life

Dementia, Legacies, & the Hope that Remains…

/ Cassidy S. Cooley / Leave a comment

I found this picture in my Facebook memories today, & it resonated with me once again.

You see, in the midst of everything that’s gone on in the past 6-8 months (job changes, job losses, losses of family members, etc.), my husband & I have also been walking through dementia with his mother.

I think the trauma responses have finally quieted enough that the reality of my mother-in-law’s condition is finally hitting me.

I married The Golden Child—I married The Baby of the family, & those who attended my wedding may remember that when my stepdad got to the whole, “if there’s anyone who has anything to say about why these two should not be married,” etc (which I begged him NOT to say, but he said he had to), I physically turned my body & stared down my Mother-In-Law, because if anyone was going to say anything, it was her. 😊Everyone laughed…except us…😊

 I knew what I was doing and where I was marrying into, & I knew I had my work cut out for me…but she also knew I loved her son, & that he loved me. It has to be a hard thing, to marry your son off…Lord knows, someday, the shoe will be on the other foot, & I will have a young bride staring down at me, LOL! Oh, honey, I AM NOT THE ONE!!! 

That being said, my MIL & I had some transitions to walk through. We learned, though—after all, at the bottom of everything, was the fact that we both love David ferociously. I began to learn about being a wife and eventually, a mother; she began to learn that no, I’m not a great cook, but I can bake, I can stain a deck, & I can wheel her through a mall like nobody’s business. 😊

My MIL could try someone, but she could also teach a thing or two. When doctors told her she’d never hold her knitting needles again, she’d crochet blankets for days. She’d make the most creative jewelry, & she’d proudly show me all of her pieces every time we came over. She’d make beautiful beaded ornaments, & she’d share her handicrafts with everyone that visited. She constantly made things & shared them, and talked about how much people liked her colorful designs. I love creative people, & I loved to see what she’d made…I have so many things she’s made, & I’m grateful. I shared things I made with her as well, & I have so many fun memories of family get-togethers with everyone at her house…

As time has gone on, though, dementia pulled my father-in-law away from us & made family events a bit more challenging. My MIL became basically confined to bed, and is now in a nursing home facility where her dementia has taken over…The loss of who I knew Vinita to be, with the behaviors & outbursts she’s been prone to having, have made me advocate for her even more strongly with the hospice and nursing home teams, & she is now, thanks to hospice, getting her medications more consistently. This means she has more stable days, and has less bouts of tears and anxious behavior.

This doesn’t mean her dementia is resolved, though; yesterday, the social worker said she thought she was a child. What is that like, to think you’re a child, but to be in the body of someone in their late 70’s? How confusing that must be…to sit & think about it from her perspective, really hit me emotionally this week.

At some point, my mother-in-law will not know who my husband is.

This realization breaks my heart. I find my faith challenged in this situation—I mean, why? Why does she have to walk this walk? Why wouldn’t Jesus just take her home and give her rest?!? I don’t understand, & I’m trying to take the deepest of breaths to ask Him even though I know He’s under no obligation to divulge his plans.

The social worker said when she came in yesterday, that my MIL thought she was a child, & that she went on-&-on about the goodness of God. “Ms. Vinita had a good day.”

On the bad days, she cries & asks Jesus to heal her body….

On the lucid days, she asks Jesus to take her Home…

The picture that came up in my Facebook memories speaks to how I find encouragement with “Ms. Vinita” even now…on the good days, we remember His goodness. On the bad days, we cry out to Him. Every day, we thank Him and we focus on Him, regardless of how we feel or what our minds tell us…

I know we’re saying goodbye to someone who is still here…I still don’t have that reconciled in my brain. What I have burned into my spirit, though, is that Ms. Vinita’s legacy will always be that no matter what we’re enduring, we take it to the Lord in ways that defy understanding & expectation. I find myself encouraged in my faith even as I’m struggling to make things make sense, by her example. We call on Jesus…in the good, in the bad, and in the in-between.

I hope when my time comes, that even a small part of that is in my legacy to leave.

We love you, Mom Cooley…we’re thankful to Jesus for how He holds you in His hands…

“You Are Loved.”

/ Cassidy S. Cooley / Leave a comment

I woke up this morning to this note on the bathroom sink:

“Hey, Mom, Jericho here. Just wanted you to know, take care of yourself and that you are loved. Love, Jericho.”

This note has now been permanently scanned into my online drive and tacked to the corkboard in my office where it shall remain in perpetuity.

This note may wind up eventually tattooed somewhere that remains to be seen.

This note both undoes me & revives me simultaneously, in the best & worst ways…

My son was 2 years old when I was diagnosed with thyroid cancer. Thyroid cancer is the “good kind” of cancer, they say–it’s the kind where they remove the issue, supplement you with Thyroid Replacement Hormones, and send you on your merry way. Those that know me well, know this has not been my journey; I’ve had clinically-detectable thyroid cancer for almost 10 years now. “Clinically detectable” means that it’s still there (“residual activity in thyroid bed”), but not in so many levels that they can go in and physically remove it. I liken it to having a time-bomb in your neck, just waiting for it to either die or explode. It can be a mental process, for lack of a better word, to ignore it. On the plus side, thyroid cancer is notoriously slowwwwww, so although my tumor markers have gone up-&-down over the years, I’ve never gone so high that I’ve had to have a second surgery (there are plenty of times where I’ve begged them to just take out the remaining lymph nodes in my neck so that there wouldn’t be anywhere else for those booger cells to hide!!!).

It’s not uncommon for me to say the removal of my thyroid ruined my life. Getting my medicine titrated correctly has been a process, especially with the weight loss; the initial determination to figure out what medicine would work for me, darn near killed me. The thought is to keep my TSH levels so suppressed, that it makes an unfriendly environment for the tumor markers, & they’ll eventually, hopefully, just DIE (can we get on with it already?!?) Issues with diabetes, sleep apnea, & my legs/feet have been ongoing since my thyroid was removed…but the worst thing that’s happened since my thyroidectomy has been, hands down, the FATIGUE.

This is not like, “ohmygosh, I’m TIRED.” This is not like, “I’ve been up all night with a crying baby & now I have to go to work,” tired. This is not even like, “it’s finals’ week & I have 4 papers, 3 tests, and a volcano to make,” tired. This is literally like some evil being sneaks up behind you, cuts off your ankles & throws a lead cloak over you as you fall to the ground, dead in the water, can’t move/think/function, TIRED, & it hits out of nowhere. I usually say, “oh, look, someone’s unplugged me,” & down I go…

I’m truckin’ along yesterday, got home from church, started working on the laundry (I normally do this on Saturday, but we went to an art show on Saturday, so please don’t judge me for doing chores on a Sunday), hung up a few things in the sunroom, & stopped to admire my work….BOOM. I’m on the couch. “Just give me a few minutes.”

My son brought me a blanket & a pillow. David made some dinner. I laid there & took my few minutes. They both know how this goes–they know once it hits, I’m dead weight. I think they hate it as much as I do, because it’s not a good look to see your mom/wife deflate like a sad balloon.

It affects them as well, & I truly hate that.

I hate that I’ve had to cancel plans, or that I have to be so strict about weeknight activities (I can’t really do them, or there’s hell to pay the next day). I don’t like going to bed at 8:00pm. I have to stay disciplined about what I commit to, because there’s just no gas in the tank & I need to stay employed. Now that I’m back in an office full-time, I have to prioritize how much I do in my non-working hours, because otherwise, things get skewed. I have to be selfish with my time & protect it in ways I’ve never really committed to, before.

I now know that when I don’t establish & protect boundaries related to how I spend my time & energy, that fatigue leads to major issues—brain fog, sickness, impulse-control problems. My mental health swiftly declines, & I wind up in crisis mode, along with my family. It’s not just about my health–it’s about theirs, too–which is fuel for the need to protect myself and them. After what I went through last year, I realized that I had my priorities out-of-whack & I am grateful for the learning experience, even though it was painful. I will fiercely protect what I’ve learned, & I am trying to do what I need to so that I don’t have to repeat the process.

My son hasn’t had the experience of knowing me pre-thyroidectomy, & there’s a certain sadness that comes with that. He’s seen the fallout–the mental & physical struggle–& he’s learned compassion. Understanding is hard for him–he’s an only child, & he gets all of the attention & assistance he needs, so he doesn’t have a true understanding of what it’s like to have to figure things out on his own–but he’s learning sympathy (& that note just UNDID me–what a sweet kid he is!!!!!!!!!). My husband has been along for one heck of a ride; half of our marriage has been taken over in many ways by the collateral damage my thyroid cancer has caused. I’m not on this journey alone, & he’s been by my side. Our little household has rallied around me. It’s messier than I’d like for it to be, but it’s so full of love–that note from my son this morning was a huge, gigantic hug that reminded me that even when Monday morning slaps me in the face, I’m coming back home to people that love me, & it makes it all worth it.

I feel like a burden to my household, but I know that’s the enemy talking. God reminds me that I am loved, that I’m His, & that the sun is continuing to rise. He reminds me there is tremendous peace & hope with Him, & that He is using this journey to teach me new ways of relying on Him. He reminds me to hold onto my gratitude, & not to let the enemy twist my focus onto the things that frustrate me–that’s a waste of my energy, & that’s too precious to lose on something like that. Gratitude revives our spirits–it ‘s like in Monsters, Inc., where they find out that laughter is a better fuel than screaming.

We really get much farther in thinking about what we’re grateful for, than in what’s weighing us down.

In my last blog, I mentioned a few things that I’ve struggled with in the last 6 months or so, mostly related to some bitterness associated with a former friend. My therapist this week encouraged me to begin to focus on gratitude, & while I at first felt like I was being shamed for grieving all of the losses & relationship issues, I then realized she was correct: It is time to begin a season of gratitude. I am thankful for a great many things that had to do with that former friend. She led me to a time of employment that made a huge impact on my career & my self-esteem. Without that season, I wouldn’t have developed my personal mission statement. Without that season, I wouldn’t have befriended Jen, Jacque, & Stephen, three people who have changed my life. Without that season, I wouldn’t have been exposed to such a beautiful, diverse culture that I was privileged to be around in that place of employment.

Without that season & without those relationships, I wouldn’t have realized that I am worthy of so much–I am worthy of boundaries. I am worthy of standing up for myself. I am worthy, through Christ, of being fought for. That former friend led me to those three friends, who gave me the gift of solidarity. They teach me every day, along with my other friends, along with my husband and my son, that I Am Not Alone, & that life is GOOD, even when it’s hard.

When I am out of gas, when I can’t lift my head, I have a team of family & friends who point me to gratitude & that takes me to Jesus…and we can make it one more trip around the sun.

We got this.

He’s got me.

And I. Am. Loved.

Hi.

/ Cassidy S. Cooley / Leave a comment

In the words of the Blessed Backstreet Boys (paraphrased), “OhmyGosh, I’m back again….”

I realized I hadn’t written or published anything since March of 2023—that’s a really, really long time to lay something down, and there’s a lot behind the whys-&-the-hows, but let’s just say that my priorities got out of line…my spiritual walk got a little loopy…and life got really, really busy. Between wrestling with theology, work commitments, and having former friends stab me in the back, twist the knife, laugh while I bled, and kick me off of the bridge (nah, I’m not bitter), it’s been a minute. 😊

I had a management position that I loved…I had the best boss of my life…I had a team of employees that I worked hard to build rapport & transparency with…and then I didn’t. After my manager was unceremoniously disposed of by an institution he worked for over 20 years, a former friend of mine became my manager. In full transparency, it was a trainwreck, & I fell apart from a mixture of straight-up bullying/gaslighting, a lack of support, an overload of work, and my own lack of respect for the position this person had attained. Combine this with an employee who valued her own emotional preening over the truth, & you have an untenable situation that I gladly walked away from (truthfully, I would have gone on in that toxic situation until the stress killed me. I don’t have a lot of “quit” in me. However, I found myself facing a choice that didn’t really leave me much of an option, along with a son who point-blank asked me “why are you doing this to yourself?!?” He was right). The anxiety absolutely crushed me; the loss of the position crushed me. And as I have so often done in my life, I found myself face-down on the couch, crying out to God: “Where else can I go?” (You can read the previous blog post for more on this quote that I may as well get tattooed on my face.)

Once the decision was made, I felt like a huge weight that I hadn’t even realized was there, lifted off of my shoulders. “This isn’t punitive,” said the Lord. “It’s deliverance.” And He was right—my theology, particularly in the absence of attending church regularly, had begun to get muddled. Loving people out of one’s own resources rather than out of an abundance of the Holy Spirit meant that I was trying to pour out of an empty cup. I was trying to sustain the mental & spiritual energy it takes to guard my heart while reaching out to others. When you don’t strengthen your armor through prayer & support, it gets weak, and “hath God not said,” gets pretty strong in your mind…

Thus began my #AdventuresInUnemployment this fall.

David & I have had random periods of unemployment throughout our almost-20 years of marriage, but honestly, I’d not been out of work since 2008, & the world has CHANGED in regard to finding a position. I struggled with an identity crisis—did I still want to be in management? Nope, not for a minute. PTSD can be defined as a persistent, anxiety-inducing issue that lasts more than 45 days, & believe me, I had work-related PTSD. This position was not my first management position, but it was in education, & I just didn’t have the foundation I needed to do what I wanted & needed to do. I didn’t have the support to manage well or to understand the expectations, & I spent more time caring about my employees than pushing them beyond what they wanted to do. I have no regrets about leaving my own comfort zone in healthcare & transitioning to education, but I do have regrets about not voicing real issues over voicing the emotions those issues elicited. I have regrets about not setting personal boundaries…about all of the nights & the weekends I spent supporting departments & programs and cleaning up messes…about spending half of my vacation answering emails, & about the anxiety I let build up that suffocated my joy. I have regrets about not protecting myself, and ultimately, about not protecting my family from the burnt-out mess I became.

In a beautiful, glorious tapestry that only looked messy to us at the time, David lost his job last spring. He found another one just before school started, & then I lost my job in the fall. The next few months would change our lives…

In August, we received a phone call that my mother-in-law went on hospice. My brother-in-law & my sister-in-law gave up everything to move in with my in-laws to take care of her, along with my father-in-law (who had dementia, as did my MIL).

In November, my brother-in-law died unexpectedly, & we were devastated. My husband lost his best friend; we lost the most giving, kind man we’d ever known. And on top of that, we lost my mother-in-law’s caregiver, who understandably needed to take time to mourn the shock of losing her spouse of close to 40 years.

We utilized a hospice benefit so we could hold Eugene’s funeral & temporarily placed my MIL into a nursing home…where she broke her femur. We began the process of finding a place for her to recover, even as she continued to struggle with hallucinations & the delusions of dementia.

In December, I received a call from my biological dad’s caregiver & friend, Tammy: “Your dad’s in the hospital, okay?” Me: “Well, really, what’s new? I’ll come up and see him in the morning.” I had a huge interview that day…the kind of interview where you go Business Formal, you suit up, you psych yourself up. The position was thiiiiiiiis close, and this was my last step to a salary & a position that could restore so much to my family & put me back in community service….I finished the interview and drove out to the county hospital…where I discovered my father was in the ICU & was dying of congestive heart failure, COPD, and cirrhosis of the liver.

I wasn’t ready.

I used to say that whenever my biological father died, I’d not shed a tear. This, as it turns out, is a lie. I was devastated.

I was devastated at the loss of a potential relationship. I was devastated at the loss of a terrible relationship. I was devastated at the time that was wasted to abandonment, addiction & abuse. I was devastated by his own admission that he was a terrible man—which we all knew–& I was devastated to be the one to call my sister to come & say goodbye.

Two years ago, God called me to reach out to him & to try to restore communication. It was HARD—I was angry, & I had to hand all of that over to God even as I unpacked it all & processed it with therapy & prayer. I loved my phone calls with Dad—neither one of us likes to talk on the phone—they were short-&-sweet, & he always ended with, “I love you, baby.” “I love you too, Daddy.”

Even typing this, I can feel the tears fall. I won’t get to hear that again this side of Heaven…but I know my Dad knew Jesus. Broken, ornery, abusive, & straight-up wretched—he made his confession of faith, & Jesus welcomed him Home. For those that Fred hurt, they may not be happy to hear that, but I sure am, because we’re all the same in the eyes of God.

I got to see my sister say goodbye…I got to see my dad lay eyes on the daughter he hadn’t seen in 13 years, & I will never, ever forget what that looked like. My son got to say goodbye to a grandfather he’d gotten to meet (which I had once said would never happen). Even my husband got to say goodbye, & my best friend, Vinita, supported us through the entire journey (as did her husband, Casey—he took care of Jericho during our last day with Dad, & I will never forget that).

My dad died without pain, surrounded by his kids (& Vinita, who’s a bonus sister), 90’s country music, prayer, & knowing he was loved. He didn’t die alone—that was so important to me, as I’ve lost 2 uncles who died alone in their home, & I didn’t want that for my father. Does anyone deserve the dedication of people who surround them in their going-home, as long as it takes?

Yes. Yes, we do—NO ONE deserves to die alone. Everyone deserves a human presence next to them, praying them into eternity. That’s a gift, & I am so, so thankful my sister, my best friend, & I got to give that to my Dad.

I wound up getting a different job than the one I’d had the “big” interview with, & I’m back in healthcare again. I may wind up going back into management after I learn the business part of this new organization; I love that I get to combine education & healthcare, & that I’m doing something I’m marginally familiar with while learning alllllllllll kinds of new things. I’m realizing that the stress of my previous position literally short-circuited my brain & affected my health to the point that I was starting to wonder if I had a neurological condition.

News flash: I don’t, at least, where my brain is affected. 😊 I was just overworked & unsupported. It matters.

Having those weeks of unemployment allowed me time to get my thoughts in order…to focus on healing, on what I did wrong, where I could improve, what I needed to do in regards to my career….I focused on organizing the house, learning new recipes, and FINALLY, on how to cook the perfect chicken breast. I feel like even as I was dealing with trauma on multiple levels, the time I had gave me an outlet to rediscover my joy in everyday life. I LIKE organizing things. I LIKE cooking new recipes. I LIKE having my house in order, building shelves, and getting things sorted out. I like my solitude, and my time to cry/laugh/talk to God.

We went back to church. We found a small congregation close to home that keeps us in the community, has denominational support & accountability, and has solid leadership. We’re still working on introducing ourselves (we got waylaid with the flu that took us out for 3 weeks in February), but I think there’s a lot of potential there. It’s healing to be in a body of people that worship together…

But we weren’t done with trauma, it seems….

In January, we received a phone call that my father-in-law was left unattended in his home & fell down the stairs. He passed away, & our family was devastated. Three major losses in three months, on top of David’s mother being on hospice & my starting a new job…then the flu…fighting Medicare for coverage in the nursing home & dealing with taking over administrative tasking for my in-laws…issues in my family stemming from my father’s death that I don’t even understand & still have me reeling…There’s a repeated theme in my life of abandonment & silence when behaviors are not what is expected, & being on the receiving end of it so many times, is excruciating…but seeing my child on the receiving end of it, is so much more than infuriating.

I’m struggling with loss, with anger & sadness & grief. I’m frustrated, worried about my husband, & fighting the urge to wrap my arms around my son & protect him from everyone-&-everything to an extreme.

I’m working my way out of the wilderness & I suspect it will be a very long time until I feel the branches part….but the beautiful thing in the mess is that I know, even if I die in this wilderness, I’m not alone. I’m “leaning on my Beloved,” per Song of Solomon 8:5.

So, where do things stand? I’ve just written over 2,000 words about the utter s—show our lives have been for the last few months, but here I sit, grinning like a Cheshire cat as I type this line.

THERE IS STILL JOY. We’re still laughing, and every chuckle is a giant flip-off to the demons that circle to steal the peace God has poured over us. We are drowning, but we’re laughing at the hair in our eyes as we cling to the life raft of God’s love. We don’t know when or how we’re going to get our feet back under us, but we’ll hold each other’s hand & fall down together. We got into an argument last night that lasted all of 10 minutes & ended with a hug—we’re broken, loud, ridiculous, & we’re basically walking disasters, but We Belong to Jesus, & we know He has us in His hands.

“The human world—it’s a mess.” Sebastian is RIGHT. It’s messy. Our son is 12—he’s almost a teenager—and he actually keeps us grounded when we’re extra-ridiculous. He keeps our sense of humor rolling at the most inappropriate times, & sometimes it’s hard for me to reprimand the sass when I’m snorting back a roar. It’s hard to bawl when you’ve been Rick-Rolled for the 75th time that week, I mean, c’mon….

We’re in The Waiting as to how we heal, what happens next, and how we put one foot in front of another. We’re leaning on our Beloved. We’re (generally) laughing with each other and occasionally foraying into Trash TV because it’s mind-numbingly pacifying. We’re getting ready for Baseball Season (woohoo) & I am so, so grateful to be employed, especially with it being something I enjoy & with management that is supportive and patient.

We’re resting in the Lord as much as we can. We’ll move forward; we’ll occasionally take a step backwards. We’ll mourn & laugh, & we’ll look at each other a few years from now and say, “how in the world did we get here?!?” (We do that now, in all honesty).

And most of all, we’ll continue to be thankful for the support of friends and family, physical and spiritual, who give us the “grace to grieve” & the space to process…

We’re grateful.

We miss you every day, Dads and Eugene. Hold Hannah for us, give my Grandma a hug,  & save us a seat…

“Nothing Breaks Like A Heart…AKA, “[Don’t] Take Another Little Piece of My Heart Now Baby”

/ Cassidy S. Cooley / Leave a comment

Waaaaaay back when I was born, my mother was told that I had a slight heart murmur that I would most likely grow out of. I did.

In college, too much stress + bad food choices + lack of sleep + tooooooo much caffeine = Cardiac Arrhythmia, which eventually resolved. Everything was juuuuuust fine….

Until it wasn’t.

In 2006, I became pregnant with my first child. As a first-time mom, my complaints of, “Hey, I really can’t breathe too well,” and “Um, Doc? I can’t get enough breath support to sing,” were written off as new-mom, “well, what do you expect? You have a human pressing on your diaphragm,” rhetoric and explained away (I’m just a woman, Mr. Doctor. What do I know?).

2 months before I was due, I started seeing double, having migraines, and throwing up. Basic science diagnosed me with severe preeclampsia, and do you know what the “cure” for preeclampsia is? Delivery. So, my daughter was delivered 6 weeks early, and I was “gonna be just fine, ma’am,” said Mr. Third-Generation-I-Know-Everything OB-GYN….

Until it wasn’t.

2 days after I delivered, I couldn’t breathe…coughing and choking on top of a C-section incision is no fun. My sister ran for help, my mother prayed in tongues at the top of her lungs, and the nurses (who were in the middle of changing shifts, as of course, I have fantastic timing) & doctors realized I was in severe congestive heart failure. Over 20 pounds of fluid were drained out of my heart and lungs in the next 24 hours, and I went in for the fight of-and-for my life….while also trying to be a new mom to a premature infant.

Peripartum cardiomyopathy with congestive heart failure and pulmonary hypertension became the noose of a diagnosis that hung around my neck for the next 6 years as I went from specialist-to-specialist, trying to find a cardiologist that would both “fix” me, and would work with me as I wanted to try to have another child.

Once the heart has been blown up in CHF (my left ventricle was three times the size of the rest of my heart. I like to call it, “Grinch Syndrome.”), it tends to sort of hang around like a balloon that’s been overstretched. It’s kinda gross, if you think about it. My heart was literally broken in every possible way….by my body, by grief, by everything.

Image result for grinch's small heart grew

So, I had a few years of echocardiograms, medications, etc., until I found a doctor at Missouri Baptist that ordered more tests and found that my heart issues, outside of blood pressure, had miraculously resolved. I didn’t have any of the long-term problems they expected me to have, and we went on to have Jericho with the help of infectious disease specialists, cardiologists, perinatologists, and a whoooooole lotta grace from God….but it wasn’t without consequences.

As expected, even with a strict regiment of really miserable medications, I went into heart failure towards the end of my pregnancy with Jericho, and was rewarded with a lengthy hospital stay. After delivery, and after promising to never try to have any other children, I have a continued medication regiment that I’ve stayed on, and will be on for the rest of my life. I have my son; I have ZERO regrets.

The meds work great! Most of them are the same ones I’ve been on since 2006, with very few side effects, and with positive results. My CHF numbers stay low (the key number is the ejection fraction for the left ventricle. I’ve been under 10% before. My current numbers are around 40-50%, which is almost normal). My weight has been a challenge (particularly in the post-thyroid world), but has stayed in the same general area since my first pregnancy (give or take 40#. I gain, I lose, I gain, etc.), and my blood pressure stays under control with medication…it’s all working, which is crucial.

SO, why am I telling this story? Why does it matter? It matters, because YOU matter. 1 in 3 women in America are dealing with some sort of heart disease–that’s more than all other cancers, combined: https://www.goredforwomen.org/en/about-heart-disease-in-women

Per the Go Red for Women campaign, “80 percent of cardiac and stroke events may be prevented with education and action.” That’s what we can do. That’s what I can do–I can share my story, and maybe help others to become aware of the resources, the signs and symptoms, and the protocols that can help them understand heart disease more clearly. Knowing is the first step of prevention, right?

Today, my heart is functioning pretty darn well. In fact, I really don’t think about it very often, which is awesome when you consider that at one point, it was ALL I thought about…I couldn’t go up the stairs in my own home without feeling like I was going to pass out! I don’t have any limitations from cardiac issues, and I don’t worry about it…but I AM very conscious of it, and of paying attention to it when something seems “off.” I had some episodes last year of almost passing out. I wanted to ignore them, but I know better, so I called my cardiologist. Turns out, my blood pressure medication needed a simple adjustment….it was nothing complicated, and a simple phone call, and listening to my body, made all of the difference.

Take care of your heart, people. It really is the engine that drives you…and we all know that if the engine is broken, you’re not going anywhere. Love your heart….Live Fierce…and Go Red for Women!!!

Overflow…

/ Cassidy S. Cooley / Leave a comment

After losing my Uncle Charlie last week, my Aunt Bonnie passed away this week. I wasn’t “close” to either of them, but they were still people in my circle, and still people that I knew and laughed with at family functions. I’m not going to be falsely dramatic and say that I’m devastated, etc., because it’s not true; however, any time you lose someone in your circle….someone you’re connected to, in any way…there’s a sadness and a sense of loss. Both my aunt and my uncle were on different sides of my family (my maternal uncle, and my biologically-paternal aunt). They both had wicked senses of humor (I still remember my Uncle Charlie making fun of my parents’ Christian bumper stickers on the “church van” one Christmas, LOL), and my Aunt Bonnie had a laugh you could hear 3 houses down. I think we may have had that in common. Family relationships can be complicated and tangled, and hard to explain–but they’re still family, regardless of whether you see them every few years, or every day.

My family, like many others (but few that I know of, directly) contains adopted family members, step-family members, biological family members, and a few people that we aren’t technically related to, but may as well be. We’re a mid-western melting pot. I remember being so sad about it when I was a kid; everyone in my tiny school had one mom, and one dad, and 2 sets of grandparents, and “normal.” What the heck is “normal,” now? I was sad because I was 7 or 8, and I didn’t understand what a blessing it was, to have so much variety in the definition of that word: “Family.”

“Family” means a lot of different things (and it sure as heck isn’t defined by blood, because that doesn’t BEGIN to make sense in many families). For me, it’s primarily that nuclear group that’s “in my bubble,” thanks to COVID: Mom, Dad, Sister, Husband, Son, Extra Parents. My in-laws, whom I haven’t seen since March because of COVID, are in that group, and I miss them. I miss all of them.

I think that missing friends and family magnifies any loss, even when you’re not that close to someone. This crazy COVID world has us all on edge, all isolated and spread apart, and all feeling the tinges of loneliness (for some, it’s much more than “tinges”). I had a moment yesterday where I was almost in tears, because I miss my friends; I miss spending my Friday afternoons having lunch with friends, getting things off of my chest and/or listening to them do the same.

I miss planning play dates with my kiddo (WHAT ARE WE GONNA DO OVER CHRISTMAS BREAK?!?!?!?!?!). I miss calling someone and saying, “Hey, can we come over?” (Let’s be truthful–I almost never call anyone and say, “hey, come over to my house!!” because I have no parking and I feel self-conscious about the mess of having 3 people crammed into a very small space. But if I COULD call someone and say, “Hey, wanna come over?” I’M AT THE POINT WHERE I WOULD.).

So, this is a short blog (for me). I’m sort of “in the mullygrubs,” as we say (but not at the point where I’m sobbing into my morning coffee. Maybe this blog is a way to get it out of my system before I get that far?). I know of a few people that are really struggling in this season–from loss, from the election issues, from winter blahs, whatever. This tends to be a season where many have a hard time finding their joy in a “normal year,” but this year? There are some dark struggles happening, and the spiritual/mental battles being waged are MAJOR. We’re a world in need of Hope, more than ever.

Writing is one of the ways that I refocus, and that’s what I’m doing here. Yes, you’re basically reading my personal therapy session and I have little-to-no concerns about oversharing–but you probably know that by now! 🙂 I choose Hope…I choose Joy. It doesn’t mean I’m not sad; it just means that I’m leaning on Jesus and pushing through….like a lot of people.

Please pray for Connie, Tammy, Travis, Tiffany, Alvin, Sabrina, Richard, Dena, & their families; they’re missing someone they loved so much, so close to Christmas. There are a lot of families really hurting right now, and all any of us can do, is pray. Don’t forget to reach out to your friends and family right now; stay safe, but stay sensitive to those nudges from the Holy Spirit to not forget those that need to hear kindness and concern right now.

We’re gonna get thru this year, people. We’re allllllllmost there…. 🙂

The Blues and Bad Behavior…

/ Cassidy S. Cooley / Leave a comment

I’ve determined that I’m boring.

I know we’re not supposed to compare ourselves to each other, but sometimes the differences are so glaringly obvious that you can’t help but to notice them, and yep–I’ve noticed: I’m boring.

There was a time (and some of you will remember this) where I actually PRAYED to be boring (and my statement of being boring is NOT a complaint). Things in my life were so chaotic that I couldn’t see which end was up, and all I wanted was for things to die down–I needed an ordinary, boring life, and I prayed on a daily basis for some kind of calm to take place just so that David & I could catch our breath!

And, just like that, here we are–We’re boring.

Now, I’m saying this with the full knowledge that much like the proverbial dog-paddle, we look calm on the surface, but underneath, we’re kickin’ full-steam ahead. We’re treading water in the middle of a panic attack, but at this point, SO IS EVERYONE ELSE. Everyone is stressed out, fed up, flipping over, & manic…

And so are we…but we’re used to this, so we’re still smiling. 🙂 I guess I never thought of repetitive states of chaos conditioning us to a lifestyle of stress, but I’ll be darned–it has! I don’t always look at the frantic pace with this same level of calm (LOL–y’think?!?), but for now–even if it’s just for today–I’m a peace with all of it.

So, yeah, I’m boring (and I’m generally okay with that).

I had the opportunity this weekend to hang out with my older sister, Billie. We’re typically as opposite as two siblings can be–she’s short, I’m tall; I like Broadway and rap, and she likes Southern Rock and the Blues (okay, I like everything except jazz, and I think she agrees with that). I love broccoli, & she’d practically shank you with a stalk when we were kids, as opposed to just eating it (this is great ammunition for my son, because I can now tell him Auntie is short because she didn’t eat her veggies. He has no idea that at 5’7″ I am freakishly tall for our family. All of the veggies in the world aren’t gonna make that kid tall, but I can try while I have the chance). I don’t remember the last time we spent 3 days together, and it was a lot of fun. I have to say, I’m a bit envious–at 47, she still stays involved with the music scene and is a fill-in drummer/percussionist whenever she gets the chance. Sometimes, I’m not going to lie–I wonder where music might have taken me, had I given it the chance? It’s those missed opportunities and/or a lack of pursuit that occasionally rumble around in the back of my brain….

This was also my first opportunity to attend Blues Farm, where a bunch of people hung out, camped, and listened to some great music (Jackson Stokes, the Kris Lager Band, and the incomparable Amanda Fish).

Jackson StokesNow, I haven’t been camping…ever…and I’ve been told that since I didn’t have to use the bathroom in the woods, that this doesn’t count. Whatever–I slept in the Tent From Hell, so I’m counting it. Speaking of the Tent From Hell, therein lies the title of this blog–“The Blues and Bad Behavior.”

Ever lose your temper so voraciously that there is NO GOING BACK?!?

Like, have you ever lost your temper and basically spit fire and sludge like some kind of vomitous garbage heap?!? Yeah, I totally did. I lost it, and I lost it BADLY. I’ve learned that I should never, ever, ever, ever, ever, ever, ever–get it? LIKE, EVER–try to put a tent up in front of anyone. Like, no one should have to hear that hot mess. It was bad. I think I invented a few swearwords. I don’t even know what I said, but I know none of it was good. In my last blog, I wrote about, “Who Lives, Who Dies, Who Tells Your Story?” & I think I addressed the importance of the words you leave behind. It’s safe to say that if anyone had my verbal launch in writing, it’s a story no one would ever want to read…I flat-out embarrassed myself. I’m a firm believer that profanities should be verbal, never written, and that they’re a lazy man’s way of communicating….and boy, was I slacking on the job. Thus, the “Bad Behavior–“I wish I could take it all back and somehow preemptively wash my mouth out, but nope–there it lays. UGH. Maybe it wasn’t as bad as I recollect….hopefully…maybe it just seemed particularly coarse because I haven’t lost it that badly in a very, VERY long time (pre-child)…but yikes.

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(OMG, the gray hair! Get a good look at it, because I’m goin’ in for color in a few weeks! BAH!!)  It’s a good thing I was a pretty good distance away from people, and that the people who were within earshot were very, very forgiving.

But, back to the good stuff–The Blues.

I love music. I love music that makes me emote, music that hits my soul and makes me want to sing. I love that God created music as a universal language, that even when we don’t understand the words, we still feel it the same across the world. I love that feeling when someone just blows you away, and all of the hair stands up on your arms. I love seeing skilled musicians that love what they do, and that pour that joy into their melodies and lyrics.

I love seeing people get gross and sweaty on stage, because they’ve just poured everything out there for the audience to hear and to see. I love worship sets that have ended on the floor, because people are worshiping so passionately with music as the medium, that they are spiritually overwhelmed in the Presence of God. Music was made for worship, to worship, the One Who created it. He made it for His pleasure, and He made us in His image, so we respond to it as well.

Music is so, so powerful–I’ve met very few people that don’t like music, and I have always looked at them sideways. I don’t know that life (and I don’t want to). A good musician touches you spiritually, emotionally, even physically in the overpouring–it’s such a deep thing. I love how I feel when I get to be a part of a team of musicians that all have the same goal: To reach the feet of Jesus…to bear witness to that ultimate expression of worship…

Music is amazing.

The Blues as we know them came from the hearts of an oppressed people whose souls were overburdened with the pain of their lives. It grew out of sorrow that eventually transposed to other emotions–love, even joy. It became a genre of music, as opposed to a culture in music. I feel like it gets appropriated a lot by Southern Rock, which is heavily, heavily influenced by The Blues, and that bands have to be careful of making sure credit is given where it is due. The Blues originated from a deep, soul-level longing, pulling from African roots, from slave songs, and from spirituals. I think that in American music, we tend to categorize it by bass lines and chord progressions; I believe it’s much more than that.  There are all kinds of categories of The Blues, but when I hear that phrase, I always think of the call-and-responses from the fields where a stolen people sang their hope and laments.

This weekend at Blues Farm had some Blues, some rock, some funk, and a good mix of stuff that anyone can dance to, and it was a ton of fun. The bands that played were approachable, honest, and engaging; the people in the audience were so fun to watch, and I could not have felt more out of my element, LOL–but my sister was TOTALLY in hers! She played percussion for almost 6 hours–I’d be a noodle by then.

Amanda Fish

One of the takeaways that I had from the weekend (outside of my renewed understanding in my overall boringness) is how music is so gracious and fluid. My sister played with 2 bands that she hadn’t rehearsed with. There was no soundcheck (um, shout-out to Terry, the sound guy, for being AMAZING–sound is difficult to run, and he was primo!!!), no practicing–there was just, “Hey, get in, let’s play,” and that’s SO EXCITING TO SEE!!!  As a singer, that’s a freedom I wish I got to have, and I don’t think I’ve ever got to do that–to just jump in on a full set, BOOM, let’s go!!–and to not only do it exceedingly well, but to have fun in the process! I didn’t see ANY ego in the bands–everyone was so humble and so obviously there for the sheer joy of playing. I don’t see that enough in music (or ever, really, in church music–people get so caught up in the techniques and the ego that it falls flat of actually being a joyful experience. I’m guilty of it, too). I always overthink things and then I get scared, even in a worship set. SO. Much. Anxiety. I loved looking up and seeing the drummer and my sister perfectly in sync on various rhythms, solely based on how they felt the music, as opposed to having every “i” dotted. It was messy and funky, and it was absolutely PERFECT. GOSH, it was fun to watch and to listen to!

Kris Lager Band

So, in spite of my Bad Behavior, I wound up meeting awesome new people, at a beautiful piece of property in MO, and listening to some really groovy music made by some true artists. I got to sit in on Live Frickin’ Music, y’all, and I’d almost forgotten just how wonderful it is to be in the audience again..

117226474_10158303941798070_6755122828776137988_oI took the opportunity to try my hand at concert photography, which was a new experience that I didn’t know I’d like as much as I do (David could have done much better, but I don’t think I was terrible!).  I gained a new appreciation for my sister’s level of skill, and a new understanding of music in the process. I had a beautiful 3 days in perfect temps, and then I came back home on Sunday to my awesome husband and my crazy kiddo, who both missed me a ton (and I totally missed them). I’m back on the hamster wheel, but for 3 days, I got to experience Blues Farm, and I feel like (in spite of the Tent from Hell), it was a refresher for my brain.

Yep, I’m boring–I’m nowhere near as cool as those musicians or the people who looked way chiller than me, relaxing in their lawn chairs and enjoying the show. I’m way too uptight (I don’t sit still very well), but it was fun to kick back a few days and to meet new people (which, if you know me, you know I don’t do so well on that part–dang you, social anxiety) who seemed like they liked my neurotic self just the way I am (and who made a great deal of fun of my sister, so now I have to love them forever).

I’m looking forward to hopefully going back to Blues Farm in the future…and to hopefully, better behavior….or duct tape. 🙂 (I swear to you, I will NEVER put that tent up again. I’ll sleep on the bare ground first. I’m not kidding).

Love, Peace, and Loud Guitars Forever, y’all. 🙂 (Or at least, that’s what the Cool Kids say). 🙂

 

 

Hurry Up and Wait, AKA, “It’s Allllll Right.”

/ Cassidy S. Cooley / Leave a comment
Some of you may have caught that back in February, my thyroid cancer decided to make a comeback. In typical “Cassidy” fashion, my sense of timing was AWESOME, and as the country was shutting down from COVID-19 in March, I was running back and forth to the hospital to have injections and scans done (Thyrogen injections and RAI with a full-body scan, for those that understand this garbage). This was all set up after my tumor markers (which were 0.00 back in December, which is why BJC decided to release me from monitoring for 3 years back in January ’20) jumped up to 0.7 in February. That may seem like a nominal amount to some, but in my case, it was not a great sign.
So, I had the full body scan done, and just like the last time I went through the test back in 2018, the full body scan was negative. Unlike in 2018 (when my labs were pretty clear), the labs said the cancer was present, but the scan didn’t pick it up (I have cloaking cells. Very Star Trek). In that case, the line of care is to repeat the labs and check the markers, and based on those changes, possibly to graduate to a PET scan and (I hope) eventual surgery to remove the threat (in my case, it’s a few lymph nodes in my neck that have been suspiciously enlarged for the last few years. Large lymph nodes with clean labs = No big deal. Large lymph nodes with positive labs = Kind of a big deal). I know it might sound crazy, but these lymph nodes have been a thorn in my side since my original diagnosis back in 2015. I’d really like to get them out of my body. I don’t know if taking them out will reduce the chances of the cancer showing up elsewhere, but either way, they stress me out, so I want them gone.
My endocrinologist said that if my tumor markers have gone up to 1.0, we’ll move on to the PET scan. I put off getting the tests done until the absolute last possible minute, which was this morning…
Labs are completed…so now, we wait.
I think the hardest part of any medical decision/result is the waiting. It’s like, “Let’s hurry up and get this done…but wait until your insurance approves it,” or, “let’s hurry up and get this done…but wait until the results come in, then we’ll do another test, then we’ll wait some more, and eventually, we’ll have answer…maybe…but that answer may just be that we monitor the condition, so yeah, our treatment advice is just to keep waiting (even though you feel like you have a ticking time bomb in your neck).”
Man, I don’t DO well in the waiting–haven’t we already established that, Lord?!?! Like, YOU KNOW I don’t wait well. I’m not saying that I’m going to sit here and worry until I get the test results, because I’m not going to LET myself say that–I’m going to argue with myself and pray for peace. I’m not going to worry. There’s enough worry in the world, and worry stresses out every body system. It doesn’t MATTER what the test results are–God is still in control, I’m not going to die from this, and it’s going to be okay. It’s the easiest kind of cancer to treat–so much so, that there are some that debate whether or not it’s an actual cancer (although how that’s debatable, I do not know). It really is the stress in the waiting, and the stress in the process, that’s the worst.
I have a friend right now that has metastatic breast cancer (and her treatment during COVID-19 has been terrible–I think the medical industry has let their standard of care drop significantly in the wake of trying to prevent the spread of the disease. Patients are still people, and they still need actual care). We were emailing yesterday, and she said something that really caught my heart: “I just want to feel normal again.”
I’ve said those words. I think anyone who’s been through a major medical issue has said those words, and the truth is, the day you received your diagnosis, your “normal” changed. You don’t look at life through the same lens. People can choose to let it define them, to make it part of their identity. I don’t believe that’s a healthy approach (although you do you–whatever it takes to get through it, do it). To me, it’s not a badge.  I told my friend that it’s part of my story, but it’s absolutely NOT who I am, and it’s not something I candidly speak about to just anyone (although here I am, blogging away. Yeah, I see that.). I think doctors let it define you–every time I go into a medical office, I get 3 things: History of congestive heart failure. History of thyroid cancer. History of diabetes. Every single other thing that has/can go on, is looked at through those lenses, regardless of what I say. That can be frustrating, but I know now to anticipate it. I can live my life with cancer in the background; doctors can’t treat me without considering the history at the forefront. I get it.
But as a human being (and I say “being,” meaning that “as a present, focused individual”), and as someone who says they believe in a Creator Who defines them, cancer/other medical issues are a consequence of living in a fallen world. They don’t reflect Him, and they don’t reflect Who He sees me as. Jesus loves Cassidy. Yes, He knows Cassidy the Cancer Patient, but He Loves Me as who He made me to be, and who He made me to be is whole.
So, that’s how I identify–I identify in hope as someone who’s jumped through the hoops and has come through the other side, unscathed. I might be scarred, but I’m not burned; that might not make sense to you, but that’s okay. The hardest thing for me to deal with through this resurgence of cancer cells is anger, and I’ll admit that it’s still an issue–but I’m not mad at God. I’m aggravated at the Enemy. Cancer didn’t come from God. It came from Satan, and he sucks, so yeah–I’m mad at him. I’m mad at weirdo-genetics and my own laziness, and the frustration of the American healthcare system, and the cost of the procedures, and the feeling like my own sin caused this to happen to me (that’s a lie from the pit of Hell. God is NOT sitting in Heaven with a Smite button. I believe in pleading the Blood of Jesus over sins for my redemption, so no–I’m not being punished by God with cancer. People that teach that kind of religious garbage need a swift kick in the head with the book of James. That’s a whole ‘nother conversation).
God does not look at us through a lens of sin or of sickness. He sees us through His Son, and He sees us through Love, so even though I’m angry at my present situation, I am grateful and I believe that He knows what He is doing. I think my best course of action is to get these rebellious lymph nodes removed. I’ve caught myself pleading my case for that to God, and I have realized that it will be a hard pill to swallow if He says, “no.” That will mean I’m back to square one with a treatment plan, and that I’m back on the hamster wheel of, “hurry up and wait” for another 3-5 years (which may happen if I get the nodes removed. My hope is that if I get the nodes removed, then we can just do periodic lab work instead of ultrasounds and scans).
Part of the new “normal” after a medical diagnosis is relearning how your body is going to function; it’s learning new medications and side effects, and how you need to treat yourself in regards to them. It’s learning the signs of when you’ve pushed things too far, and of listening to your body. It’s educating yourself and your loved ones to hopefully understand and extend grace when you’re not yourself, and it’s part of finding out how to be YOURself, when things can come along chemically, that try to alter that. It’s learning how to reach out when you’re frustrated or sad, and to find someone who can and will listen without judgement. It’s learning to ask for help, even if you may be a person that hates doing so. Asking for help is not a sign of weakness (I’ll say that again, for the people in the back: ASKING FOR HELP IS NOT A SIGN OF WEAKNESS. Thank you.).
Part of the new “normal” is learning to handle a load of fear, impatience, and apprehension that comes at you from every side–from well-meaning friends and family; from physicians; and from yourself (just think of them as these guys: Fear, Impatience, Apprehension–bloodthirsty little hyenas).
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I’ll definitely admit to struggling in this department. Once the “C” word is in your vocabulary, it stays. Some days, it’s a Hollywood marquis; other days, it’s a whisper in the back of your mind. When I’m not in active treatment, it’s usually just a whisper. My daily struggles involve the thyroid replacement meds and the HRT–one missed or mistimed medication can wreck me for days, so I have to have constant organization to remember to stay on top of those things. And because my memory skills aren’t what they used to be (age, meds, oxygen loss, etc.), I have mental systems in place to try to keep things straight, but sometimes, I make mistakes (For anyone who’s on a regiment of multiple medications, I highly recommend PillPack. It makes things SO much easier!!! And they handle vitamins, too, which is nice). Fear, impatience, and apprehension are not from God, so we (I) have to come to a place where we recognize those feelings as they’re coming on, take a stand, and lay them at His feet. Easier said, than done.
And that brings me back to today…The labs are done.
He truly is in the waiting….And in the waiting, we (I) take deep breaths; I focus on knowing that it will all be okay; I pray that God would provide clear answers and direction; and I pray that I will hear Him clearly…
Some people would say, “Well, why don’t you just pray for healing?” Sometimes I think it takes more faith to believe for a healing, than it does to pray for a resolution. I think that’s another blog I will eventually be able to write–there’s a lot to unpack, there.
Right now, we wait. And like my sister’s macaw likes to say, it will be “allllllll right.”
🙂
Hey, if a bird can get it, so can I. 🙂
scully

Raising Rainbows

/ Cassidy S. Cooley / Leave a comment

I know, it’s been a while since I sat down and wrote anything. Life is BUSY, and it’s hard for me to discipline myself enough to focus on the monitor! So, to catch up—

The last blog was all the way back in July! It’s been over a MONTH?!?  What the heck?!? In August, we had some childcare crises to navigate, so we were running all over the place to make sure we were covered. My challenge for the school year is to find a new summer care program for my son, because he just didn’t seem to be as happy at the one he’s been in. I need to figure something out—I’m taking suggestions!

School started mid-August, and Jericho started the First Grade. He has a new teacher, and a new routine, and he seems to be settling in well! I also signed him up for Cross-Country!

I never did sports in school; I was always a music/drama geek, so the concept of team sports didn’t really come my way until I “played” volleyball in college (I use the term, “played,” VERY LOOSELY. I sucked.). My family did martial arts, which is a solo sport—well, solo, until they throw you in a ring and you have to either beat someone up, or get pummeled. I didn’t do so well there, either. J Either way, I believe in athletics and teamwork, and I’m really glad his school is so supportive. I was a nervous WRECK!

It was a million degrees, and I was mostly afraid that he wouldn’t finish the race, but HE DID, and I don’t even know if he came in last—I didn’t pay attention to that. He FINISHED!!  I was so stinking proud (and stinky—did I mention it was a million degrees?!?!)!  The first thing he said to me was, “Did I earn my Taco Bell?!?” Yes, baby, of course you did.

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And then, he proceeded to eat everything on the menu.

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As he gets older, one of the things I’m learning to work with is the endless list of questions. He doesn’t stop asking questions, and I try to answer them all; sometimes, I get overwhelmed and have to make him give me five minutes of silence, but normally, we have some pretty great conversations. He’s known for about a year now that he had a sister, and that she was a baby when she died; he’s now at a point where he’s asking pretty intense questions.

I’m learning to navigate.

He’s learning about germs and bacteria. His sister died of Late-Onset Group B Strep with Bacterial Meningitis, so the fact that a bacteria caused her death is fascinating to him. Yesterday, he was asking me about the technical aspects: “how did it kill her?” “What did it do?” “What kind of germ is it?” “Why couldn’t the doctors fix her?”

I don’t ever want to lie to him, or gloss over something. If he asks the question, I’m going to answer it in the most matter-of-fact, non-emotional way that I can. Working in healthcare for as many years as I have, I’d like to think I can be pretty good with divulging clear facts without emotional interference. It’s a compartmentalization kind of thing. He asks, “how did it kill her?” My response is, “Well, it got into her brain, and it made her brain stop working.” I leave out the other parts that will always hurt to remember…but I do remember, and it does hurt, and I can’t put into words what it’s like to say something so simple but to have such a complicated, graphic memory in my mind.

There are things he simply cannot know, but that I remember in vivid detail.

And there are moments of hope and love in the middle of those painful details…there are even moments of humor…And someday, when he’s much older, we’ll discuss the way Jesus wrapped Himself around our hearts with love and friends, and with memories of people who kept us lifted up in the heaviest of times…

But for now, I will stifle those emotions and those memories, and I will stick to the scientific facts that a six-year old boy is fascinated by.

When you’re raising your rainbow baby, there are no manuals for how to jump these hurdles. There’s nothing that tells you what to say when they ask you the hard questions, and he’s just getting started. Right now, he’s into the science of a germ that takes the life of someone. At some point, he’s going to get into the questions of faith, and healing, and “why didn’t God save her?” “Wasn’t He powerful enough to save her?” “Didn’t He love her? And you?”

I’m not sure how I’m going to answer those questions when they come—especially when sometimes, I can’t even answer them for myself. I’m past the point where the self-doubt, the accusations of the enemy, and the guilt Satan tries to throw at me over her death, sticks. It took YEARS to get through that part, especially since guilt over everything tends to be my go-to reaction when bad things happen. But I’m through it. Medically, I understand there was nothing we could have done. Physically, I understand that we did everything by the book. Because of that research, I am free from all of that.  Spiritually, sometimes I still struggle. It’s hard for me to pray for healing for other people, because that one time, it didn’t happen…

But the Bible says that we still pray for healing…We still pray for others, even when doubts tap in the corner of our minds. So, I pray, and I trust God to use His wisdom to do what He will.

I’m a pretty Type-A kind of person when it comes to life. I have lists, I have outlines, and I have step-by-step methods by which I keep things organized in my office (I try at home. It’s kind of pointless). I like to have questions and answers, and if I can’t answer it, then I FIND an answer for it. It’s been very difficult to come to the place where I let go and I trust God that He has all of the answers. I don’t understand, and I never will in this life, why my daughter died. I don’t get it, and when my son asks me “Why?” I don’t know what I’m going to say.

My go-to answer is that we’re not entitled to answers. We’re not entitled to understanding all of His whys and hows, but what we’re promised is that He knows, He cares, and He loves. How He chooses to love is up to His discretion, not mine, so I have to sit back and trust in Him.

I’ve been very candid to explain to Jericho that had we not learned the things we learned during Hannah’s birth and death, he would not be here. I want him to grow up being thankful for the sister he never knew, and for how God used such a sad thing, for His glory. I want him to understand just a smidgen of the miracle that he is.

These questions are TOUGH, and I wasn’t necessarily prepared for how they would start to be asked…but he’s asking.

I think that as long as my answers continue to point to the redeeming grace of God, even when we’re talking about the science of it all, that we’re on the right track….

And as I learned yesterday, the track isn’t necessarily a fun one to be on….but as long as we run the race, and we don’t give up, there’s a tremendous amount of glory in finishing it and in completing our mission!!!…

“Somebody Burned Down My She-Shed!”

/ Cassidy S. Cooley / Leave a comment

Oh, the “She-Shed” commercial–you know the one!! Since we don’t have “regular” TV (the downside of living in a valley), the only time I ever hear the commercial is on the radio. When I Googled it to link it here, I decided that the “She-Shed” in the commercial is kinda glorious, you know?

I mean, just the concept–A She-Shed!!!  A quiet place, all my very own, to decorate how I want, and to do with what I want—GLORIOUS.  I think the concept of a private place that is unblemished by little fingerprints or man-boots…a place with perfect lighting and ambient music, with gentle motifs and plush carpet…oooh, okay, that sounds glorious.  My She-Shed would be devoted to crafts; the thermostat would never be above or below 65; I’d have inlaid bookcases, & no one would make me watch YouTube videos about Legos or camera lenses…aaaaaahhhhhhh….Oh, and it would smell of lavender & chocolate chip cookies. Always.

And I’d never leave. 🙂

Cue the music…”in my own little corner, in my own little world.….”

We have this unrequited need to have our Very Own Space in this world, and yes, even though our HOUSE is supposed to be that place, as we grow up we find that it’s not. No, our house gets taken over by stuff, or by the people, or by The Legos, or by the whatevers. It’s hard to maintain the upkeep of keeping your home a place of peace in a world that cranks out materialist must-haves at an alarming rate. Every time I Marie-Kondo my house, I make these wonderful spaces that fill back up again in spite of my promises to myself that it’s not going to happen. I’ve pared down and pared down and pared down, and recent events mean that nope–I’m not filling ANYTHING back up again, and it’s okay.

Learning to make do, and to be okay with making do, is an adventure. It’s frustrating, but it’s something we should all be good at by the age that I’m at (I’m not). The more we pare down or get used to telling ourselves, “no,” the more resourceful we find we are. The more we miss going and doing “the things,” the more I’m appreciating the quiet weekends at home. It takes more creativity to stay busy on the weekends when you don’t have the resources to do what you want (truth be told, we’re not really doing anything on the weekends right now. The weather is crap, and blankets are awesome. It’s an issue). In this process, I’m realizing there were a lot of ruts we were stuck in; there were a lot of patterns we were set in that needed to break. It’s not a fun process, truth be told, but the longer we’re in this boat, the more I realize we’re floating. It’s rough waters, but we’re together.

Last week, we faced some scary decisions…At one point, I was laying on the couch, and David had his head on my lap. My son took the opportunity to make a “DAD SANDWICH!” and pounced on top of him; meanwhile, the dog laid at the foot of the couch so that I couldn’t have got off of the couch if I tried.

I looked down at all of my happiness…my husband, my son, my dog…I know it probably sounds cheesy, but with these decisions looming over my head, in that moment, I felt like I could physically shove the anxiety off of my shoulders. Regardless of what happens…regardless of the outcome…this little group of 4 is everything to me. Everyone in that little circle–even the dog–is an answer to prayer and a reminder of how faithful the Lord is.

I’m choosing joy.

I’m choosing contentment.

I’m choosing to Consider the Lilies, and I’m choosing to stay in the room with this tribe.

I’m not going to lie–I’d love to retreat to my mental She-Shed and just check out. But it’s not what we do. It’s not what Jesus does. He dives in and surrounds the four of us–even the dog–and He wraps us in His arms.  He holds us. He has more of a reason to mentally check out than anyone, yet He stays involved. He’s never distant.

When I was in high school, we studied a book about world views, and one of them discussed the concept of Deism. My understanding of Deism is that God basically set everything in motion in some way–the Big Bang, Intelligent Design, whatever–and then He just steps back and watches us do whatever. He doesn’t intervene; He gives us passing interest, but He lets us live our lives while He does His Own thing. This view of God always struck me as the saddest, because why should we love a Father Who’s checked out?  Why should we care about the “will” of a God Who sits back in His Celestial Man Cave while we run around in the rat traps of earth?

It’s the same kind of philosophy that inspires us to want to hide in She-Sheds or Man-Caves or under a blanket in our bedrooms until the drama subsides. It solves nothing, it helps no one, and it’s entirely narcissistic. Granted, everyone needs some time alone sometimes. I’m not saying that’s a bad idea, and if you have the means to make a She-Shed, Sheryl, BUILD THE THING, OKAY?!? 🙂

Just don’t be surprised if it gets struck by lightning.

I’m kidding!  But seriously, we’re so inundated with noise and drama–my last blog discusses the beauty of getting small, and the appreciation for the quiet. There’s a time for noise and a time for drama, but there’s also a time for being involved and for community. Families aren’t made of individuals who hide and ignore each other. They’re made in the side-by-side, day-to-day relationships we form when we work together. They’re solidified by relationships with our ever-involved God, and with each other. They take constant work, but there’s a constant reward that it so worth it–I have to remind myself of that, because as I age I get more inclined to hide under that blanket.

If I hid in my She-Shed, or under that blanket, I’d miss the peace I found in the family picture of the four of us crowded around/on the couch. I’d miss that gentle reminder from the Lord of all that He’s done and will do, and is doing. I’d miss the reminders in church on Sunday of the people He’s placed in my life, and of the people in who’s lives He’s placed me.

He surrounds us with reminders of His love in the midst of every storm. Sometimes, we don’t see them until we’re through to the other side, and that’s okay. Sometimes, though, they’re undeniably present…as long as we’re present, and don’t check out into our mental She-Sheds or Man Caves.

Stay present. I love the cheesy saying that “it’s called The Present for a reason.” It really is a gift, albeit an occasionally frightening one. Storms don’t go away just because we find a place to hide–we have to face them. But when we face them and when we get present with those storms, we know that He is present WITH us–we’re not alone.

The world tells us to hide and to isolate; it glamorizes the concept a place of our own, but Jesus tells us to Go Out Into All of the World. He tells us to be open and to engage…He tells us He will be with us. He tells us we’re never alone, and that we always have a place of our own, in His Kingdom, in His time. Now is not the time for the She Shed or the Man Cave….Now is the time to change the world, and we do that by building relationships and by celebrating the relationships that we have.

Now, if only I could convince myself to get off of this dang couch….. 🙂

 

3am…

/ Cassidy S. Cooley / Leave a comment

I don’t want to be awake right now.

Steroids do funny things. I’m on Day 4, & I know they’re doing what they need to do, but I’m tired…but jumpy…and honestly, emotional.

Her birthday is this week….it’s Tuesday. If you ask me specifically why it hits me differently every year, I couldn’t tell you. Everything was running along smoothly, except for, same as last year, when I realized that life was running along so quickly that I wouldn’t have time this week to take that “pause” to honor her….to reflect on her life….and I hate that.

I had to say the words last night out loud, “Hey, I get this. We need this. She was real, she was a person, and she is part of who we are, so even in this crazy, busy week, we make time.”

I don’t know how that is going to happen, but it IS going to happen.

We move along in life so quickly….we have our routines and schedules. We don’t take time to sit and reflect, so it feels unnatural, but it needs to be done. Pain and sadness need to be recognized, so they can be processed….so that they don’t get buried….because we all know they don’t STAY buried.

For me, if I don’t take this time now, these feelings and frustrations will manifest themselves in a couple of ways. I’ll cry or fly off of the handle about something innocuous. I’ll sulk or withdraw. I won’t sleep. I will carry around unnecessary guilt and shame. I’ll get sick. My family will suffer, & it will all be fallout from my failure to listen to that still, small voice that says, “Stop. Breathe. Remember.”

My daughter…my beautiful winter butterfly…would be 12 years old this week. We’d be going through “the change” that all of the women in my family went thru at 12, and OMG HOW WOULD WE DEAL?!?!? I imagine we’d be having arguments about social media & boys, & junior-high drama…there would be the introduction to makeup, or maybe a CCW class with Auntie, & Lord knows what else. We’d be starting the conversation about college, and I would be internally freaking out about how much information about LIFE, & HOW do parents maintain that balance? I think my Hannah & I would have a good relationship, & that I would be finding myself on my knees more than ever before as we enter the last year before TEENAGERDOME. 🙂

My little girl passed away before too much of her personality could be established, but there are some things I know for certain: She loved music. She loved songs with soul & excitement. 🙂 She smelled like Cheerios, & she knew her Daddy’s voice. She was a happy baby, which is amazing, considering the duress by which she came into the world…

And she made me into someone I’ve wanted to be, for as long as I can remember: She made me a Mom.

I will always, always be grateful to God for blessing us with her. I will always be grateful for our 29 days on this earth together, & I have absolutely no regrets. We had a gift that changed the course of our lives, our marriage, & our faith, & we are eternally impacted by 29 days with the most precious princess this world has ever seen.

I love that our journey with Hannah isn’t over. I love knowing that because of Jesus, it’s only on “pause,” until we are together in eternity. I love that He gives us that level of hope, and that He takes our despair & turns it into a beautiful anticipation of what is to come….

Happy birthday, Hannah Elizabeth Gayle Cooley. You’ve made my world more amazing and beautiful, just because I had the chance to call you mine.

3am isn’t so bad, after all.