some bloodwork.
Never tell anyone that your head is about to explode from the weight of all that has been layering up to bury you over the past 6 months…


Don’t tell your mother…
Don’t tell your dad.
Don’t tell your husband; he doesn’t understand and he thinks you just “love” going to the doctor…
Don’t tell your boss…you need this job, you can’t go anywhere else, and you have to make them think you’re on top of your game…
Don’t tell your friends…they’re sick of hearing about one health issue after another.
Don’t tell your pastors, because you can’t seem to pray this away…
Don’t tell your sisters…don’t tell your brother…

Surely taking it all to God is enough….
But I can’t sleep, and no matter how much worship music I pray, how hard I cry out, or what I say, there’s no miracle cure for this….

Five days…two weeks….three weeks….
How long have I been like this?
The inside of my cheeks are raw from chewing the sides of them….my skin is a disaster, and for whatever reason, I’m in constant, unrelenting pain in my wrists, feet, back, shoulders, and fingers.  It might ebb or secede, but it’s always there…”

These words…my words…were written last week. Last week…it seems like a lifetime ago. I’m not going to say that I’m not struggling, even now, but last week? I LOST IT. We’re talking, hide in my room, cry into a pillow, have to explain myself because my kid saw me lose it, Lost It. I’m still fighting through this, and I don’t say that in some way that says I’m some kind of a warrior or something dramatic. I say it because that wave of overwhelming anxiety is standing on the brink of my sanity for whatever reason, and I know I’m one wrong comment away from falling back into it. Just acknowledging my own fragility makes my chest tighten…I don’t want to go there again. I never did call my doctor…I should have, but I did a Google search on a medication I was trying to get off of, and figured out that panic attacks, massive depression, and suicidal tendencies are side effects of not tapering off of this medication correctly.

That’s not saying that I wasn’t tapering off of the medication–and yes, it was with a doctor’s supervision. I must have gotten confused on the specifics of the tapering, because it hit me like a ton of bricks, and I swear to you, I will deal with migraines until I’m blind before I go back on that medication again. My anxiety is usually manageable, but for the past 3-4 weeks, it’s gotten out of control, and last week nearly did me in. I know that sounds awfully final, but I was not in a good place.

Fortunately for me, God broke through and very lovingly, in His way, reminded me of two things: He loves me, unequivocally. Also, He gave me people in church leadership who know me and love me well, and can handle my frantic text of, “I can’t talk. Pray for me.” They know me well enough to know that I don’t say things like that, and that something is seriously wrong. They checked on me later on, and made sure I was okay…I also had a friend that knew the details of what was up, and listened–sometimes, that’s the biggest thing.

I have such a blind eye sometimes to toxic relationships…like, I’m just used to putting up with so much crap from certain people, that I haven’t even noticed what a blister they’ve rubbed on my heart, until it’s abscessed. I have forgotten to protect my heart, even though I know that when I don’t, it trickles down to my family. When chemistry goes bad (you know, all of those neurotransmitters in your brain that need to stay level or else you go off the goofy-crap-o-meter), coupled with the damages of stress and toxic relationships, it’s the kind of combination that results in only one thing: A CATASTROPHIC EARTH-SHATTERING KA-BOOM.

You know what I told my son last week, when he heard me crying in my bedroom?

I said (after I had pulled myself together), “You know what, Buddy? Everyone’s brain is a little different, and sometimes…

Sometimes, Mommy’s brain is kind of broken.

It gets overwhelmed, and it gets hurt, and then Mommy sort of crumbles and breaks down.

But it’s going to be okay…and I always know that. I just sort of have to reset sometimes, and crying, and getting all of my hurt out, does that; sometimes, Mommy’s medicines make things a little weird, too. I just have to process a whole bunch of stuff, and I will figure it out. Jesus knows what hurts, and what’s in my heart and in my brain, and He will sort it all out.”

How do you explain mental health to a seven-year old?

I have no idea, but I’ll tell you one thing: I’m always going to try.

Maybe if at 7, I had understood any concept of mental health, I would have been able to understand when mental health was good, and when it was challenging. Maybe if at 7, I had understood mental health, I would have developed the language I needed as a teenager, as a college student, as a young adult, as a grown woman, to understand that mental health challenges are NORMAL, and are just as treatable and as common as a headache, once you begin the conversation with the right people. Maybe if at 7, I had understood mental health, I would be aware that you can’t process spiritual concepts like prayer and healing, when your brain is so affected that you can’t sleep, or your eating habits are jacked up, or you’re so anxious that you can’t focus on beginning to get the Word of God into your mind. Maybe if at 7, I understood mental health, I would have understood that things like sadness, anger, stress, pressure, anxiety–NONE of these struggles mean you are a bad person, or that God loves you any differently or any less.

So, for better or for worse, I am always going to be honest with my kiddo about my broken brain.

There are physical, chemical reasons for emotional/mental imbalances…there are also spiritual reasons, and there is healing that needs to be done on multiple levels. I’m grateful for medical health…prescription medication is very helpful, even though getting the right balance of the right medication is tricky (if you’re going through this, please give yourself grace, and be candid with your doctor and with your family! It’s so, so hard, and I don’t think I’m there yet…I thought I was, and then these last few weeks hit). Spiritual health and support is KEY–please talk to your church leadership, and if they’re not the type that will respond to your text or your call for help, FIND A NEW CHURCH. There is no place in the Body of Christ for the pastor that will not shepherd his flock, and I speak from experience. I’m talking pastors, elders, home group leaders–you have to have someone in the church that will help you when you’re hurting. It’s biblical. We’re not made to go through these battles alone.

I’m still working my way through this storm. I’m not on the other side yet, even though I probably seem almost normal (whatever my “normal”) is. I’m waiting on some test results, and I’m probably going to look back into therapy. I still find myself getting caught up in the whole, “it’s expensive, and I don’t have time!!” but then I find myself making time for other things, so I need to figure this out. Stress is INTENSE, especially right now, as we’re one of many families that’s been impacted financially from COVID-19. My stresses and my mental struggles are so miniscule compared to some that I’ve heard about; I know I can’t compare myself to others, and sometimes it works against me (most of the time), but still. These are not the best of times. I’ll be glad to wave goodbye to 2020…and these past few weeks are burned into my brain as the pinnacle of the worst times I’ve had since all of this began (even worse than the spike of depression I dealt with in May).

There’s always, always, ALWAYS hope on the horizon, though, and I will not stop praying that I have my eyes open to the beauty in all of this. There are some amazing experiences that we’ve got to do and to witness through all of this. There have been blessings, there has been laughter, and there has been much to be grateful for. My biggest struggles have been in my own head, and regardless of the reason, I am so grateful that God does not abandon His own, even when they’re stuck in their own headspace. He breaks through in ways we may not even realize…we can’t give up. This world is quicksand, and it’s only getting thicker….I’ve had a recurring theme in this blog over the past year, though, and that’s how He is our Rescuer…He is our Anchor, and He’s also our Life Raft…

So, now that a week has gone by, I look back at the words that I wrote and the heaviness, though still tangible, is fading. I know it’s close by, and can lay back down at any second, so I’ve been doing some things that I know are preemptive…They’re not cure-alls, but they definitely help:

  1. I have some kind of worship music playing in the background all day long at work. Right now, I’m into Maverick City Music and I’m always into Bethel. I also like just about anything by Forerunner Music (International House of Prayer).
  2. I stopped looking at the news for more than a few minutes a day. I can’t deal with the state of this nation anymore, and I can’t handle the anxiety it induces, particularly during this election year, so I’m just checking basic headlines and I’m leaving it alone. Also, I DO NOT ENGAGE IN ARGUING WITH PEOPLE ON SOCIAL MEDIA. I also don’t tolerate people arguing on my pages. It’s nothing but a waste of time that does more to harm the body of Christ and further the thought pattern that Christians are nothing but argumentative, arrogant fools, and I won’t be a part of it. I Peter 3:15-16–I’ve quoted it enough on this blog that I’d better live it out, right? See an opinion you disagree with? Scroll on by. There–didn’t hurt, right? 🙂
  3. I’m sticking to a routine, which is easier since my son is back to in-person school (glory to GOD, y’all!). This includes getting in daily Bible readings or listening to a daily reading. Here’s the plan I’m using: https://thewaystlouis.com/bible-reading-plan/
  4. I’ve explained that certain messes in the house absolutely must be cleaned up, and need to stay clean, because I can’t handle it–messes aren’t peaceful, and I need peace. Since only one of us is working right now, that falls on the other to take care of. This mandate doesn’t win anyone any friends, but neither does having a mental breakdown at 4:30 in the afternoon. I’ve found this image helpful, as it explains things I didn’t realize (and if you’re the one in charge of cleaning, don’t take this as any kind of shade or guilt–that’s how I initially took it, and I started getting worked up over it, and then I realized that hey–I can only do so much. This is just the psychology behind it, and dang it, I’m gonna give myself some grace!!):

5. Deep breaths. I’m absolutely serious about this. I’ve botched a few presentations lately, and I’ve botched a few personal conversations lately, because I get so anxious and nervous that IJustStartTalkingAndICantShutUpAndBeforeIKnowItISaidWHAT?!? And, like toothpaste, you just can’t put those words back in the tube. It stinks. So I’m making myself breathe, deeply, and close my eyes, and refocus–sometimes in front of people, which leads to #6:

6. I’m being brutally, painfully honest. Posting this blog isn’t easy. Admitting my mental state from last week isn’t easy. Telling my husband that I’m cuckoo-crazy-pants isn’t easy. Watching him stomp up the stairs because I’ve unnecessarily snapped at him isn’t easy…and neither is apologizing a few seconds later, when he’s reemerged to find out if the weather’s changed. Admitting that I can be tumultuous (I’m being nice) isn’t easy. None of this is easy. Realizing that one tiny pill can upset this apple cart of a crap brain isn’t easy (and it’s incredibly, incredibly frustrating…not only to deal with, but to get doctors to understand). Having to make myself visibly stop and breathe/blink when in a conversation with a co-worker so that I don’t start bawling, isn’t easy, and neither is looking them dead-in-the-eye and admitting that, “hey, I’m sorry–I’m a mess right now while we adjust some medications” is NOT EASY, and I have to wonder what the professional impact will be. I’m not afraid to ask for kindness if I need to, I don’t think….but–

#7. I am worth it. My mental health is worth sorting out and worth paying attention to. My stability is worth fighting for, especially for my family’s sake, because being a wife & a parent is everything I’ve ever wanted in my life, and dang it, I’m not going to watch that relationship be affected or lost because I didn’t put the time, the education, the prayer, the help, into it.

If you’re still reading, please know that above all, YOU ARE WORTH IT, too. Jesus says so, and He’s said it from the beginning of time. You–not some ambiguous people group. You, as an individual, YOU are so loved, and you are so worth PEACE….I think that’s what mental, and spiritual health, all tie into–peace. We can’t have peace in our hearts when we’re fighting so hard, but we can’t give the battle over to the Lord when our brains are imbalanced. It’s a battle against flesh (the brain) and blood (the spiritual), and it’s one that starts with Him. He uses all sorts of things–meds, prayer, health and mental care providers–He has endless resources, and He loves you so much that He’s in this fight even more than you are.

You’re loved. Keep fighting. We’re in this together—I’m not saying that to be trite; I’m saying it because it’s true. ❤



Additional Resources:

https://www.aloveworthlivingfor.com/blog/verses-for-social-anxiety

https://themighty.com/2019/02/bible-verses-mental-health-depression-anxiety/

https://www.openbible.info/topics/mental_health

Hurry Up and Wait, AKA, “It’s Allllll Right.”

Some of you may have caught that back in February, my thyroid cancer decided to make a comeback. In typical “Cassidy” fashion, my sense of timing was AWESOME, and as the country was shutting down from COVID-19 in March, I was running back and forth to the hospital to have injections and scans done (Thyrogen injections and RAI with a full-body scan, for those that understand this garbage). This was all set up after my tumor markers (which were 0.00 back in December, which is why BJC decided to release me from monitoring for 3 years back in January ’20) jumped up to 0.7 in February. That may seem like a nominal amount to some, but in my case, it was not a great sign.
So, I had the full body scan done, and just like the last time I went through the test back in 2018, the full body scan was negative. Unlike in 2018 (when my labs were pretty clear), the labs said the cancer was present, but the scan didn’t pick it up (I have cloaking cells. Very Star Trek). In that case, the line of care is to repeat the labs and check the markers, and based on those changes, possibly to graduate to a PET scan and (I hope) eventual surgery to remove the threat (in my case, it’s a few lymph nodes in my neck that have been suspiciously enlarged for the last few years. Large lymph nodes with clean labs = No big deal. Large lymph nodes with positive labs = Kind of a big deal). I know it might sound crazy, but these lymph nodes have been a thorn in my side since my original diagnosis back in 2015. I’d really like to get them out of my body. I don’t know if taking them out will reduce the chances of the cancer showing up elsewhere, but either way, they stress me out, so I want them gone.
My endocrinologist said that if my tumor markers have gone up to 1.0, we’ll move on to the PET scan. I put off getting the tests done until the absolute last possible minute, which was this morning…
Labs are completed…so now, we wait.
I think the hardest part of any medical decision/result is the waiting. It’s like, “Let’s hurry up and get this done…but wait until your insurance approves it,” or, “let’s hurry up and get this done…but wait until the results come in, then we’ll do another test, then we’ll wait some more, and eventually, we’ll have answer…maybe…but that answer may just be that we monitor the condition, so yeah, our treatment advice is just to keep waiting (even though you feel like you have a ticking time bomb in your neck).”
Man, I don’t DO well in the waiting–haven’t we already established that, Lord?!?! Like, YOU KNOW I don’t wait well. I’m not saying that I’m going to sit here and worry until I get the test results, because I’m not going to LET myself say that–I’m going to argue with myself and pray for peace. I’m not going to worry. There’s enough worry in the world, and worry stresses out every body system. It doesn’t MATTER what the test results are–God is still in control, I’m not going to die from this, and it’s going to be okay. It’s the easiest kind of cancer to treat–so much so, that there are some that debate whether or not it’s an actual cancer (although how that’s debatable, I do not know). It really is the stress in the waiting, and the stress in the process, that’s the worst.
I have a friend right now that has metastatic breast cancer (and her treatment during COVID-19 has been terrible–I think the medical industry has let their standard of care drop significantly in the wake of trying to prevent the spread of the disease. Patients are still people, and they still need actual care). We were emailing yesterday, and she said something that really caught my heart: “I just want to feel normal again.”
I’ve said those words. I think anyone who’s been through a major medical issue has said those words, and the truth is, the day you received your diagnosis, your “normal” changed. You don’t look at life through the same lens. People can choose to let it define them, to make it part of their identity. I don’t believe that’s a healthy approach (although you do you–whatever it takes to get through it, do it). To me, it’s not a badge.  I told my friend that it’s part of my story, but it’s absolutely NOT who I am, and it’s not something I candidly speak about to just anyone (although here I am, blogging away. Yeah, I see that.). I think doctors let it define you–every time I go into a medical office, I get 3 things: History of congestive heart failure. History of thyroid cancer. History of diabetes. Every single other thing that has/can go on, is looked at through those lenses, regardless of what I say. That can be frustrating, but I know now to anticipate it. I can live my life with cancer in the background; doctors can’t treat me without considering the history at the forefront. I get it.
But as a human being (and I say “being,” meaning that “as a present, focused individual”), and as someone who says they believe in a Creator Who defines them, cancer/other medical issues are a consequence of living in a fallen world. They don’t reflect Him, and they don’t reflect Who He sees me as. Jesus loves Cassidy. Yes, He knows Cassidy the Cancer Patient, but He Loves Me as who He made me to be, and who He made me to be is whole.
So, that’s how I identify–I identify in hope as someone who’s jumped through the hoops and has come through the other side, unscathed. I might be scarred, but I’m not burned; that might not make sense to you, but that’s okay. The hardest thing for me to deal with through this resurgence of cancer cells is anger, and I’ll admit that it’s still an issue–but I’m not mad at God. I’m aggravated at the Enemy. Cancer didn’t come from God. It came from Satan, and he sucks, so yeah–I’m mad at him. I’m mad at weirdo-genetics and my own laziness, and the frustration of the American healthcare system, and the cost of the procedures, and the feeling like my own sin caused this to happen to me (that’s a lie from the pit of Hell. God is NOT sitting in Heaven with a Smite button. I believe in pleading the Blood of Jesus over sins for my redemption, so no–I’m not being punished by God with cancer. People that teach that kind of religious garbage need a swift kick in the head with the book of James. That’s a whole ‘nother conversation).
God does not look at us through a lens of sin or of sickness. He sees us through His Son, and He sees us through Love, so even though I’m angry at my present situation, I am grateful and I believe that He knows what He is doing. I think my best course of action is to get these rebellious lymph nodes removed. I’ve caught myself pleading my case for that to God, and I have realized that it will be a hard pill to swallow if He says, “no.” That will mean I’m back to square one with a treatment plan, and that I’m back on the hamster wheel of, “hurry up and wait” for another 3-5 years (which may happen if I get the nodes removed. My hope is that if I get the nodes removed, then we can just do periodic lab work instead of ultrasounds and scans).
Part of the new “normal” after a medical diagnosis is relearning how your body is going to function; it’s learning new medications and side effects, and how you need to treat yourself in regards to them. It’s learning the signs of when you’ve pushed things too far, and of listening to your body. It’s educating yourself and your loved ones to hopefully understand and extend grace when you’re not yourself, and it’s part of finding out how to be YOURself, when things can come along chemically, that try to alter that. It’s learning how to reach out when you’re frustrated or sad, and to find someone who can and will listen without judgement. It’s learning to ask for help, even if you may be a person that hates doing so. Asking for help is not a sign of weakness (I’ll say that again, for the people in the back: ASKING FOR HELP IS NOT A SIGN OF WEAKNESS. Thank you.).
Part of the new “normal” is learning to handle a load of fear, impatience, and apprehension that comes at you from every side–from well-meaning friends and family; from physicians; and from yourself (just think of them as these guys: Fear, Impatience, Apprehension–bloodthirsty little hyenas).
shenzi_banza_Ed_disney-villain-sidekicks
I’ll definitely admit to struggling in this department. Once the “C” word is in your vocabulary, it stays. Some days, it’s a Hollywood marquis; other days, it’s a whisper in the back of your mind. When I’m not in active treatment, it’s usually just a whisper. My daily struggles involve the thyroid replacement meds and the HRT–one missed or mistimed medication can wreck me for days, so I have to have constant organization to remember to stay on top of those things. And because my memory skills aren’t what they used to be (age, meds, oxygen loss, etc.), I have mental systems in place to try to keep things straight, but sometimes, I make mistakes (For anyone who’s on a regiment of multiple medications, I highly recommend PillPack. It makes things SO much easier!!! And they handle vitamins, too, which is nice). Fear, impatience, and apprehension are not from God, so we (I) have to come to a place where we recognize those feelings as they’re coming on, take a stand, and lay them at His feet. Easier said, than done.
And that brings me back to today…The labs are done.
He truly is in the waiting….And in the waiting, we (I) take deep breaths; I focus on knowing that it will all be okay; I pray that God would provide clear answers and direction; and I pray that I will hear Him clearly…
Some people would say, “Well, why don’t you just pray for healing?” Sometimes I think it takes more faith to believe for a healing, than it does to pray for a resolution. I think that’s another blog I will eventually be able to write–there’s a lot to unpack, there.
Right now, we wait. And like my sister’s macaw likes to say, it will be “allllllll right.”
🙂
Hey, if a bird can get it, so can I. 🙂
scully

A Disjointed Hot Mess of Getting My Head On Straight, AKA, “Why Am I Posting After Midnight?!?”

Doing that thing I’m never supposed to do…getting on the computer way too late at night, knowing it’s a bad idea but doing it anyway…

I’m quite sure someone will be offended by the time I finish processing whatever is pricking at my conscience, because as we all know, I process by writing and I’m dumb enough to put it online (“dumb enough?” Is it actually dumb? Or is it too genuine to be “comfortable?”).

I’m quite sure the Karens of the world will have their time clucking their tongues and clickety-clacking their keyboards to tell me how I’m not holy enough, or I’m not praying hard enough, or I’m not spiritual enough or whatever, and I’m sure they’re right, but that doesn’t make anyone feel any better, now does it?

KAREN

I’m not going to blame this on Mother’s Day (it sucked, don’t ask, and no, I don’t understand why. Grief is unpredictable, ‘k?). I’m not going to blame this on work stress (do I still have a job? Mandatory pay cuts? A cut in hours? All options, nothing decided, and we’re floating in a pool of what-the-heck-is-going-on?!?). I’m not going to blame this on COVID-19 (although I will tell you that my personal state of mental health is on the decline, if I’m being honest). I’m not going to blame this on the crappy remarks my husband made to me today, or that I made back to him (I don’t remember who started it, but we’re sick of being around each other right now, and I’m sick-to-death of sitting on the couch). I will blame this on the apparently 15 pounds worth of anxiety-eating I’ve done to cope with the last 9 weeks, and that falls squarely on my super-fat shoulders.

Now I’m ticked at myself for failing so horribly (really, what did I expect??!?!?  I’ve baked more in the past 9 weeks than I have ever before, during a non-Christmas season. David’s been doing all of the cooking, and he doesn’t know how to cook without going all Paula-Deen on everything, which is delicious, but terrible–and why I gained #20 right after we got married—and why I gained #15 being stuck in the house with him for 9 weeks, although we all know I could have gotten my fat rear up from the couch and made my own dang food. I didn’t, and now I feel horrible, I look like crap, and my blood pressure is through the roof). I have to put the brakes on EVERYTHING, and that sucks, because PEANUT M&MS ARE AMAZING, and no, David had nothing to do with those. Those are all on me…and on my hips.

I’m struggling with feeling really anxious, really sad, and really, really stressed out…and I know I’m not alone, but I feel like I am. I don’t feel like I can pick up a phone and tell anyone that I’m in a funk, because that’s not uplifting, and aren’t I supposed to be FRICKIN’ UPLIFTING?!?!?!  Because right now, all I am is a giant lead balloon in a forgiving pair of leggings and a piece of fried chicken.

I feel like a giant &$*%&$ failure in every possible facet of my life.

There–I said it. And now it’s permanently embedded into Cyberspace. CASSIDY FEELS LIKE A GIANT &(*$%&($ FAILURE.

Honey-LaBronx-Crying-Mascara

(We interrupt this rant to disclose that searching for a meme of a crying drag queen was enough to make me laugh. Those who know me know I love Jesus…and I also love drag queens. That’s an entirely different discussion. We digress.)

So, yes, much like the mascara on the photograph above, I feel like a failure/hot mess. The problem with getting something that sounds amazing (like working from home, or more sleep–is there EVER enough sleep?!? Not when you don’t have a thyroid, truth) is that over time, it becomes laced with uncertainties and eventually, tinged with paranoia. I’ve said for a few weeks now that everything feels very unsteady, and it’s not a good environment for me to try to live/work/be confronted with 24/7. Tension is building, and I’m not the only one. I’m internalizing more…I’m feeling more and more isolated and bleak and super-Don’t Touch-Me-ish (one can only be a landing mat for a projectile 7-year old without it taking a toll).

brak

David’s getting a shorter fuse. Jericho doesn’t want anything to do with homework and has turned into a screen addict who shrieks like he’s being beaten alive if we tell him the TV needs to be turned off (SERIOUSLY, PUPPET STEVE ON YOUTUBE, IF WE EVER MEET IN PERSON I AM SILENCING YOU WITH A GLUE GUN.). (And yes, KAREN, we know we did this. WE ARE TERRIBLE PARENTS, OKAY?!?!   I SAID IT!!!  Just add it to the reasons why I feel like a GIANT (*$&%(* FAILURE.) Going into this summer, my biggest fear is that if I don’t come up with some kind of schedule or curriculum, both of the guys in my house are going to get sucked into some weird vortex of TV/Legos/YouTube and I will never see any of them again…which is fine, because I will have buried myself with my headphones and my tablet, under a pile of blankets where I will binge watch “Drag Race” until I’ve eaten myself to death with the seemingly-endless bag of Peanut M&Ms that I have discovered. THEN the guys can watch my progress on television on “My 600lb Life,” and we’ll all feel like we’re learning about each other again. 

Yep…We’re not in our happy place.

Jericho has been spending a bit of time during the week at my parents’ house during our lockdown. I know that’s controversial, but I live in a 1,000sq. ft. townhouse. My parents live in a house that’s around 3x the size, out in the country, with a bigger backyard and far more to do outdoors. This gives me a bit of time to have some peace in my week (as I’m still working from home…good times) and for David to continue looking for a job (that’s another key point of stress. What do we do if he finds a job? There aren’t any childcare options right now. The “what ifs” are endless, right?). I’ve not seen my parents, as I’m stuck in “pause” regarding health issues right now (and every doctor I have is gonna be livid at the weight gain, so I’m already preparing to hear that lecture), so I miss them. I miss my job (does that make me a terrible mother? To say that I miss being at my office?!?  See, that’s another foothold for “mom guilt”–there are SO MANY.), and I truly, deeply miss my church (Zoom is meh.).

You know what?

The longer I sit here and type about how much everything sucks, the more I am reminded that THIS SUCKS FOR EVERYBODEEEEEE.

GROVER

I’m not special, you’re not special, and yeah, it’s okay for us to take a few minutes and gripe about it. From my blog history, it’s apparent that I’ve been griping about it for a few weeks, so yeah, I’m having some difficulties processing things and then dropping them. Whether that’s because I was raised by an Italian, or because I’m a vengeful harpy, who knows?

THIS SUCKS.

You can say it with me–it’s allowed. This is a safe place.

coronasucks

I know we’re hopefully coming to the end of the lockdown; just this week, I think I’ve officially got a true back-to-the-office date. I think we’ll get through this much more safely if people would get over themselves and wear a dang mask (they’re an “it” fashion accessory now, darling–you can even get them on Zulily!), we’d get through this a bit faster. I kinda think I may stick with wearing one during every flu season forever, because the flu I caught in February was WALKING DEATH, and I’m quite sure a face mask might have kept me from getting it…unless I got it from the germ magnet known as my child…hmm. But if people would just obey the CDC recommendations and wear a silly mask, what harm could it do? JUST DO IT, and get us out of this sooner!!!!!!

Just sitting down and writing things out is helpful for me–I know it’s oversharing, but at least by the end of this, I can sit here and say that my thought processes are linear. I’m not so scattered all over the place, getting slapped in the face by every emotion and feeling of failure that floats my way. I know it’s all a trick of the Enemy to get in my head and bury me–I hate to admit it, but it’s working, because I feel buried under all of this.

I can recognize the attack, but I’m truly so freaked out/worn out that all I can do is roll over and surrender. I haven’t yet, but I’m afraid that I will. I don’t feel like I’m strong enough to put my head up and to fight back, or even to pray enough to fight back. I can laugh at my own patheticness, but that doesn’t mean it doesn’t scare me.

The other night, I tried to pray for some kind of peace or relief. I prayed myself to sleep (which is kind of normal for me), but I wasn’t making any sense to myself. It was mostly just me saying, “Jesus…please.” That’s all I got.  My brain is such a mess that I can’t even talk to God naturally. Like, I’m having to tell myself, “Girl, get yourself together and TALK TO HIM!!!!”

But you know what?

I don’t have to get myself together to talk to Him.

I don’t have to sit down and write a blog about how I feel like an epic failure, because He knows how I feel and He knows the truth. He knows every insecurity and He remembers them ALL (I don’t even remember them all. That’s ridiculous.). I don’t have to get “linear” for Him, because He knows me, mess and all, and even though it’s hard for me to believe,

He loves me.

I am without a doubt, a mess.

queen

Most of the time, I don’t want to stop and try to sort me out, because IS THAT EVEN POSSIBLE?!?!?!?!?!?!?!?

grief

I love this graphic–I’ve seen it before, but it’s so perfect.  Grief isn’t something that exists in one moment, in one event of your life, regardless of how “huge” that moment is. Grief can be experienced during any kind of major transition, and baby, WE ARE GOING THROUGH TRANSITION. This whole lockdown experience is traumatic on many different levels, for many different people….for people who look like they have the “perfect” life, and for people who are in the trenches. We’re all unified by this one theme right now: STRESS.

There’s no coincidence that the word, “pandemic” and “panic” sound the same, and I think every time the word is spoken aloud, that energy goes into the atmosphere and we are in the thick of it!!! It’s oppressive, right?!?!  I can’t be the only one who feels like the sky weighs a million pounds right now.

Constant reminders in the media and the press of death, sadness, grief, fear…constant attacks on the mind that torment (and we all know who the author of torment is…stupid jerk). We’re getting hit from every angle by news that’s designed to destroy our morale and to basically fry our hope. I read an article from the Psychiatric Times that mentioned Camus’ The Plague. I’d forgotten about Camus, but from what I remember, he was an existentialist who had no hope. The story was about a town that lost half of its inhabitants due to a plague (thus, the title. Nice.). The article talks about the weight of “death anxiety,” which sounds a bit dramatic (even to me) and about how there is trauma in the persistent, unrelenting state that we’re in right now.

No wonder I feel like crap.

It’s literally in the atmosphere. UGH.

When all of this started, I thought, “YES, GURRL!!!!  You will read the books! You’ll start a workout plan!  You’ll learn new things and GET AWESOME,” not, “Your life will be boring as h*ll, your kid will mutiny, and you’ll get fat again.” I started the books…I WILL get through at least one of them. And yes, I have undertaken some creative projects (lots of painting. Too many flamingos…as if there could EVER be too many flamingos. Baking…which I like way too much of….and sewing! I’m learning to sew, and yes, my face masks are DOPE.). I was doing really well at forcing my household to go on daily walks with me until last week’s cold snap, and I can tell that was a bad idea, because walking really helps my back. So that’s getting restarted, for sure.

But truth be told, I haven’t done all of the things I’d hoped, so it adds a layer to being disappointed with myself…can I just write on all of the mirrors that GOD IS NOT DISAPPOINTED WITH ME?!? My weight or my achievements and/or lack thereof does not make God love me (or you) any less, darn it, so why do I let them make ME love me less?!?  BLAH.

The “Psychiatry Times” article had an interesting quote that, “death anxiety may also result in the following positive opportunities and growth-oriented goals:

• Valuing creativity and creative achievement22

• Generativity23

• Meaning making

• Mindfulness and meditation24

• Positive health behavior changes25

• Prioritizing growth-oriented goals and positive standards26″

Likewise, numerous websites have shown this graphic for finding the positives during this time:

coronacalm

I think there’s a fine line between looking at these great ideas, trying to do them or not doing them, and then using those outcomes by which to judge ourselves. I’m guilty of that, as seen above.

I’m also guilty of writing blogs that are way too long, waaaay past my bedtime, so I gotta wrap this up without feeling added guilt at the fact that I’m crap at writing conclusions (I should just end this here with a, “Bye!”). LOL!

I think I’m just going to say that I, and probably you, have to give ourselves some credit. We’re surviving a pandemic…it’s not only a viral pandemic; it’s a pandemic of misinformation, of unrealistic goals, and of misunderstood, confusing presumptions that affect us on every level. It’s a pandemic that has kids caught in the middle, and that’s a hard one to accept and to work with (I still don’t know how to explain all of this to my kiddo or how we’re going to get back into the routine I swore I wouldn’t let us get out of). It’s a giant ball of confusion and chaos in a world that was already a flippin’ disaster, and now we’re in deep. I’m struggling with feeling buried, and I’d wager that you might be, too, if you’re still reading all of this.

Peace is a concept that sounds so refreshing and so restorative…the other night, when I said I was trying to pray and all I could get out was, “Jesus, please?” PEACE was what I needed, what I was seeking. I didn’t have to say it–He knew, and I slept like a baby. Peace is the antithesis to Panic, and it’s not some global, Michael-Jackson-We-Are-The-World Sing-A-Long. Peace is a spiritual state, and I think it’s like a shield around us to protect us from losing our ever-loving minds during life as a rule. Panic tears holes in that shield, so we gotta get in a place of quiet and worship and GET IT BACK. That’s going to be my goal through the rest of the pandemic…sure, I want to bake all of the things but still lose these 15 pounds, and read all of the books and reorganize my household, but what is it without the very Peace of God?

And that’s my new focus…that’s what writing these nearly-3,000 words has led me to: Seeking Peace. Peace in the face of the Pandemic, Peace in the face of unsteady Mental Health, Peace in the face of Homeschooling and Job Insecurity.

Peace from the very Heart of God…for you and me, for our households and for our families.

Peace to you and to your loved ones….peace in the middle of the noise and the guilt, and the standards and the social media mess. Peace, be still.

 

Click the link to be taken to a list of Bible verses focusing on Peace. Shalom, y’all. 

shalom

We’re Okay…Right? RIGHT?!?!?

Anxiety will not win today.

Stress will not win today.

Fear will not win today.

I am okay. YOU are okay. We are O-frickin’-K, and we are going to get through this.

Deep breaths…

Look, y’all, today is one of “those” days. I think that every time the City of St. Louis or St. Louis County or whomever they’re putting a microphone in front of, says something, my anxiety levels rise. Today, they’ve expanded the Stay At Home order “indefinitely.” Apparently, they’re going to reevaluate it on May 4th, but until then, we’re under lockdown.

Now, I know that compared to other countries, we have it so easy. We truly do–I mean, c’mon. This is America, and we’re awesome (yeah, I said it. It’s a great country to live in, flaws and all). But my fellow Americans will argue over the color of the sky, and the litany of conspiracy theorists littering my Facebook feed is overwhelming and at the very least, irritating. People are acting like these orders are unconstitutional, when they exist for the purpose of keeping us alive. I’m looking at them kind of like a seatbelt: It’s a pain. It should be our choice, whether or not we want to do it. However, because we are by birth, stupid, we have to be told to do the smart thing in order to save lives.

To me, if we’re mad at anything about these orders, it should be that as a population we are so arrogant, so dumb, and so selfish, that it requires a frickin’ LAW in order for us to do the right thing. Don’t be mad at the lawmakers, protesters…be mad at yourselves. Be mad at the people that congregated in State Parks so they had to be shut down. Be mad at the people that didn’t take COVID-19 seriously from the very beginning. Be mad at the people that are STILL gathering in large crowds, because they’re going to cause a second wave of this stuff that’s gonna kill a whole bunch of innocent people.

STUPID PEOPLE ARE STRESSING ME OUT. Stop being arrogant idiots!!!!!!!

EVEN IF there’s some kind of conspiracy or Deep State or whatever, lurking beyond the surface of this ordeal, you can’t deny that yes, there’s a virus, and yes, people are dying. Gathering in groups to protest some kind of conspiracy does nothing but cause it to linger and revamp for a second round–why aren’t people getting it? Because their perception of freedom is more important than someone’s life? I just don’t get it.

So, protesters are stressing me out. Conspiracy theorists are stressing me out. Media announcements are stressing me out. Working from home is stressing me out. My husband’s unemployment is stressing me out. Homeschooling my kid is stressing me out, and believe me, it’s stressing him out, too. Eating at home every night is stressing me out. Cancer is stressing me out. If I keep on listing things, I’m going to get MORE STRESSED OUT, so I’d better stop.

Deep breaths.

Most days, I really am okay. It seems to me that the days that a major announcement happens, are the days where my anxiety levels peak, and I have to peel myself off of the ceiling (okay, Jesus does that. And sometimes, my husband does that. I think they’re working together.). This week, one of the biggest universities in the state announced they were furloughing their medical school staff. As a staff member in a specialty medical school, I thought we were considered “essential,” so that announcement came as a huge shock to me  (BTW, our designation as “essential” is still undefined, which is another point of stress for me). Last week, layoffs and furloughs were finally acknowledged as a part of the conversation; even though I know we’re not immune to these things, just the conversation alone was enough to raise my blood pressure. I’m not alone, and I know this–we are ALL under a certain amount of stress.

So, we’re a nation–a WORLD–that’s under a huge amount of oppression, depression, and anxiety right now. I’d imagine that spiritually, there’s like a pressing fog of fear that’s hovering over the entire planet. As Christians, we need to pray that the Light of Truth breaks through that fog, and that a blistering revival comes out of this heaviness…and personally, I need to hang onto that imagery to remember that Jesus’ Love will break through any oppression of fear, doubt, and anxiety. I don’t have to hang onto this stuff. I don’t have to feel like a cat that’s run into an electronic fence. 🙂 I can feel safe and loved, if I turn to Jesus, and on the days when He seems a million miles away, I can reach out and let someone know that “hey, I need prayer.”

That’s why we have churches, and friends, and companions. That’s why we have spouses, and parents, and siblings. We have a network we can reach out to, to ask for help or just to hear us out. It’s a gorgeous thing that God has given us, and I think we all need to be reminded of what a great resource relationships are, right now…especially since we can’t have face-to-face contact with people.

Hibernation can be so easy to fall into…it’s easy to be completely introverted, forgetting that as human beings, we NEED some kind of social interaction (even if we don’t think we do). We’re created to communicate…we’ve been created by THE Communicator Himself, and He imbued us with His  characteristics, in His image, so even though we may find ourselves wanting to hunker down and isolate, it’s against Who He is. We have to challenge ourselves (okay, I have to challenge MYSELF) to reach out, to pick up the phone, or to send that message. We need each other.

We can’t let the government, the virus, the conspiracy theorists, the fear-mongers, tell us otherwise. God created us with Love, to Love.  He is not the author of Fear.

SO I’m just going to repeat that to myself…for a long time. And I’m gonna call a friend, or talk to my husband, or have some kind of communication today that reminds me…that calls to Who God is, and to who He made me to be…and I’m going to take a lot of deep breaths.

And I’m going to be okay.

And so, dear reader, are you. ❤

Pat Francis on Twitter: "Fear can be powerful if you allow it to ...

 

Suddenlys and Falling Leaves…

One of the Millennials that I work with said something very interesting to me a few weeks ago…

[Please note that when I say, “one of the Millennials,” it’s with a surprising amount of love and respect. I say, “surprising,” because a lot of people in the “millennial” demographic have honestly bugged the holy heck out of me. This girl though (this young woman, excuse me)–she continually surprises me with words of self-empowerment and wisdom that I WISH I had at her age (or at MY age), and I learn a lot from her. When I turned 40, I told myself I was going to stop making apologies over everything. Emma has been a very influential voice that has echoed that sentiment, and even though we don’t always agree, I can’t help but to admire her strength and almost-frightening level of self-acceptance. Her story is encouraging and beautiful, and tough and scary, and it’s not mine to tell…but what I can say, is that she’s still standing, and that she has so much more becoming to do…There is so much beauty in her, and she doesn’t know it, but one day I will tell her just how much she’s taught me. I just want to sit on the sidelines and watch her bloom; there’s such a richness in her soul…she’s amazing.]

I digress.

Anyway, Emma looked at my Instagram feed, and said something to the effect of, “You guys LIVE for weekends.” It’s so true. My house is a wreck, I’d hire a housecleaner to bulldoze the kitchen in a second, and I barely stay on top of the laundry, but you know what? No one talks about a clean house when they tell the stories of their childhood. David & I are two very busy adults trying to keep a roof over our heads and raise a kiddo while working full-time and not abandoning either our families or our marriage, and it gets challenging. Monday through Friday, we barely seem to have time to carry on a full conversation, but on Saturday and Sunday? We refuel and burn it up in laughter.

Every weekend isn’t awesome, for sure. We’re far from rich, so we’re always doing things on the cheap; by the end of this hot summer, we’re sick of parks and tired of sweating to death…but October? Oh, you sweet, beautiful, melancholy month, how I love you!!!

I used to face the end of October like Grover in the “Monster at the End of This Book.” Hannah’s birthday is on the 30th, so every fall, I’d watch the days change on the calendar, and with every leaf that fell, my heart would break. For five long years, the month of October was crushing…but then, we were given the gift of making new memories, and of filling those painful places with peace and joy and anticipation…I have the greatest gift of having been given beauty for ashes, and for that, I can only sit back and praise God.

October still comes with “suddenlys….” I still have moments where my breath will catch, as a memory comes back, or with different realizations (I think I mentioned in my last blog that I realized out of nowhere that Hannah would be turning 13 this year. I’m still coming to grips with that one). Today, I was scrolling through Instagram when I came across a picture taken at Thee Abbey in Arcadia Valley. The owner had posted a picture of her two children with puppies, and I suddenly remembered that we had been pregnant with our daughters at the same time. She was baking cinnamon rolls in the restaurant, and I was working long hours doing makeup on a film project. We were pregnant at the same time, and there was her beautiful girl, showing up on my social media feed. I doubt they remember me, or that we were pregnant at the same time…Thee Abbey holds a very special place in my heart, for multiple reasons, and we go back there several times a year, but it’s not like we’re friends with the owners or anything. We were just two women with dreams of families, who had very different outcomes from the same seasons in our lives.

It’s in those moments that I still make conscious decisions. Those are the “sink or swim” moments, those “suddenlys.” Do they become a noose or a beacon? Do I drown in the waves? Do I pause, take a breath, and let the tears fall? Oh, my Jesus….how many bottles in Heaven are marked with my name? He knows, because He cares about every tear that’s fallen on this journey and beyond…

Do I rush through the thoughts that hit, ignoring them even as I know they’ll come back to me later, when I finally have some quiet time to process them?

Should I even be affected by these moments anymore?

Those moments…some of those moments are huge, while others are minute, but they do still happen. When they do, it’s a conscious decision to move forward, to pause, or even to fall apart (which doesn’t happen very often, thankfully). There are conscious decisions to remain hopeful and wholehearted, to not become bitter or faithless. Sometimes, I hear other women tell their birth stories, and it gets hard to not be angry or hateful. Sometimes even now, old pieces of things I thought I forgave, as far as my medical care went, come up and I get mad. Two women in line next to me in a resale shop were bragging about how they had their babies out in public at 1-and-2 days old. I said, “Wow, you’re brave.” They laughed and said, “well, that’s how you GOT to do it!” One of them went on her way, but I quietly said to the other, “We lost our first from something very common…I didn’t leave the house with my second, except to go to the doctor, for 6 weeks.” The look on her face said it all–perspective. When other moms look at you like you’re some kind of germ-phobic freak or a helicopter mom, it’s hard not to lash out. There’s a conscious decision that’s made, to either tell the story in kindness, say silent and put up with the awkwardness and feel completely inauthentic, or to tell the story in a way to slap them upside their heads for judging your parenting. I’ve done all of the above, and I’m not proud of that fact.

There are conscious decisions made that people who haven’t walked this road will never understand, and that’s perfectly fine. I refuse to apologize for the fact that I am a woman who has given birth and said “goodbye,” and that this is the season where those memories and dreams are the closest to the surface….

So, like Emma said, we “LIVE for the weekends,” ESPECIALLY in the fall. October is full of everything beautiful…the trees are putting on their finest colors just before they blaze out into their rest, and I want to celebrate every one of them. I want the “basic” life of pumpkins and spice and bonfires. I want my (second-hand) UGGs and my leggings, and I want to jump into every pile of leaves I can find. I’m not a huge fan of corn mazes (I did my first one last week; it was a kids’ version, and it freaked me OUT), but I dig pumpkin patches! We didn’t do that kind of stuff when I was a kid, but we’re sure enjoying them now.

When the second lady in line at the store was talking to me about Hannah, Jericho jumped into the conversation: “I’m a rainbow baby!” I don’t know if she knew what he meant, but I laughed because it was the first time I’ve ever heard him tell a stranger that fact. It kind of blew me away–what does it mean, to grow up, knowing that about yourself? I had a friend chime in on an Instagram post that she was a rainbow baby, and that she loved knowing about what that meant; she said she loved that her parents never hid the truth from her, and that blessed me. I never wanted to keep it from him, but I also never wanted it to be a burden, so we always want to paint his birth as the miracle to us that it truly was. He knows he’s special (maybe a little TOO well, LOL).

We have this chance–we have this GIFT–to LIVE, and to live well. We have this opportunity to seriously carpe diem–to seize the day (can you tell I grew up in the 90’s?)–and to make amazing memories of each season. Jericho is no doubt spoiled. He hates the weekends where we’ve stayed home, and I get it. We don’t stay home on the weekends very often (although to be fair, we don’t go anywhere during the week. Total hermits.), and he expects an adventure. When he doesn’t get it? He’s kind of a punk, and I can say that as his mother. 🙂 And even today, after we drove for 2 hours, did a cool hayride, got lost in a maze, shoveled pizza in our faces in the car, and ate something amazing called a “cinnamon chimney,” he STILL had some bratty moments–he’s 6, and there was a LOT of walking–and I found myself wondering why I try to do cool stuff. Um, kiddo, I’m going to admit that sometimes, I am the one that wants to do the cool stuff, and you’re along for the ride. I want to make these memories with you, so stop whining and smile for the camera (“You will smile for this picture, or SO HELP ME GOD!” #TheStruggleIsReal). I want to make the cool memories, and I want to look back at that awesome photo book that I make at the end of every year, and look at this amazing life that God has given us.

I know that life in pictures is only part of the story…but what a beautiful part of the story it is. I have to laugh–when I was 8, my mom took my sister and I to Disneyworld. There’s a really cute photo album somewhere that shows us in all of our glory in Florida…but do you know what we still laugh about to this day? The fact that my sister and I were absolute MONSTERS on that trip. OHMYGOSH, I can’t–we whined so much, and my mom had to have busted her rear to pay for that trip; we were SUCH punks, I can’t even…AND I AM REMINDED OF THAT TRIP, EVERY TIME I TAKE MY SON TO DO SOMETHING COOL, AND HE WHINES. Like, #KARMA. I have to laugh. We have the pictures, and we have the memories, and oh, what a life we get to experience!!!!

Life is hard. It is–it’s a struggle for so many of us. But we have each day to start over, to make new memories and to make the conscious decisions to breathe, to move forward, to celebrate and to grieve. We have the opportunity to celebrate the sweet and to not become bitter…we have the chance to stop apologizing when we’re doing our best, and to accept the love Jesus offers us. We have the choice to pick grace, and to put one foot in front of the other on this journey, and to help others to do the same. Fall is the season of such incomparable beauty. I hope and pray that you get to embrace it and the changes that come along in it. “LIVE for your weekends,” and if you can, let the dishes wait a bit while you make some memories–and don’t make any apologies for it, dang it. You carpe that diem, dangit, and light up your Instagram feed!!!!

Seriously, though–take every chance you can to enjoy this season. May your “suddenlys” and your fall leaves remind you that you are loved by our Creator who made all of the beauty that you see, just to bring you closer to Him. ❤

We Need to Talk.

We need to talk.

I want to talk.

I want to have a conversation without the sensation of alienation,

To speak words that flow like a river without suspense or pretense or nonsense or

Offense to the thoughts that tempt us like distractions to reactions to words

We didn’t mean

Or maybe we did

But who would know

Because who has the time

To just sit

And

Talk?

I want to talk.

I want to look someone in the eyes without alibis or denials of a need for more than

Survival

I’m

Not

Satisfied

With

The ticking of the clock

I’d like to knock it off of the shelf or send it straight to hell.

The bells that toll the hour are trolls and what I’d really like

Is a good cup of coffee

With a friend

That knows me well enough to know when I’m falling apart but

Laughs at my stupid jokes

Because we all know that laughter is the best

Thing for insanity…

I want to talk.

I’m so tired of feeling like I’m constantly apologizing or capsizing or disguising true intentions

Of verbal apprehensions and the attempts for my redemption…  

So tired of the anxiety; it’s crippling and debilitating but the meds only go so far

And then I’m just left with me

And I’m a mess

But I’ve got prayer for that, right? #Blessed

Because serotonin and dopamine are free and if only I were good enough I’d see that they’re

Out there waiting for me if only I could get enough sleep but I don’t see that happening,

So what I’d really like

Is a good cup of coffee

With a friend

That maybe doesn’t make me talk

But just sits there

And understands that I can’t understand

And tells me I’m going to get through this…

Even when I don’t have the words to say what “this”

Is.

I want to talk.

Because maybe if I write it or verbalize it instead of fighting it, in spite of my confusion my delusions will clear up or clear out & I’ll be up from this place where I’m down for the count

On the upside of the bipolar pendulum no one has ever officially told me I’m on

But I wonder.

 

I need to talk.

But sometimes…

I can’t.

 

The Inconvenience of Healthcare AKA, Making a Big Deal out of Nothing At All

*Never doubt my love of Air Supply.
**Back Story: If you’re new to the blog, I was diagnosed with metastatic thyroid cancer in 2015. I had a tumor that wrapped around my throat and went into my mediastinum; the cancer broke through the capsule of the tumor and went into my lymph nodes. I had a total thyroidectomy (TT) in 2015, and have been on thyroid replacement hormones (TRH) since then (Armour Thyroid). After firing my first set of doctors (oncology, ENT, and endocrinologist–the oncologist didn’t want to see me back for any follow-up care for a year, which my PCP didn’t appreciate; the surgeon became out of my insurance network; the endocrinologist miscommunicated a medication dosage to her staff, and almost killed me), I wound up switching all of my cancer-related care to Barnes Jewish Hospital’s Siteman Cancer Center, where I’ve remained since 2016.
Surgeon: “You need to visit the oncologist for updated testing; it’s been 2 years, so you’re due.”
Oncology Nurse: “Please come in for a consultation!”
Me: Has a day off, arranges schedule accordingly (I work 40 hours a week, and have a 45-minute commute each way. I stay busy. For this appointment, I was going to have my son with me, but whatever–we’d make it work).
Oncology Nurse (2 days before the scheduled consultation): “Oh, no, we don’t want to see you for a consultation until you get all of these tests, which will take an entire week to accomplish. Let’s get this scheduled.” This testing involves 2 days of injections, plus one day of radiation (tracer dose), plus 1 day off (because I can’t be around pregnant people), and then a day of labs and a full-body scan….which didn’t work on me, the last time I did it, and I wound up having to have a very expensive PET scan….so I was trepidatious, to say the least.
Me: Arranges appropriate time off of work; arranges childcare. Gets everything scheduled and gets everything approved through office (which couldn’t come at a worse time, given my current workload). Gets emotionally prepared to be a pincushion for a week. Informs family of process to come, and struggles with ensuing anxiety.
Oncology Nurse: “Oh, no, wait, we don’t want to do any of this testing until we have a consultation scheduled.”
Me: “ARE YOU KIDDING ME?!?!?!?!?!?!?” LOSES MY TEMPER on highly-degreed individuals who have obviously forgotten that I AM A HUMAN, and I am more than the stupid disease that has been hanging over my head for 3 years!!!!! “Could you NOT have decided to do the consultation first, like we ORIGINALLY SCHEDULED, before putting me through all of the hassle to put a very busy life on hold for a week? Could you maybe have REVIEWED A CHART and a medical history, and REMEMBERED a few key details?!?!?! Who decided this?!?  Who decided to do one thing, then another, and then the first thing, after I already rearranged my life?!?!?! The Nurse Practitioner? Can I speak to her?!?!?!” She takes a message, and says the NP will call me back.
Me (super-mad): Calls surgeon who sent me back to oncology in the first place; gets favorite nurse on the phone. “Lisa? Can you help me? Can you talk to them and figure out the why in what the heck they’re doing, since your MD sent me back to that office in the first place?!?!?” She agrees to call them; she was out of the office when I was told to make the oncology appointment, and she’s aggravated that the MD forgot to explain everything to her. She’s been amazing. She can’t help what happens next.
Oncology Nurse Practitioner (now I’ve moved up the chain of command; my phone was IN MY HAND and went to voicemail, and this is what I got): “Mrs. Cooley, the insurance company won’t cover any of the testing until you’ve had a consultation.”
THEN WHY DID THEY CANCEL THE ONE I HAD SCHEDULED IN THE FIRST PLACE!!!!!!!!!!!
I am so sick and tired of the medical BS that doctors put people through, because somehow, in all of this, they forget that we are individuals who put our actual lives on hold to deal with these things that come from out of nowhere to sideline us and our families!!!!! It’s been 12 hours since my conversation with oncology, and I’m STILL mad. It’s an endless cycle of bad communication, and it’s a small wonder that insurance companies are now basically practicing medicine without licenses in order to dictate the course of care/medical authorizations. IF THE DOCTORS THAT ARE RESPONSIBLE FOR THE CARE THAT AFFECTS THE QUALITY OF OUR LIFE CANNOT EFFECTIVELY COMMUNICATE WITH EITHER THEMSELVES OR WITH THEIR PATIENTS, what hope do we have for our medical well-being?!?!
CRO_Health_CROH_May_Doctor_Office_Confusion_03-15
I don’t think it’s too much to ask, for a doctor to review at the very least, a list of the patient’s diagnoses before they walk into a room for a consultation or order a test…but guess what? They’re so over-scheduled that they don’t have time. BUT, they’re so over-scheduled, because the insurance contracts reduce their allowed amounts to the point that in spite of popular opinion, doctors and hospitals generally make just enough money to make a profit, or even to barely meet costs. My orthopedic surgeon–you know, the woman who was responsible for cutting my feet open and rearranging the tendons so that I could relearn how to walk properly–was allowed maybe 10 minutes for each visit (actually, I think it was 4 minutes) by her overseeing medical group. 4-10 minutes, to make sure that surgery is necessary, that 4″ of incisions are healing properly (mine didn’t), to decide what steps need to be taken–she has 4-10 minutes to make decisions that will affect me for the rest of my life. Me, and the 50-90 other patients that she’ll see in a day.  Fortunately for me, my ortho was AMAZING, and her staff was phenomenal….not every MD is as dedicated, and not every MD can handle the workload they’re assigned (patients, documentation, insurance reviews–it’s more than the average patient understands).
ARE THEY KIDDING US?!?!?!? Are they kidding the doctors? They didn’t sign up for this; they signed up to help people, not to treat them like a cattle call.
But there they are, making decisions, saving lives, and leaving a trail of confusion and frustration in their wake…
At this point, I’m not sure what’s more frustrating—the doctors, the insurance companies, or the diseases that exist in the first place.
I was whining on the phone to my mother last night (God love her, for listening to me), and she pointed out (very gently) that since my thyroid was ripped out, my ability to process my emotions has been greatly affected. I detest admitting that she is correct, but it’s true. I struggle with being angrier when I’m mad, with being deeply depressed when I’m sad. There’s no happy medium with my emotions, and it makes things much more difficult. There are times when I’ve wondered if I’m straight-up bipolar, or on the spectrum, or if I’m just permanently screwed up from all of this. Maybe it’s PTSD on steroids, or maybe I’m just a terrible person. I don’t think it’s normal for people to stew on things like I do, or to have the internal (and sometimes external) monologues that I have to sort things out. I don’t want to admit that I’ve changed, but it’s true: I’m different.
I don’t know if I’m more honest, or if I’m just, frankly, more of a bitch. I don’t know if I’m more unfiltered (because I don’t have the patience to wrap things in snowflakes for the general public), or if the more choleric side to my personality has somehow mutated, but what I do know is that I am sick and tired of the hamster-wheel that a chronic illness put me on.
index
I like people less. I have less patience for people. I like the fact that I sit in an office by myself, because I don’t think I can deal with the anxiety and stress that dealing with the public puts me through. I don’t like getting out of my familiar, and I don’t want to do it. When doctors lay out a course of treatment or protocol, I will latch onto that, and Type-A get it scheduled, and God-help-you if you get in the way of MY PLAN.
On the plus side, since my whole cancer debacle, at least you know when you ask me a question, you will get the whole truth, and nothing but the truth, once I’ve warmed up to you and feel like I can trust you with the unfiltered version of me. That takes a while–I’m not as easy of a person to get to know as one would think at first.
I think the thing I’m the angriest about is that I have an incredible amount of anxiety any time I have to deal with the oncology department. I can’t explain it or make it go away; just knowing I have to go back there seems to undo me, and I had just gotten it into my brain that this was actually happening again. Surely I am not the only person in the world who deals with this?!?!?  I had just made peace with it all, and had made my plans accordingly; as aforementioned, I do NOT like it when my PLAN gets messed up or taken out of order, LOL. That’s not doing me any favors in motherhood, let me tell ya’. Am I crazy for being this aggravated about this one instance of medical miscommunication?!? Or should we all get this mad, and maybe make something happen from it?
I know the “right” things to say, here: “God has a plan.” “This will all get worked out.” “Trust Him with your anger.” “Be angry, but don’t sin (stop swearing!).” “Stop ranting (that’s part of my monologue-ing)”. “It’s still the good kind of cancer, right? Be grateful!” Blahbaty-blah-blah. And yes, I’m praying about it..sort of. It’s one of those throw-up-your-hands-and-yell/pray kind of prayers. 🙂 I do that a lot lately.
Healthcare in this country has got to get figured out. I consider myself to be a pretty informed patient after almost 20 years of working in this industry, and if this kind of confusion in healthcare is “normal,” WHAT IN THE WORLD is going on? What have we come to?!? And what are we paying for?!?!?!?!?