Let’s be honest: It’s difficult in any season, to read something as open and honest, about such a devastating topic. But to read it as we are once again approaching our annual time of remembering our Hannah-girl, truly hit a nerve. I feel like I’ve been writing about the need to “normalize” the topic of miscarriage, stillbirth, and infant loss for years, and I have–over a decade, which sounds crazy. My little corner of the internet has nary an impact, but many times, I’ve felt like if I don’t write, I may explode, and if I’m not honest in what I put out here, then what’s the point?
Honesty is uncomfortable to read AND to write. Being raw and open, and exposing your highs and lows to complete strangers is dangerous and cathartic and messy and occasionally beautiful, but it is NEVER easy, and those that do it, either already have that understanding, or learn it quickly. Chrissy Teigen and John Legend have been candid about all sorts of topics, and have taken on the Keyboard Commandos with humor and grace. Even when I disagree with them on certain political points, it has never changed the fact that I genuinely LIKE them as they seem online, and that I appreciate their approach to the public….but this goes beyond good recipes and perfectly-lit Instagram photos.
Sharing the rawness of the experience of the loss of a child is monumental. The photos shown from Chrissy’s hospital stay are so striking; she stated yesterday that she specifically asked that they be taken, as she understands firsthand the importance of documenting every moment a mother has with her child…even at the end. Every time I see the photo of her getting her epidural, it breaks me and I remember The Last Photo I have of Hannah–the one that is locked in the safe, and that will never be shared. It is brutal, and I cannot stress that enough. There is more heartache in that 3×5 Polaroid than the world should ever see….
And yet here are two celebrities, taking an opportunity to put a face and a name to not only the disease (placental abruption), but to the fact that, “according to the Centers for Disease Control and Prevention, about 1 pregnancy in 100 at 20 weeks of pregnancy and later is affected by stillbirth. Each year about 24,000 babies are stillborn in the United States.” THIS IS THE UNITED STATES OF AMERICA, and if those numbers do not make you angry at the state of healthcare in this country, then maybe you should check your heart. THESE STATISTICS ARE NOT ACCEPTABLE. 1 in 4 women suffer the loss of a child from miscarriage, stillbirth, or neonatal loss–that’s 25% of women.
That’s Chrissy Teigen.
That’s countless other women who have spoken to me, sometimes in hushed tones, about the miscarriages or losses they’ve never told anyone about, or that they were afraid to acknowledge, or the shame they’ve felt about their “complicated” or “failed” bodies. That’s countless other women who have had the courage to speak out, or that have taken women like me under their wing to usher them through the grieving process, or that had no one to help them on this journey…25% of women.
I guarantee you know someone who’s had a miscarriage, even if you don’t realize it.
I could go off on a tangent about hormone-altering chemicals or carcinogens or the millions of things we do that impact our bodies and impair healthy pregnancies and childbirth, but it’s not the place (and frankly, if you care, you’ll do the research). I think it’s more important to realize the strength it takes to publicly document and share the most vulnerable parts of your life–the good & the bad–when you have the kind of platform John & Chrissy have, because in their status, they raise awareness (I hope).
When we lost Hannah, I met a woman who later explained to me that when she lost her son years earlier, she entered the hospital to deliver a baby, and she left carrying a bouquet of flowers. There was no counseling; there was nothing to document before a nurse or doctor entered the room that there was no baby (and I know firsthand what it’s like to have a doctor ask, “How’s the baby?” and have to answer that “there is not a baby”). There was no special photographer for goodbye photos (a group started up not long after we lost Hannah, called, “Now I Lay Me Down To Sleep” that specializes in loss photography, which is incredible). There wasn’t a care group or support system in place for her, like I had to support me (please check out Share Pregnancy & Infant Loss; they’re a tremendous asset for those who have gone through loss). There really weren’t any devotional books that she knew of; I happened to land on one that was very helpful (I wish I could remember how I got a copy of this book, but it was AMAZING for me). There wasn’t anything in place, really, to help a woman or her partner cope with the tremendous hole left by the death of a child. Thanks to advocates, celebrity or not, resources are now in place to help millions of families heal and come to terms with something that is unnatural and foreign to any expectation we have going into pregnancy. Americans are NOT educated about the risks we face in childbirth. We’re duped into thinking everything will be Instagram-perfect, and we’ll all live happily ever after.
For 25% of us, that is simply not the case. We will always be missing our one special piece of our family photo…
My heart hurts for Chrissy & John, and for anyone who has been on this journey…for wherever they are in this process. I’m grateful for their candor, and I understand to a very small extent, how difficult it is. I hope she & John are surrounded by grace and faith as they set out on the course of healing; I hope that they encounter a restoration only Jesus can give.
Chrissy said something toward the end of the posted article, that she feels “bad” for making everyone else feel bad, as she had chronicled the announcement and the first parts of her pregnancy with Jack, with such joy. I’ve learned that we can’t feel bad for sharing joy, even if it doesn’t turn out the way we hoped. Joy is beautiful, even if it’s for a short season, and even if it ends in sadness. Maybe it sounds terrible now, but the sadness will eventually be redeemed to joy, and the contrast therein will be even more stunning…someday. Not now, but someday.
Chrissy, we honor Jack, and we are grateful that you shared your journey with us…We honor Jack, and Hannah, and Bentley, and Annalise, and Saige, and Savannah, and Brydon, and AnnaBella, and Emmaline, and Emma, and so many–so many–little boys & girls who have gone on to Heaven before us. Our hearts embrace you & John, and our prayers and support are with you. Thank you for being a face and a name for the grief and the struggle we have known; may God bless your family, and keep you close to His heart as you go on this journey…
Every year around this time, I sit down to write with a focus on my Hannah Elizabeth Gayle Cooley. Can you believe she’d be 14 this year? This October 30th, my daughter would be turning 14 years old, & I’m sure had she stayed with us, that our social media feeds would be full of the things that mothers and teenagers are both besties and frenemies over. I’d like to think we’d have a great relationship, and that we would be on each other’s last nerve…that she’d be musical and lyrical, and free-spirited and independent, and that above all, she’d love Jesus. That’s my hope for both of my kiddos–that they love Jesus. I think a lot of parents would say that about their children.
I don’t need to go into the “whys,” for my breakdown (albeit a brief one) into the Ugly Crys. You know me well enough to understand that when I read the phrase, “we got our miracle,” that it broke me. I’m so grateful that HONY shared this story, because I remember what it was like to see that room full of people who poured their hearts out for days, petitioning to the Lord to save my daughter’s life. We didn’t get our miracle, and I can’t paint that in any kind of redeeming light. I will never understand the whys (on this earth), and even if I did, would that make it any better? No. So we pursue on in faith, trusting that He knows what He’s doing when He makes His choices.
Last week, our daily reading plan (click the link, you won’t be sorry–see my last blog for details) had us reading in both Micah and in 2 Timothy. In 2 Timothy, we see Paul coming to the end of his life, as he writes his final words from prison.
In Micah, we see a prophet trying to prepare his community…trying to get them to wake up and seek the Lord for their redemption…He states the oft-quoted,
Meanwhile, as Paul looks at the approaching end of his life, he states,
We have a mandate to “do justice, love mercy, and to walk humbly with our God.” Only when we do these things, can we look at the end of our life and say, with confidence (not arrogance) that we have “fought the good fight,” and that we have “kept the faith.”
This is not an easy thing to do…it’s not a small task, and Jesus knows what He is asking us to do.
Trials–deaths, sickness, COVID, poverty, unemployment, crime, whatever–come and go, but Jesus and His love for us are eternal.
That’s the only reason I have any hope for anything.
After I read the HONY story last night, I tripped up over “we got our miracle,” and my mind immediately went to “why?” I’ve blogged about this before; the “whys” range from plaintive cries to flat-out screams, and they’re always there in some respect. The question is do I stay there? Do I keep questioning, knowing the outcome will always be the same, until I’m face-to-face with Him? Or do I take a deep breath (or 50), let the tears fall, and listen to Him remind me that He loves me? That He’s still in control? That I’m heard, and that He understands? I make a choice every time the “why” comes to the forefront of my thoughts. I choose to “walk humbly with my God,” and that means that above all, I trust Him.
No one ever said that was a fun choice.
Sometimes the world smacks us in the face with that reminder….that reminder that we are strangers in a strange land, and that we can’t let ourselves get sucked into the mindgames and emotional traps that are laid for us: “Dear friends, you are foreigners and strangers on this earth. So I beg you not to surrender to those desires that fight against you“–I Pet. 2:11-12, CEV
Those “desires that fight against” us aren’t just people throwing lusts of the flesh in our face. They’re also the “quicksand” that we get trapped into, that make us question His motives and character, and our own faith. It’s cyclical thinking that kicks off our anxiety and leaves us an emotional basket case. I’m not immune to it, but I’d like to think I can spot the traps a bit easier now than I used to. Those first few years after Hannah passed away? Oooh, I got caught UP in some messes.
Grief and loss are pitfalls for so many of us…playing the “why?” game with God is a dangerous dead weight that only serves an enemy that wants to see us destroyed.
It’s a tender time of the year for us–for David as well as for myself, even when we seem like everything is fine. Our daughter is never far from our minds, but as her birthday approaches, memories come back, and I know I find myself looking at her pictures a bit more…remembering tiny hands, and beautiful, red-pink cheeks (like her Daddy), and how she’d snuggle in to the soft robe my mother had made me…how she smelled like Cheerios, and how to this day, I cherish every photo taken of family and friends because I know how much those pictures of her mean to me.
I’m finding myself ready to withdraw from social events, and from social media in general–whether it’s healthy or not, I never know, but I will tell you that I make no apologies. Maybe that sounds rude, but I’ve learned that if I don’t listen to these emotions, they’ll pop out at the most inopportune times, and I have no desire to have another flippin’ sobfest in the middle of a Hobby Lobby, so if I tell you I can’t make it, let me be. 🙂
I started writing a piece last night that I think I will leave unfinished; I feel like it makes a good conclusion, even though it’s not fully written, because “unfinished” feels like a pretty good way to describe how I’m feeling through all of this….
There’s nothing I love more than misheard lyrics. Let’s be honest–if you’ve ever been stuck in a car with me (I’m talkin’ to YOU, David!), then you know I sing with the radio non-stop (as does my child, LOL. Karma!). You may also know that I’m a master of covering my tracks when I don’t know the words to something. It’s seamless. 🙂 From lip-syncing the ubiquitous “peanut-butter-jelly-watermelon” over the unknown track, to filling in whatever words that sound like the proper lyrics, I can fake my way through a lot of things.
Anyways, I’ve noticed that I apply these same concepts to misheard scriptures on a regular basis. “Why am I hearing the Bible?” you may ask? Simple explanation (please click the link because it’s awesome): The Way St. Louis Bible Reading Plan
Our church is following a daily Bible reading plan, and I absolutely love it. I love it because if you click on the link above, then click today’s verses, there’s a small “volume” icon on the upper right:
When you click on the icon, an audio version of the Bible passage (by the acclaimed Max McClean) plays, which give me a fantastic way to listen to the day’s passages on my way into the office (I’d like to say that I’ve gotten holier on my commute; alas, this is not true. I’m a work in progress.). I’ve been able to stay caught up for the most part, and it’s been very thought-provoking. It’s also been a great resource to help me stay focused throughout the anxiety issues I discussed last month (which are doing MUCH better, so thank you for praying for me!!). I’ve really loved hearing the Word on a daily basis, and it’s sparked some fantastic conversations with my husband.
Yesterday, though, something very interesting happened that made me laugh, and ties into the whole, “misread lyrics” start to this blog: I misheard a Bible verse.
What I heard, though, was, “So rend your hearts and not your governments.”
Pause–think about that, for a second. “Rend your hearts and not your governments.”
Now, I know the message in the verse itself–“don’t focus on showing outward grief or repentance for your actions; have true repentance in your hearts, and come before God with true mourning and by turning from the ways you’ve been living.” The verse is all about ending fakeness and false narratives. Be real, or don’t bother–don’t have Instagram-I’m-sorries without true, heartfelt changes. It’s particularly relevant for today’s world of staging EVERYTHING for that photo finish. God wants us to be genuine with Him–after all, He’s never been anything BUT genuine in how He loves us, right?
But check out my misheard verse again: “So rend your hearts and not your governments.” Let’s look at that, because I can’t get it out of my head:
This week, President Trump went into the hospital with COVID-19 this week. Love him or hate him, the leader of the greatest nation in the world was hospitalized with a disease that has proven fatal for thousands of people. I was shocked to read that many, many people wished him sickness and/or death, simply because they disagree with the politics/personality/policies he has implemented or statements he has made on social media.
I’m not so sure why I was shocked (minus the fact that, well….that’s kinda treasonous).
I mean, people post how much they hate the President on a minute-by-minute basis…but to wish him death? That’s pretty obtuse. I’ve had issues with every single President that’s run this country since I was eligible to vote, and have never wished that they up-and-die; what the heck, people?!??!?
The anger and rage in this nation by any people group that feels slighted for whatever reason, is palpable. I’m not dismissing groups in that statement. I’m saying that there are SO many angry people, and SO many reasons to be angry, and SO many causes, that no one can keep track of who-what-where-why anymore, and it’s all blurring together in one giant black hole of rage that’s suffocating the country.
Anger is legitimate. It’s a legitimate emotion, & it’s worthy to be heard. God gets angry, right? Right. He also gives us specific instructions on how we handle anger, and wishing death on people doesn’t really seem to be part of the plan of action. Ephesians 4:25-26 says, “Therefore each of you must put off falsehood and speak truthfully to his neighbor, for we are all members of one another. 26“Be angry,yetdo notsin.”Do not letthesunsetuponyouranger.”
If we’re unhappy with our government, wishing death and violence isn’t the solution. Positive changes by positive actions are the only solution. Vote. Period. If you don’t like who’s in charge, we live in an amazing country where We the People have the rights and the abilities to make the changes we want to see.
Mishearing Joel 2:13 made me stop and think about all of the comments, the snide remarks, the fighting and arguing, etc., that I’ve heard over the past few years regarding the leadership of this nation. Everyone has their agenda and is screaming to make their voice heard, but no one is listening. Our words have an impact; our words reveal the intentions of our hearts, and if we’re screaming and shouting at each other, we’re not walking in love, right?
I’m so tired of the fighting, even (especially) amongst Christians. We’re sacrificing our relationships with God and our testimonies to unbelievers in the sheepish support of a political person or party. We’re called to follow Jesus. We’re called to walk in Love, like Him. What does that look like, in a minefield of political and emotional pitfalls?
“Rend your hearts and not your governments.” I think this misheard verse has caused me to stop in my tracks and take a few steps back…I have to check my heart, and repent for some of my own attitudes. I’ve had to recommit to praying for our government and for our nation, and to process whether or not I’ve been more concerned with how my convictions have worked, verses how they have looked. What are the issues I say I care about, and what have I done to not only educate myself regarding those issues, but to advocate in love for those issues?
The online fussing and fighting is not something I get into myself, very often; however, I definitely read quite a few of them (I enjoy my tea, thank you very much–okay, that’s just not nice, Cassidy).
I am alternately appalled and humored by what I read, and I’m occasionally concerned that some people need hired protection based on their keyboard commando statements.
It’s not worth it. Don’t sacrifice your testimony for the dung heap of online bickering.
“Rend my hearts and not my garments.” Stay focused on what is true, honest, pure, lovely, etc. Please join me in praying that a new attitude of such things would cover this nation in grace, and that our leadership (before, during, and after the election) would be sustained and protected. Focus on real, genuine love and faith, rather than “likes” and “zings” in online forums. Maybe then, we will see the healing in this land that the Bible speaks about in 2 Chronicles 7:14, which we so desperately need in this land of anger and rage…
Okay, hold your horses–Before you get all, spooky-Halloween-ish on me, let me ‘splain.
I’ve recently had a few conversations that have brought the topic of death up in weird ways. Whether it’s a conversation about my daughter, or even recent conversations about my dog; the topics of death and grief have been on my mind–sometimes by my own mention, but more often than not, by conversations others have instigated. If I’m having those conversations with someone I’m not particularly comfortable with, I’m usually pretty clinical and factual when asked about the reasons for Hannah’s death. It’s a survival mechanism. When the conversation is with someone that I have a relationship with (like my bestie), I’m much more likely to show the emotion that comes to the surface (as opposed to stuffing it down like a casserole down the garbage disposal. Get. In. There. And Go. Away.). And sometimes, I get caught off-guard, and the emotions show up because they do not care about what impression I leave, or whether or not my eyeliner is waterproof. I’m very fortunate in the fact that that due to amazing church support and therapy that took place for the year after Hannah died, I am completely unapologetic about those times. Tears come, tears go, and life goes on. If I cry, so be it. If people get uncomfortable about it, whatever. I know that’s selfish, but I don’t have time for people that don’t have compassion for the very-rare times that those pesky tears sneak up on me. Like I said, 90% of the time, I skate right over the deeper pain and just get to the facts. I’m not apologizing for the other 10%.
It’s also pretty common for people to randomly cry in my office. It’s totally okay. It stays in my office. Stifling crying leads to feeling overwhelmed, which leads to bad things, so by all means, let’s all cry together.
My Facebook memories right now are all about last September, when we found out that Holly the Boxer was coming to the end of her life. September 4th would have been her 15th birthday, and I miss her.
(LOOK AT HER!!!!!!!!!!!!!!!! Dawwwwwww!)
In discussing Holly’s life, Hannah inevitably comes up in the discussion, because as David will tell you, Holly was officially, as of October 30, 2006, “Hannah’s Dog.” Hannah didn’t know it, but I’m pretty sure Holly did, and when we lost Holly, we sort of lost the last physical connection…We’d lost both of our girls, and even though the losses were nowhere near equal, there was a “tie” of sorts that I won’t even try to make sense. You might think I’m crazy. If this is the first time you’ve thought that, well, this might be the first time you’ve read this blog. Welcome. Oh, and you’re right.
That being said, a few recent conversations have brought up both Hannah and Holly. I was recently in a restaurant (!), and recognized the owner of the place as someone who was pregnant at the same time I was pregnant with Hannah. When the very-young waitress came to take our order, I realized she was the owner’s daughter…the very same age my daughter would be. It was a bit of a shock. It was a gentle realization, a sore spot on the heart, and though tender, it passed. It opened the door for me to have a conversation with a friend where I was able to honestly discuss the actual trauma of my son’s birth–I don’t think I’d ever really shared with her how frightening the process was, how crazy-supernatural peace stayed with me, and how dangerous the whole pregnancy was. Looking back, it’s so easy for me to see just how truly held I was, by God…that tender conversation was once again an opportunity for me to be so grateful for the journey. Sometimes I think I take it for granted.
And sometimes, someone will say something SO random that you know it was a download from the Lord.
I had a conversation with someone yesterday who made a statement that stopped me in my tracks. I have no doubt that she heard from God, even if she herself didn’t realize it (she considers herself to be “spiritual,” but isn’t in a personal relationship with Jesus. She’s also someone that I love to have spiritual discussions with, because I think it’s important to have conversations with people outside of your typical box of same-minded friends). I was discussing the conversation with my friend, and the waitress, and the Facebook memories of Holly, when suddenly, she gave me the strangest look….She said, “I hope this doesn’t offend you…I wouldn’t normally say this, but I feel this so strongly…I just can’t shake this. I have to tell you something.”
I told her to go on, and braced myself for the worst (I immediately remembered that one time some weirdo in Kentucky told me that she kept seeing a little pink ball bouncing around my head…This was a person that already knew my daughter had passed away, and was one of these pseudo-psychics that pretended to tell you her “spiritual sightings” of things you neither believed nor wanted to hear. I politely told her to shut up).
She looked at me, and said, “I feel like God wants to remind you that you’re still Hannah’s mother.”
She may as well have shot me in the chest. I thought I was prepared to hear whatever potentially-crazy thing she was about to say, but when she said that, I had that instant confirmation in my gut that told me she was right-on.
I needed to hear it.
Of course I’m still her mother–that hasn’t changed. I needed to be reminded that I will always be, regardless of the state of the healing process, Hannah’s mother. Galatians 3:28 is the great equalizer of relationships in the Bible, but you know what relationships don’t make it into that list? Fathers and Mothers.
When we’re assigned the role of a parent, it’s eternal. It doesn’t mean we’re going to be parenting for an eternity, but it does mean that bond doesn’t evaporate when we’re gone. She’s part of me. Jericho is part of me.
The little reminders every now and then state that God does not forget. I don’t actually know or understand why I needed the reminder that I’m Hannah’s mother, but He does, and He knew it would hit me at just the right time. I needed to hear it, out loud–not just in my head, not just to myself, but by someone else acknowledging her existence and my relationship to her existence. Sometimes even as grieving parents, we still need reminders that our babies were REAL….they’re more than just a memory.
People talk about ghosts, or energetic presences, or orbs or whatever. I don’t meddle in such things. I do, however, believe that what some may call “para” normal is what we as believers should realize is, “normal.” There’s a spiritual world out there that we don’t see–there are angelic and demonic presences, and there is warfare we may sense but never see. “Para”normal instances aren’t inherently evil…Sometimes, they’re “ordinary” people having a split-second sight or hearing of spiritual things….things that we as Christians, just maybe, need to be a little more open to (particularly in the USA).
I know that verse discusses a spiritual battle, which is not what this blog is focusing on; it also discusses the “unseen world,” which I think is key. “Unlikely” people can hear that word or that insight from the Lord, and He uses them to encourage your spirit.
I think that’s what happened to me yesterday, and how God reminded me that’s a part of who I am. Even if I don’t understand the whys and hows, I know His voice well enough to know when He’s reaching out (at least, I’d like to think so), so I am confident in saying that He’s got my attention.
My takeaway from the encounter was not only the gentleness of the word from the Lord, but also, a reminder to be aware and expectant of the unexpected “Hey, YOU! Gotta tell you something!” that we may get from Him, from places we may not anticipate. It was a reminder that there is an entirely OTHER world out there where things are happening, and that eternity is so much bigger than we realize…it was a reminder that even the deep valley of loss has places where it can’t touch you anymore. We’re free from it, in eternity.
My identity as Hannah’s mother is eternal, just like my love for her, is. My identity as Jericho’s mother is eternal, just like my love for her.
And God’s identity as my Father, just like His love for me, is beyond eternal. There’s more encouragement and hope in those words than I could ever type or even comprehend. It is GOOD, to be loved by a God Who tells us such things…
“I hear the subtle hum inside my head as I push the pillow further into my face, trying to stifle the sobs that are trying to escape: ‘You’re crazy. No one is listening. No one can help you. You’re losing it. Give up already. This is where it all falls apart. You can’t do this much longer. Admit that you’re failing. Admit that you’re nothing. You’re dying. You’re drowning. You’re dying. You’re drowning.’
Over and over, the words run through my head, fast, then slow…louder….louder….it’s a tattooed rhythm that, if I don’t stop it, will become a non-stop stranglehold that stops the air from escaping my lungs.
I feel the panic rising, and I try, try, try, TRY to breathe…I try to pray, calling on the Name of Jesus, knowing that He’s there but completely unable to grasp His peace or to hear His voice. I’m failing in this…just another thing that I’m failing at…
The water rises, and I can feel the pressure…my chest hurts, my heartbeat is heavy and erratic, and I wonder if it’s the stress, or the new medication for the never-ending headaches that seem to be beyond my doctor’s diagnostic abilities. Change a medicine. Order a test. Get some bloodwork. Never tell anyone that your head is about to explode from the weight of all that has been layering up to bury you over the past 6 months…
Don’t tell your mother… Don’t tell your dad. Don’t tell your husband; he doesn’t understand and he thinks you just “love” going to the doctor… Don’t tell your boss…you need this job, you can’t go anywhere else, and you have to make them think you’re on top of your game… Don’t tell your friends…they’re sick of hearing about one health issue after another. Don’t tell your pastors, because you can’t seem to pray this away… Don’t tell your sisters…don’t tell your brother…
Surely taking it all to God is enough…. But I can’t sleep, and no matter how much worship music I pray, how hard I cry out, or what I say, there’s no miracle cure for this….
Five days…two weeks….three weeks…. How long have I been like this? The inside of my cheeks are raw from chewing the sides of them….my skin is a disaster, and for whatever reason, I’m in constant, unrelenting pain in my wrists, feet, back, shoulders, and fingers. It might ebb or secede, but it’s always there…”
These words…my words…were written last week. Last week…it seems like a lifetime ago. I’m not going to say that I’m not struggling, even now, but last week? I LOST IT. We’re talking, hide in my room, cry into a pillow, have to explain myself because my kid saw me lose it, Lost It. I’m still fighting through this, and I don’t say that in some way that says I’m some kind of a warrior or something dramatic. I say it because that wave of overwhelming anxiety is standing on the brink of my sanity for whatever reason, and I know I’m one wrong comment away from falling back into it. Just acknowledging my own fragility makes my chest tighten…I don’t want to go there again. I never did call my doctor…I should have, but I did a Google search on a medication I was trying to get off of, and figured out that panic attacks, massive depression, and suicidal tendencies are side effects of not tapering off of this medication correctly.
That’s not saying that I wasn’t tapering off of the medication–and yes, it was with a doctor’s supervision. I must have gotten confused on the specifics of the tapering, because it hit me like a ton of bricks, and I swear to you, I will deal with migraines until I’m blind before I go back on that medication again. My anxiety is usually manageable, but for the past 3-4 weeks, it’s gotten out of control, and last week nearly did me in. I know that sounds awfully final, but I was not in a good place.
Fortunately for me, God broke through and very lovingly, in His way, reminded me of two things: He loves me, unequivocally. Also, He gave me people in church leadership who know me and love me well, and can handle my frantic text of, “I can’t talk. Pray for me.” They know me well enough to know that I don’t say things like that, and that something is seriously wrong. They checked on me later on, and made sure I was okay…I also had a friend that knew the details of what was up, and listened–sometimes, that’s the biggest thing.
I have such a blind eye sometimes to toxic relationships…like, I’m just used to putting up with so much crap from certain people, that I haven’t even noticed what a blister they’ve rubbed on my heart, until it’s abscessed. I have forgotten to protect my heart, even though I know that when I don’t, it trickles down to my family. When chemistry goes bad (you know, all of those neurotransmitters in your brain that need to stay level or else you go off the goofy-crap-o-meter), coupled with the damages of stress and toxic relationships, it’s the kind of combination that results in only one thing: A CATASTROPHIC EARTH-SHATTERING KA-BOOM.
You know what I told my son last week, when he heard me crying in my bedroom?
I said (after I had pulled myself together), “You know what, Buddy? Everyone’s brain is a little different, and sometimes…
Sometimes, Mommy’s brain is kind of broken.
It gets overwhelmed, and it gets hurt, and then Mommy sort of crumbles and breaks down.
But it’s going to be okay…and I always know that. I just sort of have to reset sometimes, and crying, and getting all of my hurt out, does that; sometimes, Mommy’s medicines make things a little weird, too. I just have to process a whole bunch of stuff, and I will figure it out. Jesus knows what hurts, and what’s in my heart and in my brain, and He will sort it all out.”
How do you explain mental health to a seven-year old?
I have no idea, but I’ll tell you one thing: I’m always going to try.
Maybe if at 7, I had understood any concept of mental health, I would have been able to understand when mental health was good, and when it was challenging. Maybe if at 7, I had understood mental health, I would have developed the language I needed as a teenager, as a college student, as a young adult, as a grown woman, to understand that mental health challenges are NORMAL, and are just as treatable and as common as a headache, once you begin the conversation with the right people. Maybe if at 7, I had understood mental health, I would be aware that you can’t process spiritual concepts like prayer and healing, when your brain is so affected that you can’t sleep, or your eating habits are jacked up, or you’re so anxious that you can’t focus on beginning to get the Word of God into your mind. Maybe if at 7, I understood mental health, I would have understood that things like sadness, anger, stress, pressure, anxiety–NONE of these struggles mean you are a bad person, or that God loves you any differently or any less.
So, for better or for worse, I am always going to be honest with my kiddo about my broken brain.
There are physical, chemical reasons for emotional/mental imbalances…there are also spiritual reasons, and there is healing that needs to be done on multiple levels. I’m grateful for medical health…prescription medication is very helpful, even though getting the right balance of the right medication is tricky (if you’re going through this, please give yourself grace, and be candid with your doctor and with your family! It’s so, so hard, and I don’t think I’m there yet…I thought I was, and then these last few weeks hit). Spiritual health and support is KEY–please talk to your church leadership, and if they’re not the type that will respond to your text or your call for help, FIND A NEW CHURCH. There is no place in the Body of Christ for the pastor that will not shepherd his flock, and I speak from experience. I’m talking pastors, elders, home group leaders–you have to have someone in the church that will help you when you’re hurting. It’s biblical. We’re not made to go through these battles alone.
I’m still working my way through this storm. I’m not on the other side yet, even though I probably seem almost normal (whatever my “normal”) is. I’m waiting on some test results, and I’m probably going to look back into therapy. I still find myself getting caught up in the whole, “it’s expensive, and I don’t have time!!” but then I find myself making time for other things, so I need to figure this out. Stress is INTENSE, especially right now, as we’re one of many families that’s been impacted financially from COVID-19. My stresses and my mental struggles are so miniscule compared to some that I’ve heard about; I know I can’t compare myself to others, and sometimes it works against me (most of the time), but still. These are not the best of times. I’ll be glad to wave goodbye to 2020…and these past few weeks are burned into my brain as the pinnacle of the worst times I’ve had since all of this began (even worse than the spike of depression I dealt with in May).
There’s always, always, ALWAYS hope on the horizon, though, and I will not stop praying that I have my eyes open to the beauty in all of this. There are some amazing experiences that we’ve got to do and to witness through all of this. There have been blessings, there has been laughter, and there has been much to be grateful for. My biggest struggles have been in my own head, and regardless of the reason, I am so grateful that God does not abandon His own, even when they’re stuck in their own headspace. He breaks through in ways we may not even realize…we can’t give up. This world is quicksand, and it’s only getting thicker….I’ve had a recurring theme in this blog over the past year, though, and that’s how He is our Rescuer…He is our Anchor, and He’s also our Life Raft…
So, now that a week has gone by, I look back at the words that I wrote and the heaviness, though still tangible, is fading. I know it’s close by, and can lay back down at any second, so I’ve been doing some things that I know are preemptive…They’re not cure-alls, but they definitely help:
I have some kind of worship music playing in the background all day long at work. Right now, I’m into Maverick City Music and I’m always into Bethel. I also like just about anything by Forerunner Music (International House of Prayer).
I stopped looking at the news for more than a few minutes a day. I can’t deal with the state of this nation anymore, and I can’t handle the anxiety it induces, particularly during this election year, so I’m just checking basic headlines and I’m leaving it alone. Also, I DO NOT ENGAGE IN ARGUING WITH PEOPLE ON SOCIAL MEDIA. I also don’t tolerate people arguing on my pages. It’s nothing but a waste of time that does more to harm the body of Christ and further the thought pattern that Christians are nothing but argumentative, arrogant fools, and I won’t be a part of it. I Peter 3:15-16–I’ve quoted it enough on this blog that I’d better live it out, right? See an opinion you disagree with? Scroll on by. There–didn’t hurt, right? 🙂
I’m sticking to a routine, which is easier since my son is back to in-person school (glory to GOD, y’all!). This includes getting in daily Bible readings or listening to a daily reading. Here’s the plan I’m using: https://thewaystlouis.com/bible-reading-plan/
I’ve explained that certain messes in the house absolutely must be cleaned up, and need to stay clean, because I can’t handle it–messes aren’t peaceful, and I need peace. Since only one of us is working right now, that falls on the other to take care of. This mandate doesn’t win anyone any friends, but neither does having a mental breakdown at 4:30 in the afternoon. I’ve found this image helpful, as it explains things I didn’t realize (and if you’re the one in charge of cleaning, don’t take this as any kind of shade or guilt–that’s how I initially took it, and I started getting worked up over it, and then I realized that hey–I can only do so much. This is just the psychology behind it, and dang it, I’m gonna give myself some grace!!):
5. Deep breaths. I’m absolutely serious about this. I’ve botched a few presentations lately, and I’ve botched a few personal conversations lately, because I get so anxious and nervous that IJustStartTalkingAndICantShutUpAndBeforeIKnowItISaidWHAT?!? And, like toothpaste, you just can’t put those words back in the tube. It stinks. So I’m making myself breathe, deeply, and close my eyes, and refocus–sometimes in front of people, which leads to #6:
6. I’m being brutally, painfully honest. Posting this blog isn’t easy. Admitting my mental state from last week isn’t easy. Telling my husband that I’m cuckoo-crazy-pants isn’t easy. Watching him stomp up the stairs because I’ve unnecessarily snapped at him isn’t easy…and neither is apologizing a few seconds later, when he’s reemerged to find out if the weather’s changed. Admitting that I can be tumultuous (I’m being nice) isn’t easy. None of this is easy. Realizing that one tiny pill can upset this apple cart of a crap brain isn’t easy (and it’s incredibly, incredibly frustrating…not only to deal with, but to get doctors to understand). Having to make myself visibly stop and breathe/blink when in a conversation with a co-worker so that I don’t start bawling, isn’t easy, and neither is looking them dead-in-the-eye and admitting that, “hey, I’m sorry–I’m a mess right now while we adjust some medications” is NOT EASY, and I have to wonder what the professional impact will be. I’m not afraid to ask for kindness if I need to, I don’t think….but–
#7. I am worth it. My mental health is worth sorting out and worth paying attention to. My stability is worth fighting for, especially for my family’s sake, because being a wife & a parent is everything I’ve ever wanted in my life, and dang it, I’m not going to watch that relationship be affected or lost because I didn’t put the time, the education, the prayer, the help, into it.
If you’re still reading, please know that above all, YOU ARE WORTH IT, too. Jesus says so, and He’s said it from the beginning of time. You–not some ambiguous people group. You, as an individual, YOU are so loved, and you are so worth PEACE….I think that’s what mental, and spiritual health, all tie into–peace. We can’t have peace in our hearts when we’re fighting so hard, but we can’t give the battle over to the Lord when our brains are imbalanced. It’s a battle against flesh (the brain) and blood (the spiritual), and it’s one that starts with Him. He uses all sorts of things–meds, prayer, health and mental care providers–He has endless resources, and He loves you so much that He’s in this fight even more than you are.
You’re loved. Keep fighting. We’re in this together—I’m not saying that to be trite; I’m saying it because it’s true. ❤
I know we’re not supposed to compare ourselves to each other, but sometimes the differences are so glaringly obvious that you can’t help but to notice them, and yep–I’ve noticed: I’m boring.
There was a time (and some of you will remember this) where I actually PRAYED to be boring (and my statement of being boring is NOT a complaint). Things in my life were so chaotic that I couldn’t see which end was up, and all I wanted was for things to die down–I needed an ordinary, boring life, and I prayed on a daily basis for some kind of calm to take place just so that David & I could catch our breath!
And, just like that, here we are–We’re boring.
Now, I’m saying this with the full knowledge that much like the proverbial dog-paddle, we look calm on the surface, but underneath, we’re kickin’ full-steam ahead. We’re treading water in the middle of a panic attack, but at this point, SO IS EVERYONE ELSE. Everyone is stressed out, fed up, flipping over, & manic…
And so are we…but we’re used to this, so we’re still smiling. 🙂 I guess I never thought of repetitive states of chaos conditioning us to a lifestyle of stress, but I’ll be darned–it has! I don’t always look at the frantic pace with this same level of calm (LOL–y’think?!?), but for now–even if it’s just for today–I’m a peace with all of it.
So, yeah, I’m boring (and I’m generally okay with that).
I had the opportunity this weekend to hang out with my older sister, Billie. We’re typically as opposite as two siblings can be–she’s short, I’m tall; I like Broadway and rap, and she likes Southern Rock and the Blues (okay, I like everything except jazz, and I think she agrees with that). I love broccoli, & she’d practically shank you with a stalk when we were kids, as opposed to just eating it (this is great ammunition for my son, because I can now tell him Auntie is short because she didn’t eat her veggies. He has no idea that at 5’7″ I am freakishly tall for our family. All of the veggies in the world aren’t gonna make that kid tall, but I can try while I have the chance). I don’t remember the last time we spent 3 days together, and it was a lot of fun. I have to say, I’m a bit envious–at 47, she still stays involved with the music scene and is a fill-in drummer/percussionist whenever she gets the chance. Sometimes, I’m not going to lie–I wonder where music might have taken me, had I given it the chance? It’s those missed opportunities and/or a lack of pursuit that occasionally rumble around in the back of my brain….
This was also my first opportunity to attend Blues Farm, where a bunch of people hung out, camped, and listened to some great music (Jackson Stokes, the Kris Lager Band, and the incomparable Amanda Fish).
Now, I haven’t been camping…ever…and I’ve been told that since I didn’t have to use the bathroom in the woods, that this doesn’t count. Whatever–I slept in the Tent From Hell, so I’m counting it. Speaking of the Tent From Hell, therein lies the title of this blog–“The Blues and Bad Behavior.”
Ever lose your temper so voraciously that there is NO GOING BACK?!?
Like, have you ever lost your temper and basically spit fire and sludge like some kind of vomitous garbage heap?!? Yeah, I totally did. I lost it, and I lost it BADLY. I’ve learned that I should never, ever, ever, ever, ever, ever, ever–get it? LIKE, EVER–try to put a tent up in front of anyone. Like, no one should have to hear that hot mess. It was bad. I think I invented a few swearwords. I don’t even know what I said, but I know none of it was good. In my last blog, I wrote about, “Who Lives, Who Dies, Who Tells Your Story?” & I think I addressed the importance of the words you leave behind. It’s safe to say that if anyone had my verbal launch in writing, it’s a story no one would ever want to read…I flat-out embarrassed myself. I’m a firm believer that profanities should be verbal, never written, and that they’re a lazy man’s way of communicating….and boy, was I slacking on the job. Thus, the “Bad Behavior–“I wish I could take it all back and somehow preemptively wash my mouth out, but nope–there it lays. UGH. Maybe it wasn’t as bad as I recollect….hopefully…maybe it just seemed particularly coarse because I haven’t lost it that badly in a very, VERY long time (pre-child)…but yikes.
(OMG, the gray hair! Get a good look at it, because I’m goin’ in for color in a few weeks! BAH!!) It’s a good thing I was a pretty good distance away from people, and that the people who were within earshot were very, very forgiving.
But, back to the good stuff–The Blues.
I love music. I love music that makes me emote, music that hits my soul and makes me want to sing. I love that God created music as a universal language, that even when we don’t understand the words, we still feel it the same across the world. I love that feeling when someone just blows you away, and all of the hair stands up on your arms. I love seeing skilled musicians that love what they do, and that pour that joy into their melodies and lyrics.
I love seeing people get gross and sweaty on stage, because they’ve just poured everything out there for the audience to hear and to see. I love worship sets that have ended on the floor, because people are worshiping so passionately with music as the medium, that they are spiritually overwhelmed in the Presence of God. Music was made for worship, to worship, the One Who created it. He made it for His pleasure, and He made us in His image, so we respond to it as well.
Music is so, so powerful–I’ve met very few people that don’t like music, and I have always looked at them sideways. I don’t know that life (and I don’t want to). A good musician touches you spiritually, emotionally, even physically in the overpouring–it’s such a deep thing. I love how I feel when I get to be a part of a team of musicians that all have the same goal: To reach the feet of Jesus…to bear witness to that ultimate expression of worship…
Music is amazing.
The Blues as we know them came from the hearts of an oppressed people whose souls were overburdened with the pain of their lives. It grew out of sorrow that eventually transposed to other emotions–love, even joy. It became a genre of music, as opposed to a culture in music. I feel like it gets appropriated a lot by Southern Rock, which is heavily, heavily influenced by The Blues, and that bands have to be careful of making sure credit is given where it is due. The Blues originated from a deep, soul-level longing, pulling from African roots, from slave songs, and from spirituals. I think that in American music, we tend to categorize it by bass lines and chord progressions; I believe it’s much more than that. There are all kinds of categories of The Blues, but when I hear that phrase, I always think of the call-and-responses from the fields where a stolen people sang their hope and laments.
This weekend at Blues Farm had some Blues, some rock, some funk, and a good mix of stuff that anyone can dance to, and it was a ton of fun. The bands that played were approachable, honest, and engaging; the people in the audience were so fun to watch, and I could not have felt more out of my element, LOL–but my sister was TOTALLY in hers! She played percussion for almost 6 hours–I’d be a noodle by then.
One of the takeaways that I had from the weekend (outside of my renewed understanding in my overall boringness) is how music is so gracious and fluid. My sister played with 2 bands that she hadn’t rehearsed with. There was no soundcheck (um, shout-out to Terry, the sound guy, for being AMAZING–sound is difficult to run, and he was primo!!!), no practicing–there was just, “Hey, get in, let’s play,” and that’s SO EXCITING TO SEE!!! As a singer, that’s a freedom I wish I got to have, and I don’t think I’ve ever got to do that–to just jump in on a full set, BOOM, let’s go!!–and to not only do it exceedingly well, but to have fun in the process! I didn’t see ANY ego in the bands–everyone was so humble and so obviously there for the sheer joy of playing. I don’t see that enough in music (or ever, really, in church music–people get so caught up in the techniques and the ego that it falls flat of actually being a joyful experience. I’m guilty of it, too). I always overthink things and then I get scared, even in a worship set. SO. Much. Anxiety. I loved looking up and seeing the drummer and my sister perfectly in sync on various rhythms, solely based on how they felt the music, as opposed to having every “i” dotted. It was messy and funky, and it was absolutely PERFECT. GOSH, it was fun to watch and to listen to!
So, in spite of my Bad Behavior, I wound up meeting awesome new people, at a beautiful piece of property in MO, and listening to some really groovy music made by some true artists. I got to sit in on Live Frickin’ Music, y’all, and I’d almost forgotten just how wonderful it is to be in the audience again..
I took the opportunity to try my hand at concert photography, which was a new experience that I didn’t know I’d like as much as I do (David could have done much better, but I don’t think I was terrible!). I gained a new appreciation for my sister’s level of skill, and a new understanding of music in the process. I had a beautiful 3 days in perfect temps, and then I came back home on Sunday to my awesome husband and my crazy kiddo, who both missed me a ton (and I totally missed them). I’m back on the hamster wheel, but for 3 days, I got to experience Blues Farm, and I feel like (in spite of the Tent from Hell), it was a refresher for my brain.
Yep, I’m boring–I’m nowhere near as cool as those musicians or the people who looked way chiller than me, relaxing in their lawn chairs and enjoying the show. I’m way too uptight (I don’t sit still very well), but it was fun to kick back a few days and to meet new people (which, if you know me, you know I don’t do so well on that part–dang you, social anxiety) who seemed like they liked my neurotic self just the way I am (and who made a great deal of fun of my sister, so now I have to love them forever).
I’m looking forward to hopefully going back to Blues Farm in the future…and to hopefully, better behavior….or duct tape. 🙂 (I swear to you, I will NEVER put that tent up again. I’ll sleep on the bare ground first. I’m not kidding).
Love, Peace, and Loud Guitars Forever, y’all. 🙂 (Or at least, that’s what the Cool Kids say). 🙂
In my last blog, I mentioned that if you look hard enough, Hamilton lyrics can be applied in the majority of life’s situations. I’m doubling-down on it, especially right now (does that get hyphenated? Hmm…). Ever since I first heard the soundtrack, the song, “Who Lives, Who Dies, Who Tells Your Story?” has resonated with me:
I often think of the difference between the written and the spoken word. I had English teachers in high school & college who invested so much into me and into my writing…I hope I’ve made them somewhat proud (and that they’re forgiving of the occasional run-on sentence and/or “excessive verbiage” that one of them often accused me of…and rightfully so…have you read my blogs?!?!?). I’m often told that I write as if I’m speaking to someone, that I’m a “conversant writer,” and I’ve always found that to be an interesting compliment. Like, is that a back-handed compliment? Is it a compliment at all? I’m actually not sure.
My goal is always to write with honesty, even when I contradict myself (which seems more common through these crazy, fluid, everything-is-uncertain time). I don’t mind it when someone messages me and says, “Hey, you’re wrong,” or when they respectfully disagree with me (I have one particular friend who excels at respectful disagreements. I look forward to them, and yes, he’s actually changed my mind on Facebook, so it DOES happen). I’m constantly learning, and I hope that’s my permanent state of being. I firmly believe that when we stop being honest, and we stop being open to other perspectives or to discussions with those whom we wouldn’t necessarily agree with, that we stop learning, and when we stop learning, we stop growing. Honesty and respect are two words we are sorely lacking in society these days, so I want to buckle in and hold on to them more tightly than ever before…
The written word leaves a legacy—it’s the opportunity for us to claim our narratives, for us to leave our mark somewhere, even if it’s just in cyberspace. Every stroke of the keyboard is an indelible impression on the universe that may someday disappear, but with the retention of the digital world, probably not completely. Our Twitter feed, our Facebook statuses…every single one of them is marked in the annals of the digital history of the world. That’s insane—especially when I consider just how many idiotic posts I’ve made and/or “liked” over the years. It gives us an opportunity to truly think before we post: How will this affect my job? How will this affect my family? How does this reflect my faith?
Someone once told me to never end a blog on a bad note—to always try to find a way to end it with hope. I took her advice to heart, and I’ve tried to do that in every situation. I haven’t always succeeded, but sometimes, forcing myself to refocus and to view life through a lens of hope has been such an incredible healing process. Even when I’m drowning in my own cynicism, and I want to wallow in whatever pathetic state I’m in, I have to stop. It’s about His story and how He’s working in and through my life….even when I’m being “pathetic.” He Still Works—through all of us.
I have found myself thinking about the lyrics of Hamilton, and about the concept of legacies, for a few weeks now. It’s not because I have some kind of morbid fascination with death (in spite of how much of it is inundating our media these days). I think it’s because the older I get, the more I realize how short time gets. Days fly by, one bleeding into another, and it feels like it’s going even faster in the wake of COVID-19. I’m on my hamster wheel of work-home-work-home-work-weekend-work, and it feels both exhausting and never-ending. The needs are never met, the questions aren’t getting answered, and there’s no stability, so it seems especially draining. There’s no time to stop—to just stop—and to process before something else comes along to upset the apple cart (THERE IS NO CART! AND THE APPLES ARE FALLING EVERYWHEEERRRRE!). Murders in the St. Louis area are up by 30%, and there’s no justice. The nation is fractured and broken, and we’re on the cusp of an election that would take an act of God to be peaceful (please, God, do something). We are speeding along an Autobahn of chaos, and there is nothing stopping the insanity (that we can see).
The anxiety builds…and it’s tangible.
Time is shorter in unsettled waters…
“Who lives, who dies, who tells Your story?”
I want to.
I hope that I have.
For me, the spoken word gets me into trouble. My lack of a filter combined with a face that physically can’t stop emoting bundles together to create some kind of idiotic verbal Thunderdome. I swear far too easily (a lazy man’s way of expression), I ramble too much, and I struggle with interrupting people. I’ll say it—I’m obnoxious (at times). The spoken word is fleeting & annoying…No one remembers your spoken words, but they sure as heck remember their impression of you based on what you said. I hate to think about what people think of me and of what I represent, based on verbal conversations.
The written word is permanent, and WILL be used against you…
So, how do you want it to be used?
To answer Hamilton’s questions…
I don’t care who remembers my name….have I written in such a way that people remember the Name of Jesus? The Hope that He brings?
Have I kept His flame burning throughout what I write? Will my own words be enough to convict me, if my faith becomes prosecutable? Have I lived a life of clear faith, or have I been satisfied with a lukewarm life of treading water?
“I ask myself, what would you do if you had more time? The Lord, in His kindness He gives me what you always wanted He gives me more time…”
Have I done enough? Have I told Your story? Have I glorified Your Name?
I’ll keep writing “like I’m running out of time.”
It’s not enough.
*Photo Credit: Hamilton magnets by HeyThatsCuteStudio on Etsy–Shop St. Louis! Shop Single Mom!
I think it’s fair to say that most of life’s situations can probably be addressed in lyrics from Hamilton, if you look hard enough. That’s the genius of Lin-Manuel Miranda. If I had a .015% of his brain power, I’d have figured out how to make the whole blogging-thing a career by now. 🙂 Say what you will about the man’s politics–his creativity & talent are simply unparalleled, both currently and in history, and his ability to turn a phrase? RIDICULOUS.
You know what else is ridiculous?!?!?
The fights in this nation right now, over a simple, easy-to-use, potentially fashionable scrap of material.
Wearing a face mask has become this ridiculous, left vs. right, conspiracy-theory laden soap box, and it BLOWS. MY MIND.
I’ve gotten to a place where I don’t feel like I can trust people, where what they say doesn’t match what they do….I don’t feel like people are being honest about their COVID exposures (like, why am I finding out that I may have had a secondary exposure, a week after the fact and through a different person than the one I was with?!?), or about their testing (I’m negative). I promise you, if I’m looking at you, I’m secretly wondering if you’re actually following recommendations, or if you’re gonna be the one that passes along a disease that could kill me.
That’s where I’m at.
I just want to “stay alive.” I know that sounds dramatic, but tell that to the over 1,000 people in Missouri that have died from this garbage (& yeah, I know the amount of flu deaths is higher–this furthers the reason to wear masks during flu season as well as during the pandemic).
I fail to understand why wearing a mask, or a requirement to wear a mask, has become some sort of, “You’re inhibiting my freedoms! If you wear a mask, you’re just a slave to the media!!” HOW DID THAT HAPPEN?!?!?
Look, man, I don’t want to catch this COVID crap. I don’t want to inadvertently pass it along, either. I just want to “stay alive,” and I want my family to do the same. Wearing a mask may or may not be the “best” or “most convenient” method of prevention, but it doesn’t hurt. IT’S NOT HURTING YOU. It’s not hurting me, either.
Frankly (and this won’t win me any anti-mask friends), I feel like if you’re so selfish that you don’t want to wear a simple, little piece of cloth on your face, then maybe you need to check your heart. Are we so arrogant that we can’t stop and pause for a second, and wonder if we may inadvertently infect someone with this virus? Are we so arrogant, and so blind, that we can’t possibly fathom that we may catch this thing ourselves??
I feel like a certain faction is stuck in that whole, “well, nothing bad will EVER happen to me” line of garbage that some people like to believe (Christians are particularly bad about this, thanks to a hot streak of prosperity-laden garbage preaching in the 90’s). They’re stuck in this faction that they’re so awesome, that germs couldn’t POSSIBLY stick to them and be passed along to someone….’cause they’re PERFECT.
Y’all are delusional, and you’re gonna kill people.
SO, now I’m struggling with not being in fear so much of the disease, as I am afraid of the lack of honesty and reality to the people I’m surrounded by.
If you’re angry at a store because they’ve decided to make it a mandate that you wear a mask when you go through those doors, check your heart. THEY HAVE EMPLOYEES TO PROTECT. They have massive liabilities, should they have a positive test affect their business. This nation hasn’t been this financially fragile since….well, since Alexander Hamilton built our financial systems. It’s only by the business practices of our current President that we’re not up a creek right now (say what you will about the man; his trade arrangements and positions on jobs are doing wonders for our country). Businesses need to stay open; people need and want to work. If your arrogant self marches in their store, even if you’re asymptomatic, and inadvertently infects people, then you could cause the fallout from this pandemic to continue going on for months…Or you could inadvertently be responsible for someone’s death from the disease…
Wearing this tiny, 4×6″ piece of material on your face ISN’T HURTING YOU. It’s keeping you from spreading as many germs, and it’s keeping you from inhaling as many germs (it’s obviously not fail-proof. No one is believing that lie). It may not be comfortable (I’m broke out from mine), but they’re inexpensive to make and to buy, and it’s a simple thing you can do to prevent and/or slow the spread of this disease.
I can’t understand how the anti-mask faction justifies the risk over their own comfort. Because people can’t be personally responsible and take control over their own actions, now the police and the government have to step in like we’re selfish little babies, and make masks a mandated thing.
Because people can’t be personally responsible and take control over their own actions, stores like Wal-Mart are requiring you to wear a mask for your own protection. How stupid is that, and how personally insulting is it that WAL-MART has to tell us what to do?!?!? WE LIVE IN A SOCIETY WHERE FRICKIN’ WAL-MART IS TELLING US WHAT TO DO. I’m offended by the fact that it’s come to this point (also, I hate Wal-Mart–but y’all already know that).
EDIT: I came across this meme and laughed so hard that I had to add it back in here. Please don’t be offended—okay, maybe be offended a tiny bit–but c’mon, you KNOW it’s true!!!!!!!!
Look, I don’t particularly like wearing these dang things. I have to wear one in my office, so I get it…but I also, again, don’t know or care about the comings-&-goings of other people in my office. I don’t know or trust that they’re being responsible on their “off” time, and I’m not taking any chances. I know the science is questionable, and my trust isn’t in this little piece of material; my trust is in God.
The Bible tells us to ask for wisdom, and to act with wisdom. My wearing a mask doesn’t mean I’m a lemming or a leftie; it simply means that I CARE about my own health, and the health of those around me.
Our freedoms are not being taken away because a store asks us to mask up–that’s a conspiracy-theory laden mindset, and you can go down those rabbit holes all day long. Just put some tin-foil over your ears, if that’s your line of thought. 🙂
There are enough conspiracies out there that are MUCH more frightening than a simple, 4×6″ piece of materials, people.
Just wear the dang mask. It’s seriously not hurting you, and in some cases that you may never realize, it just might save your life.
And don’t get salty with those stores that are requiring a face covering–you have no idea what it’s taking for business to stay open right now, and if wearing a little piece of fabric over your pie-hole keeps this economy going? To quote a company I shall never name again, “just do it.”
For a list of Missouri mask requirements, click here.
For CDC mask information (which, as we all know, changes every day–this fact has NOT escaped me, people. I trust them about as much as I trust Missouri weather), click here.
And, to listen to the full soundtrack of Hamilton (because it’s amazing), click here.
There are a great many things that have happened over the recent months that have made me wonder how we are still walking the earth. Like, when Paul wrote, “And do not grieve the Holy Spirit of God, with Whom you were sealed for the day of redemption, (Eph. 4:30)”…how often are we doing just that? I read headlines and Facebook posts, and “news” articles, and moments in history that I never knew existed, and I feel like we should be wiped off of the face of the earth…We’re a terrible species of people.
I’m in a group on Facebook that sells leggings—LEGGINGS, people. Soft, comfortable, bury-me-in-them leggings—where one post about a pattern for law enforcement support blew up into the most hateful, racist, condescending, evil “banter” that I’ve ever read in my life. From LEGGINGS.
Christians are fighting with other Christians. It started with the mask-wearers vs. the non-mask wearers; now it’s somehow the “my freedoms are being violated!!!” vs. the “I don’t wanna die from COVID, and you’re an inconsiderate bastard if you don’t wear a mask!!” And yet all of them say, “Yeah, we love Jesus!!!” “We support the police” is now equal to, “well, you’re a racist,” but “Black Lives Matter” means you’re either a lemming, a White Savior, or a militant. There is no “agree to disagree,” and there is no “middle ground.” Blood is being shed, lives and careers are being ended, and #CancelCulture has taken over.A young man recently opened up an app on his phone, which told him his stock values had dropped to negative $750,000. He then killed himself…but what he didn’t know, was that the app had glitched, and the data was wrong. It was too late for this kid. He based his very survival on what was false information….he made a quick reaction to what he thought was truth, and now his family is devastated. I feel like this poor kid is indicative of our world right now. We read posts, and we hear stories, and we react (and we post our reactions). We have knee-jerk responses to anything and everything, and we spout off our opinions or our dramatic rebuttal. We’re so quick to pick up offenses and to drag them around like roadkill that’s hung up on an exhaust pipe.
We do not stop and take the time to take things before the Lord in prayer before we make permanent impressions with either our mouths or our keyboards, and we leave a trail of broken hearts and souls in our wake. There’s a reason why I’m saying, “we.” I’m guilty. I’m totally guilty of a knee-jerk, biting response, or an embittered eye-roll, or even of being a part of Cancel Culture in my mind. And I guess because I’m not publicly sharing who and what I think should be cancelled, I tell myself I’m not playing a part in it, but I totally do. I have people and establishments that are 100% dead to me, and I’m not proud of it. Resentment and bitterness are suffocating, and they’re a chain I believe we all risk carrying around… And our world is beleaguered with it. Like the Dickens tale taught us, I feel like we’re all a bit like Mr. Marley, with our chains and our boxes dangling around our necks, but we’re too busy squawking like a bunch of chickens, looking at everyone else, to notice that we’re about to go under…We’re all tired, and we don’t even realize that’s why. These chains and these burdens are heavy, and there’s nothing to make them any lighter.
Yesterday, we celebrated Juneteeth (which should be a national holiday. Mr. Trump, please make it so), and we took notice far more this year than in any other year, of the weight of that day: The End of Slavery in America. The chains were broken, at least physically….but we all know they’ve lingered for generations even still. I sat in our home group yesterday and commented that when I read the passages in Ephesians 6 about slavery, I wondered how we as a nation got it so wrong? I read in another post today about how we as white Americans “Disney-ify” the Bible to make ourselves the Israelites—God’s “chosen” people—when if we really think about it, we were more like the Egyptians, building our cities and our country on the backs of those who were stolen from their own lands.
Ephesians 6 gives clear instructions about slavery; the term, “bondservant” was a more accurate translation. There was to be a working relationship between master and slave, a mutual respect. It was to be more of a worker/boss relationship, than an abusive relationship. Our ancestors, who came here under the guise of religious freedom, twisted it so much (and I believe the biggest parts of that were rooted in erroneous translations of the Scripture by the Church of England at the time, who were in cahoots with the royals…everything was bought and paid and traded for, and I seriously question the authenticity of certain translations/paraphrasings of the Bible based on the studies I’ve done on the topic. I digress.). They twisted the Scriptures and used them to kidnap, abuse, and enslave people and to force our belief systems on them, to support their deceptive ideas. The irony of it all—religious freedom is used to enslave a race?!?—is nauseating, and the more I learn the history of the African American people in our nation, the more my heart grieves. I wasn’t taught any of this stuff in school. I learned a little bit about slavery, but outside of watching Glory, I didn’t get it. The Tulsa Race Riots? I first heard about it last week. Ruby Bridges? I had to Google “little Black girl, integrated schools,” because I knew the story but I didn’t know her NAME. Juneteenth? I learned about it when I was 31. In going to a Christian school, one of the things I’ve struggled with as I’ve learned and read more, is that the history we were taught was so whitewashed. I’m sure it wasn’t intentional, and it was in the 80’s & 90’s. The truth remains, though, is that it was. There was a complete imbalance in the history of minorities and of women in what we were taught, verses the history of male achievements. What’s the saddest, is that I didn’t realize it until I was an adult.
There is a difference between rewriting history and writing history. I do not think the textbooks I learned from rewrote history, but I sure as heck KNOW they omitted history. I believe our history books need to be expanded to include the stories of the amazing contributions of women and of people of color. They need to even out the representation, and if that means our general history classes take 3 years to get through instead of 1 semester? GOOD. “Those who cannot remember the past are condemned to repeat it.”—Santayana. My high school history teacher drilled that quote into my head, and I think it’s truer now than it’s ever been. The more I learn about the gross abuse that people went through at the hands of our forefathers, the more I see it coming back for another round…. Because we’re not learning. We’re not learning to Be Kind. We’re not learning to share Jesus. We’re not learning to Love… If anything, we’re getting better at hatred, and it’s so sad and it’s so scary. I have a child to raise in this mess. I have a responsibility to teach him to love first and foremost…to teach him to “seek justice, to love mercy, and to walk humbly” with the Lord (Micah 6:8)…to know his own privilege and to use it to stop the mistreatment of another human being at any cost… I have a responsibility to set the example, myself.
When Ferguson happened, I was, “All Lives Matter.” I was challenged by a few friends who were digging into Civil Rights, into true justice, who led me by example to really pray about it. I started reading, and listening, and having those Uncomfortable Conversations where I realized that I was wrong—no one ever said that all lives DON’T matter. I started to understand that Jesus left the 99 to find the one, and that That One Mattered to Him, so why am I sitting here with my arms crossed, clicking with the 99? If He cares about That One, so should I…and so should my son, and so should anyone that knows me. I truly believe that Black Lives Matter, and I can say that without being disingenuous. I still struggle. I still struggle with stereotypes, and with using the wrong words, and with being so afraid to offend anyone that I won’t say a word during the Q&A portion of the endless Zoom courses on inclusion and diversity that I’ve sat in on over the last few months. I still struggle with the knee-jerk reactions and the type of mentality that you get when you live in a primarily white, rural area and where you’re oblivious to your privilege (which just goes to show you how privileged you really are—that’s another diatribe). I’m not the poster child of Woke White People, and I would never pretend that I’m on some kind of Civil Reform Bandwagon… But my heart has changed since Ferguson. My heart has grieved since Ferguson…for the sights that I saw in the aftermath, for the anger that burned the city to the ground, and for the pain that boiled out of people..people that are fellow Americans, that feel betrayed by this country that brought their ancestors here illegally in the first place. That pain is deep, and it’s a generational wound that I cannot understand…but I can listen. The protests that are happening in the wake of George Floyd are different this time around (and not just because the case is so clear-cut, or because we’ve gone down this road too many times before). The spirit of the protest is different, and the violence that’s trying to sneak in is much more pronounced in how it’s deviant of the true heart of the message. People are crying out for real, tangible, measurable change, and they’re sick of empty words and ideas. I don’t know if we’re willing as a nation, to put the work in that making these changes will require. My cynical side says we have no idea what we’re asking for…and my spiritual side says the only way any changes will come is by the power of the Holy Spirit.
God is grieving over our nation and our world. His very heart is grieved…I believe, and I hope with all of my soul, that this world is on its way to the Great Revival that I’ve heard was coming ever since I was a child…that the heart of people would be so drawn into praying for change that an encounter with Jesus Christ is inescapable…The Civil Righteousness organization (www.civilrighteousness.org) is covering our nation with prayers for lasting change, and for “spiritual, cultural, and economic renewal” by way of intensive prayer, Hope Rallies, fasting, and more…I am agreeing with them in prayer that we’re on the cusp of a national breakthrough, and that all of the pain of the last few months is like the birthing pains for a new nation that seeks the Lord’s face as we head into what I believe could be the last days…
Because we’ve grieved His heart long enough…and the burdens we carry, and the burdens our ancestors put on other people, are heavy….and His word tells us that His yoke is easy, and His burden is light. It’s time to lay our burdens down, and to seek healing and revival in this land.
Some of you may have caught that back in February, my thyroid cancer decided to make a comeback. In typical “Cassidy” fashion, my sense of timing was AWESOME, and as the country was shutting down from COVID-19 in March, I was running back and forth to the hospital to have injections and scans done (Thyrogen injections and RAI with a full-body scan, for those that understand this garbage). This was all set up after my tumor markers (which were 0.00 back in December, which is why BJC decided to release me from monitoring for 3 years back in January ’20) jumped up to 0.7 in February. That may seem like a nominal amount to some, but in my case, it was not a great sign.
So, I had the full body scan done, and just like the last time I went through the test back in 2018, the full body scan was negative. Unlike in 2018 (when my labs were pretty clear), the labs said the cancer was present, but the scan didn’t pick it up (I have cloaking cells. Very Star Trek). In that case, the line of care is to repeat the labs and check the markers, and based on those changes, possibly to graduate to a PET scan and (I hope) eventual surgery to remove the threat (in my case, it’s a few lymph nodes in my neck that have been suspiciously enlarged for the last few years. Large lymph nodes with clean labs = No big deal. Large lymph nodes with positive labs = Kind of a big deal). I know it might sound crazy, but these lymph nodes have been a thorn in my side since my original diagnosis back in 2015. I’d really like to get them out of my body. I don’t know if taking them out will reduce the chances of the cancer showing up elsewhere, but either way, they stress me out, so I want them gone.
My endocrinologist said that if my tumor markers have gone up to 1.0, we’ll move on to the PET scan. I put off getting the tests done until the absolute last possible minute, which was this morning…
Labs are completed…so now, we wait.
I think the hardest part of any medical decision/result is the waiting. It’s like, “Let’s hurry up and get this done…but wait until your insurance approves it,” or, “let’s hurry up and get this done…but wait until the results come in, then we’ll do another test, then we’ll wait some more, and eventually, we’ll have answer…maybe…but that answer may just be that we monitor the condition, so yeah, our treatment advice is just to keep waiting (even though you feel like you have a ticking time bomb in your neck).”
Man, I don’t DO well in the waiting–haven’t we already established that, Lord?!?! Like, YOU KNOW I don’t wait well. I’m not saying that I’m going to sit here and worry until I get the test results, because I’m not going to LET myself say that–I’m going to argue with myself and pray for peace. I’m not going to worry. There’s enough worry in the world, and worry stresses out every body system. It doesn’t MATTER what the test results are–God is still in control, I’m not going to die from this, and it’s going to be okay. It’s the easiest kind of cancer to treat–so much so, that there are some that debate whether or not it’s an actual cancer (although how that’s debatable, I do not know). It really is the stress in the waiting, and the stress in the process, that’s the worst.
I have a friend right now that has metastatic breast cancer (and her treatment during COVID-19 has been terrible–I think the medical industry has let their standard of care drop significantly in the wake of trying to prevent the spread of the disease. Patients are still people, and they still need actual care). We were emailing yesterday, and she said something that really caught my heart: “I just want to feel normal again.”
I’ve said those words. I think anyone who’s been through a major medical issue has said those words, and the truth is, the day you received your diagnosis, your “normal” changed. You don’t look at life through the same lens. People can choose to let it define them, to make it part of their identity. I don’t believe that’s a healthy approach (although you do you–whatever it takes to get through it, do it). To me, it’s not a badge. I told my friend that it’s part of my story, but it’s absolutely NOT who I am, and it’s not something I candidly speak about to just anyone (although here I am, blogging away. Yeah, I see that.). I think doctors let it define you–every time I go into a medical office, I get 3 things: History of congestive heart failure. History of thyroid cancer. History of diabetes. Every single other thing that has/can go on, is looked at through those lenses, regardless of what I say. That can be frustrating, but I know now to anticipate it. I can live my life with cancer in the background; doctors can’t treat me without considering the history at the forefront. I get it.
But as a human being (and I say “being,” meaning that “as a present, focused individual”), and as someone who says they believe in a Creator Who defines them, cancer/other medical issues are a consequence of living in a fallen world. They don’t reflect Him, and they don’t reflect Who He sees me as. Jesus loves Cassidy. Yes, He knows Cassidy the Cancer Patient, but He Loves Me as who He made me to be, and who He made me to be is whole.
So, that’s how I identify–I identify in hope as someone who’s jumped through the hoops and has come through the other side, unscathed. I might be scarred, but I’m not burned; that might not make sense to you, but that’s okay. The hardest thing for me to deal with through this resurgence of cancer cells is anger, and I’ll admit that it’s still an issue–but I’m not mad at God. I’m aggravated at the Enemy. Cancer didn’t come from God. It came from Satan, and he sucks, so yeah–I’m mad at him. I’m mad at weirdo-genetics and my own laziness, and the frustration of the American healthcare system, and the cost of the procedures, and the feeling like my own sin caused this to happen to me (that’s a lie from the pit of Hell. God is NOT sitting in Heaven with a Smite button. I believe in pleading the Blood of Jesus over sins for my redemption, so no–I’m not being punished by God with cancer. People that teach that kind of religious garbage need a swift kick in the head with the book of James. That’s a whole ‘nother conversation).
God does not look at us through a lens of sin or of sickness. He sees us through His Son, and He sees us through Love, so even though I’m angry at my present situation, I am grateful and I believe that He knows what He is doing. I think my best course of action is to get these rebellious lymph nodes removed. I’ve caught myself pleading my case for that to God, and I have realized that it will be a hard pill to swallow if He says, “no.” That will mean I’m back to square one with a treatment plan, and that I’m back on the hamster wheel of, “hurry up and wait” for another 3-5 years (which may happen if I get the nodes removed. My hope is that if I get the nodes removed, then we can just do periodic lab work instead of ultrasounds and scans).
Part of the new “normal” after a medical diagnosis is relearning how your body is going to function; it’s learning new medications and side effects, and how you need to treat yourself in regards to them. It’s learning the signs of when you’ve pushed things too far, and of listening to your body. It’s educating yourself and your loved ones to hopefully understand and extend grace when you’re not yourself, and it’s part of finding out how to be YOURself, when things can come along chemically, that try to alter that. It’s learning how to reach out when you’re frustrated or sad, and to find someone who can and will listen without judgement. It’s learning to ask for help, even if you may be a person that hates doing so. Asking for help is not a sign of weakness (I’ll say that again, for the people in the back: ASKING FOR HELP IS NOT A SIGN OF WEAKNESS. Thank you.).
Part of the new “normal” is learning to handle a load of fear, impatience, and apprehension that comes at you from every side–from well-meaning friends and family; from physicians; and from yourself (just think of them as these guys: Fear, Impatience, Apprehension–bloodthirsty little hyenas).
I’ll definitely admit to struggling in this department. Once the “C” word is in your vocabulary, it stays. Some days, it’s a Hollywood marquis; other days, it’s a whisper in the back of your mind. When I’m not in active treatment, it’s usually just a whisper. My daily struggles involve the thyroid replacement meds and the HRT–one missed or mistimed medication can wreck me for days, so I have to have constant organization to remember to stay on top of those things. And because my memory skills aren’t what they used to be (age, meds, oxygen loss, etc.), I have mental systems in place to try to keep things straight, but sometimes, I make mistakes (For anyone who’s on a regiment of multiple medications, I highly recommend PillPack. It makes things SO much easier!!! And they handle vitamins, too, which is nice). Fear, impatience, and apprehension are not from God, so we (I) have to come to a place where we recognize those feelings as they’re coming on, take a stand, and lay them at His feet. Easier said, than done.
And that brings me back to today…The labs are done.
He truly is in the waiting….And in the waiting, we (I) take deep breaths; I focus on knowing that it will all be okay; I pray that God would provide clear answers and direction; and I pray that I will hear Him clearly…
Some people would say, “Well, why don’t you just pray for healing?” Sometimes I think it takes more faith to believe for a healing, than it does to pray for a resolution. I think that’s another blog I will eventually be able to write–there’s a lot to unpack, there.
Right now, we wait. And like my sister’s macaw likes to say, it will be “allllllll right.”